Low Tone Hypotonia And Descalsification On Her Bones Posted: 07-16-04 16:34pm
hi
my name is maria alexandra my daughter
mariana (15 months) has low tone hypotonia
and descalsification on her bones. She
was born fine no problems at all, then
when she was 4 months old everything came
down, she started to throw up everything
especially her milk. Then it started with
her foods well everything she thru up.
She shaked a lot and her eyes were all
crossed. I went to her first doctor and
he said that was normal for her reflex,
and that her vomiting that was reflux, he
reffered me to a gi doctor and saw her and
started reglan she started to shake more
and her vomiting was worse. Since january
(i chaged doctor and nothing either he was
concern at first hospitiled her and
practice a lot of test but nothing, no
answer) till now she hasn't gain weight
she is still on 17 pounds, her height is
28.75 inches and her head is still 44 cm
since january. I'm always at the hospital
doing a lot of tests and they come normal
(the best) but she is still going back
instead of going up. She doesn't walk,
nor crawl and she is very floppy. I'm
desperate, i'm here alone no money and
trying to the best for her, but i'm
falling apart. I have seen gi doctor,
neurology doctors, pshycological doctors,
nutrionists doctors, genetic doctor and no
answer and marinaita still the same, no
gaining weight and more floppy and no
standing and no walking and very
constipated. I'm going crazy and still
vomiting. Please if you can help me out
that could be the best thing that could
happen to marianita and me!!!!!!! Thank
you so much for reading and getting back
to me. I have faith that one day
marianita is going to walk, but if her
bones are like that I don't know what is
going to happen.
Thank you
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This page was last updated on June 11, 2008
hi
my name is maria alexandra my daughter
mariana (15 months) has low tone hypotonia
and descalsification on her bones. She
was born fine no problems at all, then
when she was 4 months old everything came
down, she started to throw up everything
especially her milk. Then it started with
her foods well everything she thru up.
She shaked a lot and her eyes were all
crossed. I went to her first doctor and
he said that was normal for her reflex,
and that her vomiting that was reflux, he
reffered me to a gi doctor and saw her and
started reglan she started to shake more
and her vomiting was worse. Since january
(i chaged doctor and nothing either he was
concern at first hospitiled her and
practice a lot of test but nothing, no
answer) till now she hasn't gain weight
she is still on 17 pounds, her height is
28.75 inches and her head is still 44 cm
since january. I'm always at the hospital
doing a lot of tests and they come normal
(the best) but she is still going back
instead of going up. She doesn't walk,
nor crawl and she is very floppy. I'm
desperate, i'm here alone no money and
trying to the best for her, but i'm
falling apart. I have seen gi doctor,
neurology doctors, pshycological doctors,
nutrionists doctors, genetic doctor and no
answer and marinaita still the same, no
gaining weight and more floppy and no
standing and no walking and very
constipated. I'm going crazy and still
vomiting. Please if you can help me out
that could be the best thing that could
happen to marianita and me!!!!!!! Thank
you so much for reading and getting back
to me. I have faith that one day
marianita is going to walk, but if her
bones are like that I don't know what is
going to happen.
