Sometimes I dream that I am having an
aura, but I can't speak to tell anyone
it's happening. When I have one when
awake I can and even walk to the hospital
if I am close. Anyway I think it's just
my anxiety but I was wondering if anyone
else has ever had dreams about their e and
if you thoght it affected or was
apredeterminer to an oncomming seizure.
It just freaks me out because it just
started happening over the last couple of
years.
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kelly207
New User, Becoming EHEALTHy
Joined: 23 Jul 2004 Posts: 7 Location: canada
Posted: 07-29-04 11:22am
I haven't ever had anything like that
happen while I was awake, but when I have
been on certain meds, or really stressed
or tired, I will sometimes have sleep
paralysis, and feel like i'm going to have
a seizure. I feel like if I could just
move my arm or leg or get out of bed I
could prevent the seizure, but of course I
can't. Sometimes i'll even dream that I
did get up and that i'm moving around my
room, and then i'll realize it didn't
happen and i'm still lying in bed and a
seizure is coming on. It's always kind
of scary, and i've never gotten a straight
answer from any of my neurologists about
whether or not it's connected to the
epilepsy or not, but it does seem to
happen in waves (it'll happen for a while,
then disappear for a long time).
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Tigerlilyz
New User, Becoming EHEALTHy
Joined: 27 Jul 2004 Posts: 8
Thanx Posted: 07-29-04 13:12pm
My dreams come in waves as well and I am
currently in one of those now. I am
concerned because I haven't had a seizure
in years. For a while now i've been
feeling like i've just been waiting to
have one I think about it all the time. I
just don't know hat to do because the
doctors here are useless. They either
know nothing or just say ... Don't worry
.....How about some anti anxiety meds,
without even asking more questions or
running any tests. I haven't seen a neuro
in about 13 years and I am getting to the
point of maybe seeing one again. Right
now I don't even have a doctor because
mine left town so I am seeing yet again
someone new next week, who knows nothing
i'm sure. I think I am freaked out
because now that I have kids it's a big
deal if I have a seizure. All my seizures
are status that's why I go to the hospital
right when the auras start for a shot of
valium. I just really want to know if I
am really having anxiety attacks or not.
I had suposedly grew out of it when I was
13 or so but the seizures returned after
my son was born. I'm back on tegretol
300mg 3times/day and it seems to work I
just feel weird lately. I get levels done
every 6 months or so and liver funtion
tests done as well once a year. I just
don't know why I am so afraid now I am
very luck to not have many seizures but
they are so bad and the longer I go with
out one the worse I feel. I sometimes
feel like if I had one it would release
this horribe built up feeling inside. I
'm sorry to go on and on I feel better to
get this off my chest now. I don't have
anyone to talk to about this because since
my seizures are infrequent I feel that
noone understands how this really affects
my life. I'm getting more afraid to work
long hours, get a new job, go places
alone...Ect. I will see the doc and try
to be more assertive this time. Thank-you
for reading my novel.
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kelly207
New User, Becoming EHEALTHy
Joined: 23 Jul 2004 Posts: 7 Location: canada
Posted: 07-29-04 13:27pm
Tigerlilyz I feel so bad for you. I know
what it's like to deal with doctors who
feel like they are god and know
everything, so what possibly could you
have to tell or teach them? It's very
frustrating, and yet there are some good
doctors out there. One of my best
experiences was with a brand-new doctor
who was all fired up and full of
enthusiasm. He dealt really well with me
and was open to trying all sorts of things
if I really wanted to. He made sure to
keep up to date and was still humble
enough to go to another doctor for help if
he felt over his head. Maybe someone
like that could help you, sometimes the
idea they have that they are going to save
the world helps! Meanwhile I know it
sounds trite, but try not to get into a
vicious cycle of worry that will actually
bring on some more negative symptoms.
Even if it means posting here ten times a
day so that you feel that someone is
listening to you, do it if it helps.
|
limeridge
New User, Becoming EHEALTHy
Joined: 08 Jul 2004 Posts: 10 Location: canada
Posted: 08-11-04 17:45pm
I really only get my seizures at bedtime.
Now I take keppra now and it is a wonder
drug. I really don't get them like I did.
When I was getting them all the time it
was at bedtime. I would get them just as
I go to sleep. Mind you I would not even
know what would happen at all. I would
call my parents and talk until I came out
of it. My parents always say I can't
really talk on the phone because i'm in a
seizure. Thank god they don't think it's
a crank call.
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