Hello! I am kinda new to this...
My daughter spent her sweet 16 in the
hospital with a staph infection on her
cervex that turned to toxic shock
syndrome. It was very unusual and the
doctors had not seen anything like
it...Any way...She was recovering from
that and she came down with what they
thought at the time was mono...And she was
hospitalized again...She was released from
the hospital on 9/3/04. Since then we
have visited the er 7+ more times...Blood
in her urine, chest pains, stomach pains,
blood in her stools.. And everytime they
have told her it is just the mono and have
sent us home....
Yesterday she came to my office and she
had the butterfly rash across her cheeks,
nose and I thought of lupus...When I got
home I opened my mail and a letter was in
my box from our Dr. Telling us that one
of her blood tests...Ana had come back
speckled and we should see a
rheumatologist soon. We happened to have
a doctors appt today with our gp and he
believes that she may have lupus. We can
not get into see anyone for 4 weeks. My
concern is this----i don't believe she
ever had mono...I think it has been lupus
all along...And if that is the case she
has been in a "flare up" for almost 2
months...Kidney and chest pain....And with
no treatment....Should I insist we get in
sooner...Or is it ok to wait...Help!!!....
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el725
New User, Becoming EHEALTHy
Joined: 30 Sep 2003 Posts: 49 Location: Florida
16 Year Old Daughter Posted: 10-26-04 14:11pm
Hi jodi,
welcome. I know how helpless you must
have been feeling all this time watching
your daughter go through all of this. To
answer your question, yes, I think you
should insist on an appt. Right away.
More blood work will have to be done, and
that will take some time to come back, for
the doctor to review it, and for him/her
to make the diagnosis. You may feel a
little sheepish if you're wrong about the
urgency of this, but you'll never forgive
yourself if something else happens in the
meantime, and your assertiveness might
have made the difference. I would have
the gp contact the rhuemy and explain that
this is urgent. If the gp won't do that
for you, you'll have to be firm and
persistent with the rhuemy. Don't panic
and sound irrational, but don't back down
either. I wish you and your daughter the
best, and may she find relief soon.
Lizbet
