I've tested ra positive for almost 30
years and had a positive ana and high crp
levels for the past 10 years. I've gone
to many internists and rheumatologists in
my home town, wichita, kansas and a little
over a year ago was sent to washington
hospital in st. Louis to see a specialist
there. To make a long story short no one
seems to know what I have. They don't
think it's ra or lupus....But they haven't
ruled them out. Whatever it is they
think it includes chronic fatigue syndrome
among other things, but they don't think
that's what's causing all the symptoms or
the test results.
The doctors here have decided it's time to
call in the big guns. The initial choice
was mayo clinic in rochester, but they've
also mentioned the cleveland clinic.
Does anyone have a recommendation on where
I might find the best doctors and
facilities to determine a diagnosis and
treatment for a disease that's been
kicking up it's heels for a long, long
time??