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plambert
New User, Becoming EHEALTHy
Joined: 23 Jul 2003
Posts: 7
Location: Dallas, TX
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Grand Mal Seizures
Posted: 07-23-03 16:31pm
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My son had his first seizure when he was
19, I thought he was dying.  He's
20 now and has a severe seizure every
month or so. He's too old to be insured
so we can't afford a doctors help. He was
diagnosed with "Right Temporal Interictal
Epileptogenic". He feels his life is
over. With every seizure he looses more
of his memory and he can't keep a job.
I'm so scared for him. Wish there was
help or something I could do. He takes
Dilantin, but he's had 2 seizures on the
medication. I feel very helpless when
tells me he has severe headaches for 3
days after having a seizure. What can a
Mother do?
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sher
New User, Becoming EHEALTHy
Joined: 24 Jul 2003
Posts: 1
Location: Edmonton
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plambert
Posted: 07-24-03 03:27am
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have you taked with his doctor about his
med's. my step daughter has galmal
seizer's every mouth.and is he on a really
good diet.to let all parent's know that
paint thinner and oil paint's are no good
for people with serizer's . good bless all
people with any sickness they may have
 
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dmom1
New User, Becoming EHEALTHy
Joined: 30 Jul 2003
Posts: 3
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Re: plambert
Posted: 07-30-03 18:50pm
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wrote: | | have you taked with his
doctor about his med's. my step daughter
has galmal seizer's every mouth.and is he
on a really good diet.to let all parent's
know that paint thinner and oil paint's
are no good for people with serizer's .
good bless all people with any sickness
they may have |
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dmom1
New User, Becoming EHEALTHy
Joined: 30 Jul 2003
Posts: 3
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Posted: 07-30-03 18:53pm
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Okay I'm sorry I'm lost I was trying to
reply and quoted instead.
I would suggest since he is over 18 that
you checkinto SSI, since
he can't hold a job. I would also call
Vocational REhabilation and
see how to go about getting help with
them.
I would also request the doctor help, get
the meds. There are programs
for this part.
dmom
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plambert
New User, Becoming EHEALTHy
Joined: 23 Jul 2003
Posts: 7
Location: Dallas, TX
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catwoman95973
New User, Becoming EHEALTHy
Joined: 04 Aug 2003
Posts: 1
Location: chico, california
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epilepsy
Posted: 08-04-03 15:28pm
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Hi I have had epilepsy since I was 14
years of age. The doctor said it was due
to a head injury.I really never have had
anybody to chat with about it. I never
know what people are going to think of me
if I tell them I have seizures. It will be
very nice to chat with someone who
understands. Thank You
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plambert
New User, Becoming EHEALTHy
Joined: 23 Jul 2003
Posts: 7
Location: Dallas, TX
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Seizures
Posted: 08-04-03 15:40pm
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Hey Catwoman, Totally understand, my son
has them, have known several people who
have them too. It's pretty common now
days. My son never had a head injury,
doctors don't have a clue why he suddenly
started having them. How often do you
have seizures? Do you drive? My son
refuses to stop driving, it scares me to
death. Don't feel alone, lots of people
understand and know how to deal with them.
I'm surprized by the amount of people
that live with it. Stay strong, maybe it
will pass.
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Randi03
New User, Becoming EHEALTHy
Joined: 07 Aug 2003
Posts: 7
Location: clovis
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Posted: 08-07-03 00:41am
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I am 18 years of age and I was dignosed
with epilepsy when I was 15 years old. My
first seizure was at school in the
classroom I had no clue what was going on.
To this day I take medication for it but
I have been looking epilepsy up on the
internet and it was telling me I was
suppose to be put into a class where I
would be able to understand stuff my brain
doesnt work as fast as everyone elses and
yes it is true that we can lose memory and
our head hurts like no other after were
done with the seizures. We dont know what
less to do we cant drive we cant work we
basiclly cant do anything.
