Joined: 28 Dec 2003 Posts: 1 Location: Newfoundland
Benign Ms ... Posted: 08-09-04 13:52pm
Hi all!
I was diagnosed with *benign* ms a few
months ago, and I wonder how many of you
have the same diagnosis. My symptoms ...
Brain fog, numbness and vertigo. I had
two (2) mris (with and without contrast)
of my head/neck that were all clear.
Hence, the *benign* diagnosis. Have any
of you had any experience with this
diagnosis?
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oopoopoop
Extremely EHEALTHy
Joined: 18 Mar 2004 Posts: 1206 Location: ,
Thanks: 34
Thanked:2
Posted: 08-12-04 09:34am
I am wondering on what basis they
diagnosed you with ms? Your symptoms are
fairly non-specific neurological symptoms
associated with a range of conditions; you
don't describe having many of the standard
ms sensory/movement symptoms; and you
don't have any lesions on an mri. It
certainly does sound pretty "benign"!
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Ste
New User, Becoming EHEALTHy
Joined: 30 Jan 2005 Posts: 12 Location: Sydney
More Info... Posted: 01-31-05 23:42pm
Don't know much about it myself yet but
here's a link to a study of ms with
details of the classification of 'benign'
I have been diagnosed with benign ms. I
did some reading on it from the mayo
clinic. It described my life with ms for
the last 20 years. My last brain scan
showed no lesions. Anyone else out there
with b.M.S.?
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earthmom
New User, Becoming EHEALTHy
Joined: 05 May 2004 Posts: 18 Location: USA
Benign Ms Posted: 01-13-06 14:28pm
Approximately 10-15% of those with ms have
the benign form. This form of ms has
rare, very mild attacks separated by long
periods with no symptoms, does not worsen
with time, and produces no permanent
disability. As the defining
characteristic of benign ms is the long
term absence of symptoms, it can only be
diagnosed after ten or more years.
The phrase “benign ms” is sometimes
used inaccurately to describe a period of
mild symptoms following diagnosis and
subsequent disease activity may show that
this period of no symptoms was instead a
time of remission, and that the person
actually has relapsing/remitting ms.
Benign ms tends to be associated with less
severe symptoms at onset.
About 1.1 million people worldwide have
multiple sclerosis, and the incidence
appears to be increasing. Onset of
symptoms typically occurs between the ages
of 15 and 40 years, with a peak incidence
in people in their 20s and 30s. Women are
affected twice as often as men. Multiple
sclerosis occurs worldwide but is most
common in caucasian people of northern
european origin. It is extremely rare
among asians and africans.
Further Supportive Information Posted: 03-25-06 23:10pm
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s47087
My doctor believes I do have benign ms. I
am thirty five. My ms we believe first
began when I was twenty one. I was
pregnant. My legs twitched so much during
the pregnancy that they became permanantly
tight for about a year. Finally it went
away. I believed this was related to
pregnancy and was so young I did not say
anything. Then when I was thirty I began
getting electric shocks down my body when
I looked down and was unable to move my
left arm. That was when I was diagnosed
with lesions in my brain spinal cord. I
began taking one of the abc drugs. I am
thirty five now and other than some
tiredness and fatigue, numbness, tingling
and twitching once in a while which go
away shortly, I have nothing and my MRI is
unchanged, was told lesions have gotten
smaller, one not even visible anymore.
All total it has been about 14 yrs. I am
healthy. I consider myself VERY lucky
(knock on wood). My doctor seems amazed.
I am amazed. I don't know what I do. I
do smoke (bad), but I have always eaten
very healthy and been active. I have
eaten mostly fruits, vegetables and meat
all my life because that is what I like to
eat and am thin with athletic build. I do
believe my meds have helped because once I
stopped taking them and in about six
months had the worse numbness I had had
since age thirty, but went away a couple
months after starting my meds again and
not change on MRI. Some muscle atrophy
because of injecting and I have been
injecting the same med for five years, but
worth it. Beginning to wonder where else
to shoot myself though, it leaves big
dents. I will take that, much better than
the alternative. SO...I believe there is
hope, but I know that the course is often
out of our hands. I have just been lucky
so far.