Epilepsy And Loving It! Are You Like Me? Posted: 09-30-04 18:33pm
Ok maybe i'm a little exaggerating with
the "loving it" i'll explain myself.
I'm pretty sure i've had epilepsy since I
was 14, but my neurologist said it
probably started even earlier. I've had
seizures ranging from petit mal tonic,
simple partial and grand mal. During a
day I probably go through about 40 petit
mal seizures. I can't drive, and I don't
take any medication, although I was
offered epilim. Why? Well the simple
answer is in some seizures I hallucinate,
not badly. I don't see things that aren't
there (most of the time). The things I
see are all in their correct places, they
merely look like the whole area has moved
across the globe. Confused? Bare in mind
I have a rare case of epilepsy.
You know when your dreaming and you might
be at your old high school? You can
obviously identify it as your high school
but there is something not so normal about
it? Well this is what I see when i'm
conscious. It will happen at least twice
a week without fail. And I love it. If I
lost this type of seizure I wouldn't be
myself. As for the tonic and grad mal
well they don't seem that serious. I've
only had one grad mal and I was in the
shower and I managed to pull myself out of
the seizure because my brain started
gaining consciousness before I stopped
shaking. I wasn't hurt surprisingly, the
only down side is I don't know how long it
went for.
I have never had a completely unconscious
seizure apart from that. Most other
seizures involve a dream-like state which
I find quite pleasing. So i'm not willing
to change unless it gets worse.
What I wanted to know is does anyone else
have seizures like mine. The neurologist
said it's very very rare.
I only got diagnosed this year, I wish
they found out sooner coz I failed
high-school
my causes are unknown but during my
research I found out that epilepsy can be
linked with injuries as a child (a fell
head first down 3 meters onto rock), and
kidney problems (i have an abnormal
kidney).
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello There Posted: 10-02-04 11:43am
I think I know what you mean when you say
dream like seizures.
Ive been diagnosed with this since 11
months ago. I am now 22 yrs old. And I
am told that I have this from an accident
as a child when I cracked my head open on
a pole.
The types of seizures that I have are
grand mal, mostly. . . I dont have
petit mal seizures much anymore. But I
dont know. I have a few types of
different ones. But of late. When its
time to sleep I will feel strange. Laying
in my bed in the dark I will shut my eyes
and I will see a shape. I have always had
that feeling. You know... Its like you
said with yours daydream like state. But
the only thing is that, then it turns
nasty. And I feel like I am twisting and
turning, but I am not moving. Then I feel
like I dont have any arms or legs and I
just have a head. I know this sounds
strange.
But I just wanted to know have you ever
been stoned.? I dont smoke pot, but I
tried it when I was younger and well the
nice feeling at the beginning is kinda
like a nice level of that.
Then it feels nasty.
Cheers sam.
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Demore
Experienced User , Rather EHEALTHy
Joined: 30 Sep 2004 Posts: 68 Location: Australia
Posted: 10-03-04 18:21pm
Yes! When I go to sleep I ca't stop my
eyes from fluttering under my eyelids, and
I see stuff and I shake a bit. My friend
said it's somthing to do with relaxing
muscles to fast. When you mentioned being
only a head I know what you mean, and it
reminded me of when I was stoned almost
instantly. When i'm stoned I feel fine
for a while then things start to get
messed. I feel as if i'm traveling at
millions of kilometers an hour and the
skin is ripping off my bones due to the
velocity. Other things are like feeling
as if i'm just a brain and spinal column.
Large horn like steel shapes growing
around my skull in different patterns.
Seing 5 metres as a 1000km lanscape. I
don't smoke anymore. Unless i've been
drinking in which case I don't have a
problem.
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 10-03-04 20:53pm
I know exactly what you mean there.
I would get the worst feeling when I was
stoned. After the initial first moment.
I exactly know about the head and spine
thingy. I know this is going to sound
strange. But sometimes I feel like I am
un born when that happens. I guess its
because of the lack of being able to move
when I am seizing, and the feeling of the
dark.
I drank alcohol for the first time in 10
months 3 days ago and last night I had a
grand mall that went for over 15 minutes.
I was so scared. I woke myself from my
sleep, I must have had a little one while
I was sleeping and I woke up with tears, I
was making a weird noice like a cry, and
my flat mate ran out to me and sat by me
she said. Then I had the huge one.
Just when I feel like I am getting better
I take 100 stepps back.
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Demore
Experienced User , Rather EHEALTHy
Joined: 30 Sep 2004 Posts: 68 Location: Australia
Posted: 10-06-04 17:10pm
I would be pretty angry if somthig like
that happened to me, I really want to
start driving. I've never had the chance
to get my learners licence. I want to
have some kind of independance.
I wouldn't have a clue if i've ever had a
seziure in my sleep. I'm pretty sure i've
only had one grand mal seziure though.
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nadiasmom28
New User, Becoming EHEALTHy
Joined: 26 Oct 2004 Posts: 1
Demore Response Posted: 10-26-04 01:05am
I am 23 and I have had epilepsy sicne I
was 14 and I have grand mals and before I
have them I see things like I could see
myself typing this or see something that
happen when I was 12 it scares the living
hell out of me because I know that when it
happens that I am gonna have big bad one
and that I wont be able to eat and talk
for 2 days so I guess that if this happens
to you the next time it happens to u enjoy
for me too because its hell for me I am
glad that u dont go through it good luck
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Demore
Experienced User , Rather EHEALTHy
Joined: 30 Sep 2004 Posts: 68 Location: Australia
Posted: 10-26-04 01:26am
I didn't mean to offend those who have
more serious attacks than me. But you
never know I may end up that way. For now
i'll be happy with what i've got because
i've become acoustomed to it and I don't
want to change.