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plambert
New User, Becoming EHEALTHy
Joined: 23 Jul 2003
Posts: 7
Location: Dallas, TX
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Randi03
Posted: 08-07-03 08:38am
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Was your epilepsy caused from a head
injury? Or did they just start happening?
My son is in total denial, it worries
me. He thinks there just going to go
away some day. How often do you have
sz's? Are they grand mal? It kinda
sounds like you go through what my son
goes through. I understand that if a
person goes 2 years without one they may
not have any more, have you heard that?
Wish you the best!!! 
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Randi03
New User, Becoming EHEALTHy
Joined: 07 Aug 2003
Posts: 7
Location: clovis
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Plambert
Posted: 08-08-03 01:49am
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Yes I have heard that
i get them when ever I dont take my
medication or when im excited
my epilepsy was not caused by a head
injury I was sitting in class one day on a
laptop and all of a sudden I went into a
grand mal seziure that is all I get, and
yes I have heard of you going 2 years and
not having anymore I also heard that you
can grow out of them its very werid.
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Randi03
New User, Becoming EHEALTHy
Joined: 07 Aug 2003
Posts: 7
Location: clovis
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Posted: 08-08-03 01:51am
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Plambert if you would like to talk my im
name is randi93727
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jbh
New User, Becoming EHEALTHy
Joined: 24 Aug 2003
Posts: 3
Location: Arkansas
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Grand Mal And Depakoate
Posted: 08-24-03 23:19pm
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:p I have had grand mals since I was 11
and I will be 36 in december.
I live a normal life, I haven't had a
seizure in about 4 years. I own my own
business, and I live alone, I drive and I
tried all the medicens but depakoate
worked for me. I take it every day and I
do not worry.
I get my medicen and bloodwork free, your
local health clinic has a program called
the patient assist program, your family
doctor can refer you and the doctor will
only charge you or your son $10.00 for a
medical visit and the medicen is free and
so is bloodwork. I go every three months
to pick up my medicen.
Good luck
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Randi03
New User, Becoming EHEALTHy
Joined: 07 Aug 2003
Posts: 7
Location: clovis
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Posted: 08-25-03 02:11am
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That is really cool that you havent had
one in 4 years
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jbh
New User, Becoming EHEALTHy
Joined: 24 Aug 2003
Posts: 3
Location: Arkansas
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Right Medication
Posted: 08-25-03 11:31am
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Get on the right medication and you will
be able to put the problem behind you.
You may have to try every different
medication and it may take two
or three years of trial and error but you
will find it and the longer you can go
without having a seizure the less likely
you are to have them all together. Try to
eat right, get plenty of sleep, take your
medication every single time you are
supposed to, just get in the habbit and it
won't seem like such a chore. Good luck
and I will pray for you.
Brent
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003
Posts: 191
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Hello
Posted: 08-25-03 15:40pm
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 my name is sharon .
I also have s'z. It runs in my family,
on my fathers side. My sz' was discovered
when I became pregnant with my first
child. I know now I had them since birth.
My mother told me I would sz when I was a
baby, no one said it was epilepsy. I
remember tuning out a lot. I would loose
time. I think my grandmother figured it
out but couldn't get my dad to do
anything. I had a lot of trouble in
school. I felt lonely because I would
loose time and people thought I wasn't
paying attention. I had a neighbor in
calf. Take me to the doctor because she
found me one day starring at the t.V. But
couldn't get me to respond. She has ep.
So she reconized what was happening to
me.I lost half a day. They put me on meds
for three years. When I had my second
child they told me I wouldn't need my meds
any more. I was find for twenty years-
then boom! Their back. I was under a lot
of stress due to an illness of my
husbands. I had two major sz's two months
a part. Plus I was diagnosed with lupus
and now I will be on meds for the rest of
my life. They tested me to see if my sz's
was brought on by my lupus or if I had
epilepsy from birth. It was from birth.
I don't believe that if you don't have a
sz for two years tht you won't have any
more. God bless you!
