I have just started going to a rheumy as
of monday. I've had sle for a long time,
but all I ever did was take pain pills.
Now, as of monday, he has started me on
chemo and a slew of other pills. I also
thought I was having allergies but come to
find out, I have now acquired asthma with
this disease. What I would like to know
is who has done the chemo and what kind of
side affects did you have. Also, i'm
understanding that he only starts you on
chemo when you are really doing badly. I
am 46 and I am extremely overwhelmed.
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flowergar
New User, Becoming EHEALTHy
Joined: 23 Jul 2004 Posts: 4 Location: tri state area
Posted: 07-23-04 19:31pm
Hi,
my brother did the chemo. I know he
experienced nasuea. His remedy for that
was a pb&j sandwich. Other than that
I would say for a good day he was tired
and blahh. The day after treatment he
wouldn't even get dressed. As far as
starting chemo, my brother pretty much had
lupus his whole life, with symptoms
starting as early as 12. Though it took
them many many years to finally label it.
I'm not sure what constitutes a patient
for chemo, but my brother was very sick.
Talk to your Dr. For a better
understanding. I wish you luck in your
treatment.
Thank you for answering me on the chemo.
This coming monday will be the 2nd shot so
I was wondering what to expect. If
anyone else has any info please let me
know. Again, thanks!
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 07-27-04 22:32pm
Welcome!
i did chemo for a while. I'd have two
days out of the week where I would be so
sick. I'd get shots every sunday. Ugh!
It worked for a while. Not as well as
they hoped, but it gave me a
break...Sorta.
I know I got a low dose with the weekly
shots...I know some get large doses once
every month or so. What kind of dosage
are you getting?
Hi ladybrannon
i am taking 0.4 methotrexate every monday.
What I have noticed is a different
taste. I don't know how this is going to
work out. I'm hoping that the reason the
dr has me doing chemo is to try to get me
into remission. Or is it because I am so
bad? With all of the other drugs, the
one thing I have noticed is that I am not
sooooo tired in the mornings when I wake
up. That's more than I thought was
possible. I also noticed a change in my
vision sometimes. Thank you for
responding to my questions.
Karen
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 08-02-04 20:47pm
You should mention the change in vision to
your doctor...That can be caused by a lot
of different things!
I can't speak for your doctor, but it has
been my experience that all the meds they
give you are to keep you in
control...Preferably without prednisone!
Hi ladybrannon
no, not on prednisone at this time. 3rd
week for chemo. And today I feel really
bad. I guess it just gets worse? Vision
is better but I have to have an eye exam
every 6 months if not sooner. My husband
began today giving the chemo injections.
If you have more info, please let me
know.
Thank you for talking to me.
Karen
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 08-06-04 09:48am
Karen! Hi!
i do remember it taking a while for the
system to "accept" the new med! If I am
remembering correctly, it was worse at
first...Maybe six to eight weeks, and then
I settled into a predictable routine.
I thought the worse was the vomiting and
nausea. But, then again, I can handle
most pain...Just not nausea!
