My son is suffering from Epilepsy Posted: 07-22-03 22:46pm
My 10 yr old son is suffering from Absence
Seizure for the past yr and a half. The
medications he takes is as follows.
depakote Sprinkles, zonergran, diamox and
lamictal. He takes these meds twice and
day and it's not helping him.
His spelling and reading has been affected
by this and he's not retaining anything he
learns in school. He's been dropping
weight and he's always so tired. Not being
able to play with his peers.
If there's anyone out there who has some
advice please feel free to let me know.
It really feels bad being a mother not
being able to help your son when he goes
through this which is everyday.
He had steroids giving to him through iv
and that didn't help either. What can we
do next???
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plambert
New User, Becoming EHEALTHy
Joined: 23 Jul 2003 Posts: 7 Location: Dallas, TX
Your Son Posted: 07-23-03 16:38pm
Your son is in my prayers. From what I've
learned there's not a lot we can do. My
son was 19 before getting hit with
Epileptic seizures. Have you heard about
the high Fat Ketogenic Diet? On Dateline
last night I found out that 50 to 70% of
kids that go on this high fat diet don't
have seizures and eventually grow out of
it. Hope your son grows out of it.
|
.
New User, Becoming EHEALTHy
Joined: 25 Jul 2003 Posts: 3 Location: utah
Re: My son is suffering from Epilepsy Posted: 07-25-03 18:50pm
Tish
wrote:
My 10 yr old son is
suffering from Absence Seizure for the
past yr and a half. The medications he
takes is as follows. depakote Sprinkles,
zonergran, diamox and lamictal. He takes
these meds twice and day and it's not
helping him.
His spelling and reading has been affected
by this and he's not retaining anything he
learns in school. He's been dropping
weight and he's always so tired. Not being
able to play with his peers.
If there's anyone out there who has some
advice please feel free to let me know.
It really feels bad being a mother not
being able to help your son when he goes
through this which is everyday.
He had steroids giving to him through iv
and that didn't help either. What can we
do next???
|
.
New User, Becoming EHEALTHy
Joined: 25 Jul 2003 Posts: 3 Location: utah
Posted: 07-25-03 19:07pm
I've had siezures since I was 8. I am now
30. There are always times when it is
tough. (Peers, family, misunderstandings,
etc.) However, for me, I have learned a
few things that affect my pet. mal and
grand mal siezures: 1. TV/Computer
frequency. ( only on certain ones,
usually the older ones) 2. Aspartame and
like products. 3. Food that I eat. I
usually do better when I have a balance on
fat and vegetables. I don't do well with
sugar sweets. 3. But probably one of the
biggest factors for me it getting my
sleep. If I don't get enough sleep most
every night. I will eventually have a
siezure.
A few things that may help some of the
family members/friends of loved ones with
siezures: It's not always that bad. For
me it feels like I'm taking a nap. It
looks worse to those around me. I might
loose my memory at times, or not have very
much energy, but remember it doesn't mean
that I'm dumb. I have a rather high IQ.
Many people that I know, with epilepsy, do
to.
I found ways to deal with it by finding a
job that I can be self employed. Worked
out situations so I always had someone to
take me around to run errands etc. Also
try getting in touch with your local rehab
center some times they can help with
financial aid and employment.
P.S. For me, when I was going into and
during parts of the siezures, I could
hear extremely well, but I couldn't always
respond. One thing that helped me to pull
out of a siezure was when people around me
started asking me questions. It seemed to
help me get my train of thought back on
track.
Good Luck.
I hope this can help, I'm not an expert,
but I know what works for me.
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tammyseyler
New User, Becoming EHEALTHy
Joined: 29 Jul 2003 Posts: 11 Location: texas
Posted: 07-29-03 01:22am
That is awful to hear.The ketogenic diet
has had such great results.I was just
checking on them and they sound great.My
prayers are with you and I hope that you
find relief for your child soon.Here are
some of the I have checked into www.stanford.edu/group/ket
odiet/. best wishes for a heathy
andhappy child, Tammy
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Poohbear
New User, Becoming EHEALTHy
Joined: 29 Jul 2003 Posts: 3 Location: London Ontario
??? Posted: 07-29-03 17:07pm
Does he get migraines?
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strawberita
New User, Becoming EHEALTHy
Joined: 02 Aug 2003 Posts: 1 Location: Union City, NJ
Re:My Son is suffering from Epilepsy Posted: 08-03-03 13:05pm
Tish,
My Daughter has had Epilepsy since she was
six. She is now thirty and
has never been controlled. However, it
sounds like your son may be
overmedicated. He shouldn't be so tired
all the time. I noticed from
your post that you are in Ct. Try calling
Dr. Orrin Devinsky at NYU
Medical Center in NYC. The team is
wonderful-especially Dr. Blanca
Vasquez. They only take cases of people
who are not being controlled-
and they are really very caring and kind.
They offer the lastest technology and many
options.
I hope all goes well with your son-
Linda
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Patrick B. Asay
Experienced User , Rather EHEALTHy
Joined: 27 Jul 2003 Posts: 138 Location: Pocatello, ID
my sympathy is with you Posted: 08-03-03 22:07pm
That is a very tough thing to handle. My
prayers are with you also, Tish.
Patrick
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asmita
New User, Becoming EHEALTHy
Joined: 16 Aug 2003 Posts: 3
Have Faith Posted: 08-16-03 08:56am
Dear tish,
well I really understand what u are going
thru.......There is something I would
really like you to know.......There is an
ngo organization called art of
living....It is mainly a process leading a
person to knowing oneself it takes you
deep within yourself....It is a practise
of the mind just sone simple breathing
exercises which have helped and cured
thousands of people worldwide of several
diseases and stress relase......It is
mainly yoga and it boosts one's
energy...Epilepsy is all about uneven
brain waves I am myself an epiliptic and
all we need to do is keep our brain in the
most stable state and that is what this
teaches us....Tish they have this special
courses for children and these courses are
hapening in 131 countries all over the
world.......I really think this wud help
ur kid....Give him immunity to take the
medications and make him active too as
these simple breathing exercises jes boost
ones energy levels.....I do it myself and
I have noticed the great change in
myself...I take a very high doze of
tegretol.....Their website is www.Artofliving.Org
check it out.......And u are always in my
prayers...Jes have faith in "him" he has
his own ways of doing things......Take
care :d