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sue1972
New User, Becoming EHEALTHy
Joined: 27 Aug 2003
Posts: 1
Location: indiana
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Hi My Name Is Angela
Posted: 08-27-03 08:34am
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I'm 31 when I was young I hit my head at
school really bad and then another time I
was in a bike acciedenti've taken i'll
kinda meds but don't seem to work I can't
drive or work I get disability I have 2
kids my son has autism he lives with my
parents my daughter her health is fine
sometimes I just want to not wake up
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003
Posts: 191
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Angela
Posted: 08-27-03 22:32pm
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Hi, please don't give up! There are a lot
of people out there who understand what
you are going through. Whenever you are
down just take it out on those keys and
let it all out! Thats what this is for.
We all have our bad days and we all have
our bad!!!!! Days. I'm not telling you
that its not rough because it is!
Sometimes hearing about other peoples
problems help us to deal with ours. I
know it sure helps me.
I have epilepey-lupus-ashma-carpul
tunnel- hernia -collitis- aback-knee
problems- hip-going out-eyes are always
cloudy, need surgery- fibormyalgia- and my
feet need surgery- and i'm depressed! Oh
yes I have high blood pressure to boot!
My husband needs a heart and both
lungs replaced. He was on a transplant
list for years,until we found out he would
probably die on the table. They only
wanted to use him for study because what
he has is so rare . No one has lived as
long as he has with this problem. We
found out about his in "89. My problems
escalated in "97 I had to have emergency
surgery in jan.'98. They found cancer.
All the test showed that my abdomem and
colon area was covered. They called in a
cancer doctor to do the surgery, and guess
what? They found no cancer in me at all!
That's what the power of prayer can do!
My husband has good days and bad days .
But he is alive and stable. I also have
my good and bad days, but we have each
other and live one day at a time. I'm
only telling you all this to make you see
that take what life dishes out and turn it
into something positive! Your children
need you in their lives! Don't take that
away from them! God bless you!!!!!
Sharon
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tbellalex
New User, Becoming EHEALTHy
Joined: 27 Aug 2003
Posts: 1
Location: sc
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Head Injuries; Children Vs Adults
Posted: 08-27-03 23:33pm
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This is my first time here...Hi all...Does
anyone, doctor or otherwise, know if a 250
pound man and a 35 pound 4 year old child
can withstand the same force of a head
blow? All things being equal, assume
both are healthy, and the blow is not a
specific intended blow to a specific
nerve, muscle, or otherwise. Thanks to
anyone who may can answer this.
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MayraJ
New User, Becoming EHEALTHy
Joined: 28 Aug 2003
Posts: 1
Location: Paradise
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Epilepsy
Posted: 08-28-03 18:05pm
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Hey!
I could really relate to you, my little
sister has had sz's since she was 11
months old due to a high fever. Her fever
was 105 when she had her first seizure.
She's 11 now. She gets them every time
she misses a med. Dose or with strong
emotions (exitements :d , fear  ,
happiness :d , etc). Doctors really don't
know what her diagnose is, but their
guesses are epilepsy, some characteristics
of autism, and severe developemental
delays. She takes 2 kinds of medicine
every day, she's had 3 different
surgeries, and 1 g-tube.
I have also heard that one can grow out of
this. I have heard several people say
that that the "grow out stage" is 12 to 14
years of age! Me and my mom are looking
forward to these next couple of years :d
. Well I think i've said enough. So
every one who's going throuhg this hang in
there. Your not alone.
God bless every one
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003
Posts: 191
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Epilepsy
Posted: 08-28-03 19:39pm
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Hi myra, with me having epilepsy I was
very concerned when my son started having
sz's as a baby. He would sz when we were
going to fly. My husband was in the navy.
We got orders for guam every time we went
back and forth to the states my son would
sz. I was stranded in san francisco for a
week because he was running a high fever
105. He started szing so the doctor
wouldn't let us fly. That lasted till we
got stationed in hawaii for thee years.
He never had another sz. He is now 27yrs.
Hopefully your brother will grow out of
it. God bless you and your family
sharon
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