my son has this week suffered his lung
collapsing for the third time in 2 years.
He is in hospital with a chest drain and
will be discharged tomorrow to convalesce
at home for the next 2 weeks.
The hospital recommend that he has an
operation on his lung which will:-
1. Staple and seal around the puncture
points on the lung.
2. Remove the membrane from between the
lung and the chest cavity to allow the
lung to sick to the chest cavity. This
will stop the lung collapsing again should
a further puncture occur.
I should like to communicate with anyone
who has had this operation or knows anyone
who has to discuss whether there are any
after effects or problems with this type
of operation.
Brian sykes
|
ericamarie
New User, Becoming EHEALTHy
Joined: 21 Jul 2005 Posts: 2 Location: Fort Wayne, IN
Spontaneous Pneumothorax Posted: 07-21-05 23:52pm
Brian, I just found this website today. I
am 24 years old and my lung has collapsed
2 times. The first time I was running and
it just took me down. The second time I
coughed at work and out went my air. I
hope you have thought about the surgery.
I decided in february when my lung
collapsed the 2nd time to have the
surgery. It hurts bad, but it is worth
it. I have not had any problems since and
I feel great. I don't know if your son
might have a cyst on his lung, but that is
what I had on mine. When they did the
surgery they cut my cyst off and then kind
of scrapped my lung to rough it up so it
would heal to my chest cavity. When I
woke up from surgery I was in discomfort,
and had two large chest tubes coming out
my side to drain any fluids. But my dr
gave me an epidoral to help with the pain.
Also when the chest tubes are removed
they do not hurt at all, it's just a
little uncomfortable. The worst thing I
think about the surgery was I had a nerve
cut and that has left me numb in a little
area, but my dr says that will heal on
it's own. Please feel free to contact me
if you would like more of my story. I
hope this response reaches you in good
time!
|
afz
New User, Becoming EHEALTHy
Joined: 25 Jul 2005 Posts: 1 Location: birmingham
Side Effects of Pneumothrorax? Posted: 07-25-05 14:04pm
Hi its been a year since my lung
collapsed, I went through surgery and it
was treated but recently since april I
sumtyms get difficulty in breathing?
Sumtimes currently its happening again?
Do you know if it is in connection with my
lung collapsing? Has it been said they
will be side effects because I was not
told.
|
ericamarie
New User, Becoming EHEALTHy
Joined: 21 Jul 2005 Posts: 2 Location: Fort Wayne, IN
Posted: 07-28-05 11:16am
I'm not sure. I wasn't made aware of any
side effects after surgery. Have you
spoke with your doctor? I know from
experience that I get unconfortable
sleeping on the side that I had the
surgery on. It's a weird discornfort from
my lung being stuck to my chest cavity.
But so far that is the only problem I have
had other than my nerver being cut during
surgery.
If you find anything out please let me
know!
|
Casey777
New User, Becoming EHEALTHy
Joined: 06 Oct 2005 Posts: 1 Location: Caledonia Ontario
Post Surgery After Effects From Spontaneous Pneumthorax Posted: 10-06-05 21:14pm
Hi...I had more than 30 collapses over
both lungs from age 14 to 19, when I had
the "new" surgery of the day (june
1980)....
Today I am 44...Even with more than 50
titaneum staples in both lungs...I am in
daily pain...And the frustration is that
because the staples are preventing the
lungs from collapsing the way they did 20
years ago...I now get air leaks causing
extreme pain under my collarbone and up my
neck accompanied by constant coughing of
yellow mucus and pain up my neck and
sometimes down my arm...
Its very frustrating because, 20 years
ago, prior to the surgeries, a
pneumothorax on either side, or both at
the same time was easily seen on
conventional x-ray...
Now...Its almost impossible to see it and
yet the pain is so debilitating that it
effects my ability to run my
companies...
Doctors are baffled and have even
suggested i'm "faking" it....
Tonight i've been in so much pain that I
went to hospital for an xray where I was
told to inhale and hold my breath, while
xray was taken...I checked the xray myself
and admit I couldn't see the pneumo
despite the exact symptoms...
I then went through my post operative
charts and did some recent and up to date
research and found that smaller pneumo's
experienced by patients with a previous
history and with the titaneum staples have
a better chance of catching the small air
leaks if they exhale during xray rather
than inhale and hold...
My reply to the person asking about after
effects ... I can only say that I hope to
god for your sake especially the exception
and not the rule...
The extreme pain escpecially during
menses, (my pneumo's are catamenial), is
so dibilitating I cannot work and doctors
don't give me adequate pain relief, at
least for the few days prior and post my
menstrual period.
I would give anything if I could find a
doctor to just go back in and explore what
new blebs there are and fix it....But I
can't...
