i have no clue what to do !!!

I never had the breathing difficulty other than my anxiety however I was paralyzed on my whole right side. They thought it was a stroke but figured out it was the ms. Im only 19 years old so its very hard for me to deal with this. I do have all my movement back but I walk with a limp and im still weak in my right hand. I just want to be back to normal you know?? If you ever need to talk feel free to email me.

Andria

Hi, I was just reading your message and I see that you are having some real diffuculties finding answers.

First thing to do is find your self a neuroligist who specializes in ms then go to him and ask for a mri of the brain and neck. (c-spine) sometimes these symptoms hide in the spine. If this doesn't work, maybe you can find out about this new blood test that is used to find out if you are to develop ms.
That way you can get on meds as soon as you can.

Good luck

angela

I spoke with my mother who suffers from ms and this was her response to your posting:

it sounds like this person needs to find a new Dr. All these symptoms could
be a result of several things including ms,& fibromyalgia . If they do not
want a new Dr. They need to be insistant that further testing and/or
consultation be done. In todays medicine, things are put off because of cost many times until they either get worse or the patient is more persistant.

I hope that you find this to be helpful and that things work out for you. I will certainly pray that you find resolution.

Hi andria, I think I spelled it right. I remember when I was once your age. I was kicked out with no where to go, but I did have a job. I remember falling all the time for no reason, even n my early 20's when I became pregnant. How I wish I could go back, it would be so many things I would change. #1- would be my diet. I was very petite & very athletic. I was like that up until I had my brain surgery in 1998. Instead of 135lbs, its182lbs, which is to much for me to handle. I don't eat much at all, it's what I eat & drink. I told my husband that I wasn't going to buy anything that has sugar in it, maybe once a month. I love chocolate which causes me to have severe migraines, coffee is great because it reminds me of taffy, I add to much sugar. I'm 43 & i'm not happy at all. I reallize god kept me here for a reason & I wish I knew what the reason was. You r young and u have your whole life ahead of u. You especially need to hold your head up high, regardless of what any one says, don't let things that people say bother u. In the past people made me upset plenty of times talking about me & at that time I was so nieve & stupid. I held everything end until 1 day I just exploded, my husband didn't know how to act or what to say. If u do have ms, u will have to start watching your diet, I don't know whether I have it but, I do have all the symptoms, I haven't been diagnosed. It's taking them to long, & i'm trying to be patient. Since I have so many things going on it's really rough. Get all the info that u can. If u have kids it's going to be a rough ride & if u don't it's still going to be a rough ride, that is if u do have ms good luck to u. Remember this: when u deal with a doctor make sure u understand what he's saying, don't tell him u understand when u really don't, make sure if u have tests, that u know exactly what those test are & for what. I didn't understand a lot of things so I acted like I did & the doctor took a lot of my inside out without my knowledge. He told me, but of course I didn't understand. I hope with all my might that u stay up on what's going on with you. My daughter's always telling me that my e-mails are long. She's 21 & maybe she is telling the truth, so im going to n this. I wish u much success (for some reason when I get into telling this story I just get carried away) bye, bye + hugs + kisses for you

Hi eloise - you mentioned if you have ms you have to watch what you eat. Never heard of that. Haven't been diagnosed but have symptoms - doctors say it may be ms attack. Mri came out with lesions but spinal was negative. How does diet affect ms?

Hello everyone;

it simply amazes me that there are so many people that suffer with the same symtoms, yet there is really no diagnosis for some time. I to have had most of the same symptoms, the cat scans, mri's etc. Nothing shows so my doctor said it was fibromyalgia. I too wish that I would have taken better care with diet etc. When I was young, because I do believe that this certainly factors into our health. I have been researching my condition for about 10 years now. I have had certain results with some herbal preparations, but I never really started feeling better till about 20 months ago. A girlfriend of mine introduced me to another girlfriend of hers whom was diagnosed with ms. She has been taking for a number of years and swears by her results that the vitamins/nutrients and phytonutrients that she is on make a huge difference. I said to her that I have been taking vitamins etc. For approx. 15 years??? She said to me how do you know that they are absorbing? Well I thought because I had done my research that because I was not buying them just at the grocery store that I was on a very good source. To my surprize after researching what she was taking, I came to realize that they were the only vitamins that I could find that had a scientific patent that guaranteed their absorption!! No wonder so many people say that they do not feel any different when on vitamins. I decided to switch and also take a couple of other things she was taking that she recommended, and am I ever glad I did, I have been pretty close to being 90-95% symptom free for about 20 months now. My girlfriend whom is also a nurse said that it all boils down to the cell. If the cell isn't healthy, disease will manifest. Our cells make up our tissues, our tissues make up our organs, our organs make up our systems. If our systems aren't working properly even like our neurological system then somewhere along the line our cells aren't healthy and i'm sure that is why we feel so many symptoms all over the place. With so many auto-immune dysfunctions and the increase of stats I think most definately there are many factors. First and foremost our lifestyles full of stress and hecticness. The rise of environmental toxins, particularly within our own homes (re: exposure to these chemicals within our jobs and our homes over time i'm sure have broken down our defenses and our immunity systems.) and our lack of nutrients within our foods do to continuous cropping as well as the use of pesticides and sprays. It doesn't take a brain surgeon to figure out that a tomato bought at the local superstore doesn't taste the same as tomatoes bought at a farmers market!! It's up to us to research and eliminate the toxins even within our own home, supplement with the nutrients we need that at least guarantee they enter and absorb into the cell and take personal responsibility for leading healthier lives. Even at our worse times there is hope if we get down to figuring out what we can do to help make our cells healthier. If any of you would want to know what I have done in paticular, it would be my pleasure to coach you as did a couple of other women for me. I had done the drugs prescribed from my doctors before as well, so many have so many side effects. Don't get me wrong I believe there is a time and a place when drugs are needed, but I am so happy to be living a drug free life for the past 18 months now. All the best to you all on your health journeys.


