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Looking For Support For My Wife

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lupus-husband

New User, Becoming EHEALTHy
Joined: 06 Sep 2004
Posts: 1
Location: Safety Harbor, Florida USA
Looking For Support For My Wife
Posted: 09-06-04 14:23pm

Hi one and all.

My wife of 20 years was diagnosed with sle about 10 years ago. It has progressed over time. This year she was hit with kidney damage (diffuse membranous glomerulonephritis). A recent test now shows antiphospholipid antibody syndrome.

While I have tried to do everything I can for her there are some things I cannot do - namely relate with what she is going through.

I am looking for a forum or discussion group for her to join and perhaps talk to other people going through similar problems.

Please let me know what you think of this board and how helpful it has been for you.

Thanks in advance for any input.

Btw - my wife has never used a bboard so any comments on ease of operation would also be appretiated.

Thanks again
lupus-husband
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clarebear

Experienced User , Rather EHEALTHy
Joined: 29 Sep 2003
Posts: 120
Location: Can't keep up! Florida now!
Welcome Sir
Posted: 09-06-04 16:50pm

Welcome to the lupus board. I am not speaking for everyone, but it seems to me that we accept all kinds of thoughts and comments (except the solicited kind from bogus "cure-alls") from users. Nothing is a bad subject.

You may want to see if your local area has a lupus support group that you can both attend, if she is able to move about. Most support groups accept patients and loved ones as well as friends, doctors, etc.

We all have open ears. Many of us have husbands who are living second-hand to what we are experiencing, mine included. It takes time for some to realize and understand the depth of the situation but once it does sink in it's like an epiphany.

You should check out www.Lupus.Org and see if there is a lupus support group/chapter near you.

Clarebear
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LadyBrannon

Active User, Really EHEALTHy
Joined: 17 Jul 2003
Posts: 506
Location: TX

Posted: 09-09-04 21:05pm

Welcome!

I think clarebear said it very well! There are a lot of us here: we come from different places, are different ages, but we all share that common understanding of having lupus.

We also encourage *you* to stick around!

Again, welcome. If you or your wife has any user questions or any type of question really, pm (private message) me, my username is ladybrannon and i'll be glad to help!

Hugs,
ladybrannon
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