Hi! I have had several of the symptoms
associated to lupus and my nephrologists
have been trying to pin point what I have
for over five years. I am 28 years old
and have 2 children 7 and 5. My husband
and I both would like to have another
child. The only thing I have gotten from
doctors is "so are 2 kids enough for you?"
I have asked several times how damaging
it would be to have a third and can not
get an answer. Have any of you been
pregnant after you found that you had
lupus. If yes what could I expect in the
event I were to get pregnant? Thank you
all for you feed back.
There are a number of things that can
happen when you get pregnant and you have
lupus.
Of course, I have **never** been pregnant,
but I do have lupus.
One: you will have a great pregnancy
without any difficulties.
Two: you will have a great pregnancy, and
after child-birth you will have serious
flares.
Three: you will have an awful pregnancy
(complete with flares) and the birth and
afterwards will be perfectly fine.
Four: if you have lupus -- you ***do***
risk passing the disease along to your
child.
It has not been proven that lupus is
hereditary. However, I do know of a few
individuals who have passed it on to their
children.
I have also heard people with situations
like #1. There were also people who had
situations almost like #1 but ended up
having to have emergency kidney surgery
and spent the rest of their time hunched
over, then had the baby, then quit
working.
The best thing for you to do is ask a
rheumatologist. Which doctors keep
asking you if you are having another
child? Are they savvy in the knowledge
of lupus? If they're not -- and some
doctors are not -- then you should ask the
right people.
You can also check out www.Lupus.Org. It
will give you several other links to check
out.
Clarebear
|
llwink1
New User, Becoming EHEALTHy
Joined: 10 Sep 2004 Posts: 4 Location: Tennessee
Posted: 09-10-04 19:35pm
I have had 2 sets of biopsies neither of
which can pinpoint what I have. I am not
having the joint problem or the rashes.
I have kidney problems, accompinied by
high bp and a great deal of swelling.
The doctors that I am seeing are
nephrologists. I have gone through the
steroid and chemo round once already.
How many neph. Have you seen? Do you
have a team or just one? Have they
suggested seeing a rheumatologist?
Clarebear
|
LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 09-11-04 10:38am
Welcome!
I'd just add one thing: have you seen a
Dr. That specializes in high-risk
pregnancies?
Hugs,
ladybrannon
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llwink1
New User, Becoming EHEALTHy
Joined: 10 Sep 2004 Posts: 4 Location: Tennessee
Posted: 09-11-04 10:44am
I am on my second team. I was being seen
at the cleveland clinic first and now am
at vanderbilt. My biopsies have been all
over this country. So far I have one
stran that is off from having lupus
nephritis. Which is what prompted them
to treat me as if I had lupus. With the
initial two doses of cytoxin I responded
really well. After that I leveled out
and the regressed. I have another apt.
At the end of the month to go back. I
will approach this again then. They have
no reason to send me to a rhuematologist,
I don't suffer the joint problems. All
of my symptons are showing in kidney
related ways. Recently I have been very
fatigued and am having the numbness of my
limbs, but the numbness is directly
related to the emense swelling. In all
that they have said what I have is the not
hereditary, it is the result of something
I was exposed to somewhere in my life.
It is difficult to find support when they
don't know what you have. I feel like it
is lupus or a new mutation mf it. I seen
to suffer many of the same thingq that
people with lupus do. It is bafflng
though because in all the bloodwork I test
negative for it and in the two sets of
renal biopsies they have not been able to
match me to anything.
I appreciate your intrest and willingness
to reach out....Alot of other forums that
are similar to this seem to almost be clic
like.....If I don't have lupus I don't
belong in there forum. It is nice to
find people willing to swap info.
Thank you!
Laura
|
bigmaksmom
New User, Becoming EHEALTHy
Joined: 12 Aug 2004 Posts: 47 Location: ,
Posted: 09-23-04 15:06pm
My mother has lupas and was pregnant twice
when I was younger both times she had
tubal pregnancies. They finaly had to
take them out or something to that affect
because she couldnt have anymore children,
she was so devastated!
Sorry I dont know how to answer your
questions just wanted to share!
Good luck, I will pray for you!
Shannon
|
earnhardt3jen
New User, Becoming EHEALTHy
Joined: 27 Oct 2004 Posts: 3 Location: Buckeye, Arizona
Posted: 10-27-04 01:08am
I had 2 beautiful children despite having
lupus. My ob/gyn just made sure that she
worked with my lupus dr on my treatment,
treated me as a "high risk", keeping good
tabs on me. I just made sure that I
listened to my body, when I was overdoing
it, my body told me.
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