This disease is like a curse....And the
depression from it is completely
unnecessary if only I could find a
specialist that would help me manage the
pain while we find a solution to either
eliminate the problem or at least go back
in and see if anything further can be
done...
But instead...I'm treated like a drug
addict, because I ask for percocet, or
demorral, when the fact is I hate taking
anything but I have to work like the rest
of the world... And I don't mind being
closely monitored while a more permanent
solution is being sought...
I suffer from this ordeal every day of
every year for the past 30 years...
Again ... I pray to god....I'm the
exception and not the rule...But if I can
help anyone out there or if anyone can
help me .... Please contact me...
I would love to correspond with other
pneumothorax patients.
Casey.....In extreme physical pain,
breathless, and tormented by doctors that
write me off....
|
Lilypad
Extremely EHEALTHy
Joined: 10 Oct 2005 Posts: 1043 Location: Ohio, USA
Posted: 10-28-05 09:00am
This happened to my best friend..She is
only 25!!
|
BrittanyQpbg
New User, Becoming EHEALTHy
Joined: 25 Jan 2006 Posts: 1 Location: Florida
Hello Posted: 01-25-06 17:37pm
My name is brittany quinlan. I am 19
years old. I was 16 years old when I had
my first spontaneous pneumothorax. I'm
still suffering from them. I had surgery
on my left lung when I was 16 for multiple
collapses. It was a real painful ordeal
for me, and still is. I could not take
any pain killers because the dosage that
they gave me in the hospital was too much.
I would puke up everything in my system
(i'm only 100 lbs. Very tiny person).
What hurt most was that the doctors never
believed me. It takes a lot. You have
to really push to get these guys to
believe you. I had to visit the hospital
7 times before any doctor would take me
seriously. They thought because they
couldn't see anything on the x-ray, that I
was fine.
The procedure was alright. From time to
time, I still have pains in my left lung,
even after the surgery. The top portion
of my lung was stapled together and was
scraped up to heal to the chest cavity.
For the most part it has been good, but I
still get pains... And because they've
done the surgery, they think I shouldn't
have pain... And that I am lying.
Anyone suffering from these, realize that
it is an uphill battle most of the time.
Yes, some doctors will notice it. But
without a history, like myself, it takes a
lot of time to convince them you're not
crazy.
|
Lilypad
Extremely EHEALTHy
Joined: 10 Oct 2005 Posts: 1043 Location: Ohio, USA
Posted: 01-26-06 08:31am
That is truly awful.
|
rossoe
New User, Becoming EHEALTHy
Joined: 16 Feb 2006 Posts: 1
I Have Had Loads of Collapsed Lung Episodes Posted: 02-17-06 13:42pm
And finally I got round to starting a
website dedicated to help those with this
condition
www.Blebinfo.Co.Uk
|
timmyb
New User, Becoming EHEALTHy
Joined: 06 Dec 2007 Posts: 1
Spontaneous Pneumothorax Posted: 12-06-07 11:06am
hi my name is tim im 24 year old male from
the west midlands i have had 3 Spontaneous
Pneumothorax in the past 6 months in
january i have the operation to sort this
out im really scared what im gona be
feeling when i wake up from this he said
he is going to remove some lung then
staple the lung shave my chest wall then
stick the lung to it can some 1 help me on
this 1 my email is ear
timbad301'hotmail.com
|
marcmisael
New User, Becoming EHEALTHy
Joined: 29 Jan 2008 Posts: 1
hi! Posted: 01-29-08 23:53pm
im marc from Philippines...i also have
spontaneous pneumothorax last
year,december 16 during my bday...it was
really scary and i thought of dying during
the treatment of tetracycline....until now
im experiencing difficulty in breathing.i
missed a lot how i lived my life when im
still healthy....as if that breathing very
deep for me is too hard to make...and with
that im quite upset...could someone advise
me what to do so that i will be back to
normal...?thanks a lot...more power....!
BTW,i can't able to sing opera songs now
since i'm a music student because i easily
get tired when i exert too much air from
singing...however,is it okay for me to
sing even if i have this disease?
thanks!
God bless....
|
mattylang
New User, Becoming EHEALTHy
Joined: 06 Jun 2008 Posts: 2
Posted: 06-06-08 22:59pm
Hey I'm Matt from Canada,
I had my first collapsed lung when I was
17 and had to have the tube in my lung for
that... it then happened again about a
month ago when I was 18 and i'm praying
I'll get better. Some of your stories are
very sad and I'll be praying for you!
Also does anybody know a website that has
any current research on this condition? I
believe that protein powder shakes may
have been a contributing factor to my lung
collapses.
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This page was last updated on June 11, 2008
