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Epival And Hair Loss

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kelly207

New User, Becoming EHEALTHy
Joined: 23 Jul 2004
Posts: 7
Location: canada
Epival And Hair Loss
Posted: 07-23-04 17:44pm

Hi, i'm new here, and i'm hoping that someone can help me. I've started on epival in the last four months after years of medications and surgery to try to control my epilepsy. I've noticed some positve decreases in the amount of seizures so i'm happy about that. However, not to sound petty, but one of the major side effects is a real change in my hair. I have long hair, and previously it has always been very thick and shiny. In the last few weeks, i've noticed that it's very dull, and is breaking off all over. I have a fuzzbull around my roots from short hairs sticking up all over. I don't want to sound vain, but this is really bothering me. I had to shave my head completely for the surgery four years ago, and that was really difficult. I finally have my hair back again, but the epival is wreaking havoc on it. I've been thinking about large doses of omega oils, but thought i'd ask here first. Any info would be appreciated. Thanks!
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SleepyJen

New User, Becoming EHEALTHy
Joined: 31 May 2004
Posts: 41
Location: NYC
Selenium And Zinc
Posted: 07-24-04 19:16pm

Wow that sucks that they shaved your whole head for your surgery. They barely shaved anything for mine.

Anyway, I had a major problem with hair loss years ago when I was taking high doses of depakote. I was visibly shedding my long hair throughout the day, and I had the fuzzball problem too. One good thing it did though was permanently make my hair more curly than it was, and I like it better now (though I think it may be thinner).

I can recall back then that my doctor advised me to take selenium and zinc supplements, though I can't remember if it helped much. But it may be worth a try. Good luck.
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kelly207

New User, Becoming EHEALTHy
Joined: 23 Jul 2004
Posts: 7
Location: canada

Posted: 07-28-04 14:57pm

Thanks sleepyjen for the info, i'm going to try that right away. As for the curly hair, when they shaved my head it's already come in definitely wavier, I used to have poker straight hair, so maybe i'll end up with curls eventually!
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SleepyJen

New User, Becoming EHEALTHy
Joined: 31 May 2004
Posts: 41
Location: NYC

Posted: 07-29-04 00:20am

Hi again,

i just realized that epival and depakote are the same drug. Anyway, I know it's actually a common thing for that drug to permanently make hair curly... So if you want curly hair you're in luck!

Jen
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beckerc1

New User, Becoming EHEALTHy
Joined: 27 Jul 2004
Posts: 4
Location: Mobile Al

Posted: 07-29-04 05:43am

You're not being petty - can't the doctor put you on something else/ the newer drugs don't do that - there are other choices out there(i'm a woman, and our hair is very important - it's tough enough being epileptic, with out losing our hair too!! Congrats on your surgery!Cb
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kelly207

New User, Becoming EHEALTHy
Joined: 23 Jul 2004
Posts: 7
Location: canada

Posted: 07-29-04 11:12am

Hi beckerc1, actually this drug is one in a long list that i've been on because even after the surgery my seizures still have not stopped, and in fact are in some ways worse. So we just keep trying to find the meds that are going to control them best. It's a pain, but the epival does make a substantial difference even if some of the side effects are miserable (nausea, vomiting, tiredness, and now this hair thing). Thanks for your positive thoughts though, you're definitely right about being a woman with epilepsy!
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