When are we people with epilepsy going to
get research going the way that cancer
does to raise money.
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SleepyJen
New User, Becoming EHEALTHy
Joined: 31 May 2004 Posts: 41 Location: NYC
Posted: 07-19-04 21:41pm
I think part of the problem is the stigma
associated with epilepsy. Many
celebrities use their visibility to
attract attention to and raise money for
cancer, aids, etc research. Yet few even
admit to having epilepsy for fear that it
will hurt their careers. (this is not
just true for celebrities.) before we can
raise money, we need to be able to speak
openly about epilepsy. I wish I had a
quick and easy solution to this important
problem. I try to at least educate the
people in my world as much as I can (by
making them aware of my situation, not
hiding anything, and sharing facts about
the condition). In addition, i'm
studying biomedical engineering so that I
can do epilepsy research in the future.
I believe i'm doing my (small) part, but I
admit that doesn't raise money. We all
need to work together for that... Any
ideas?
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mommy2
New User, Becoming EHEALTHy
Joined: 07 Jun 2004 Posts: 16
Posted: 07-25-04 21:31pm
The epilepsy association of dayton, oh,
just held it's annual mud volleyball
tournament. They charge $250.00 for each
team to enter. It has become huge! I
have never participated, yet caught a
quick glimpse this year by chance. I
read in the dayton daily news that they
raise a huge amt. Of money (can't
remember how much).