Karen

Hi there ;o)

I get migraine headaches frequently and I have never had anything like that happen. Some doctors have real problems diagnosing quickly however early treatment has shown to be most important in aiding to stop or slow the progression of the disease. Was your mri a full mri (that being of both your spine and brain)? Did they use dye (can help determine the age of lesions and severity)? As ms affects the brain and does not seem to care what area of it, it only stands to reason that any function can be attacked... Coaggulation of blood can be an issue I just learned last night from a sight regarding low dose naltrexone or more simply ldn. There are also other disease which have like symptoms to ms. Do your own research and no matter what find a neuro who is more proactive about finding out what it is!!! The earlier you start a treatment the better. And trust your feelings don't alow doctors to belittle them! They aren't feeling it you are. If you are able to keep a diary of odd feelings when you feel them, be it foggy eye ringing ears nausea virtigo numbness pins and needles or body aches etc...

If you need to talk give me a buzz through my email.

Best wishes,

sarah

I finally got an answer after 4 years of total hell and it was not m.S. I finally gave up with my family doctor and local neurologists and went to mayo clinic where they did numerous tests. I had a hole in my heart-called a pfo(patent foramen ovale). It is a birth defect and the older I got the more problems I had from it. They did say the episodes I had were actually tia's ( mini strokes ) I had surgery the day after the hole was discovered thru a heart cath procedure. Two years ago the only way to correct the problem was open heart surgery. The day after my surgery my three fingers that have been numb for 3 years now have all the feeling back, I have all my strength back in my left hand and I cannot wait for my 30 days to pass when my restrictions will be lifted so I can exercise and finally start living again. My doctor feels confident that my episodes (seizures) will end and hopefully this nightmare is over. When I look back at every time I went to the emergency room and followed up with specialists all to be told we dont' know, how that made me feel all to find out that I am so very thankful that I hung in there and followed thru and kept pushing for an answer. I did learn that if I had flown on an airplane I would have had a major stroke or would have died and I had reservations at xmas time. Somebody was watching out for me!!!

Hi.. I am new but read your file. I too show all signs of ms from tests but spinal tap so docs will not say 100% for liability reasons. Did you find out since then anything regarding that test. Can you have that negative yet still be positive?

I hope your doing well.

My story: (please someone help me~i'm too young and have 3 babies to watch grow)

i also have been trying to find out what is wrong with me. Btw, my name is jennifer and i'm 21. At 15 I started getting numb in my lip and it moved to my arm (on my left side) so I went to the hospital to see what was wrong (if it could possibly be a stroke). Well when all the tests were done they found nothing, and the feeling had went away. Well I got these symptoms on and off once in a while, but I figured they would say it was nothing so I did not pay attention to them. Until may of last year, when I felt like I was going to pass out. I went to 1 hospital, they did a ct-scan checked my vitals and said everything was fine. The released me, even though I was still a bit dizzy. The next day, things got worse, so I went to another hospital. When I got there they admitted me because my white cells were high. I spent 6 days there a bit numb and disoriented, with no luck. I had 2 mris, 2 eeg's and a ct-scan, nothing. I was released when I refused to have them probe my shunt or do a spinal tap (they had told me I may have ms, and this was the only way for them to find out). I get the numbness all the time now, and it has actually been happening for about a week now (same as you~up in my left eye with some blurred vision) but also down the left side of my face. I hope maybe we can come to a conclusion. I'm tired of living like this! However, I do not experience pain.

Jennifer