Epilepsy Takes the Life of a 3 Year Old

I to would like to send thanks to jen and dan and all they are doing for our children.
We also had the pleasure of having the bear visit us and he came twice with nothing expected in return
i feel it is something anyone with children should experience if they have the chance it did wonders for our family and school.

I am also a member of efa and see the compassion this family has given to others.

Actually ms. Jen I believe you are the one that likes to follow people around from site to site talking bad about everyone to get people to join your site. That is how I met you. You im me one night and told me to watch out and not talk to the people because they are all trouble makers. Well, it actually looks like you are the trouble maker! I will not reveal my identity to you because I do not want to be put down by you all over the internet!! Think of all the people you have made mad. It is not just a coinsident... It is you! Do not have your husband emailing this site asking everyone to leave you alone or logging in under a different name to talk "great" about yourself. Yes, what you and your husband do is wonderful. But for you to type that if people can't afford postage, not to request a visit... Are you saying poor people do not deserve a visit from that bear? What you should say is if you can not afford the return postage they should contact you to make other arrangments... Like you paying for it since you do have people making donations. I'm sorry if this is an ugly email but i'm so tired of going from site to site hearing about how mean you are or that you are bad mouthing people... Just be yourself and people will really enjoy your company...

This will be my last post on this topic...
Seeing you people are so lonely in life and have nothing better to do then start rumors...Have fun

as far as booga he is free to have visit you.
We do not charge for him and will never charge for him.
Anyone that is interested in him feel free to contact me and I would be more than happy to give you 68 references.

Thank to those who have sent pm's or emails concerning this and yes it is funny that kayakmom started this and her friends followed.
Nothing like being led around by a leash

have fun

I just want to say thank you for everything that you have taught my family. We have had the privilege of having boogabear in our life and dreams. Taught us so much and I will never forget what you have given us.. And I am so very proud to say that this is a wonderful cause and I am behind it 100%... Bev,tim,ty,sandra, caskey (texas)

As someone said do a search...
I'll save you the trouble here are some links.

People have the ability to make up there own minds

htt p://www.Geocities.Com/rocking4epilepsy/tri bute_stars.Html


ht tp://www.Zwire.Com/site/news.Cfm?Newsid=52 93366&brd=1839&pag=461&dept_id =110408&rfi=8


http://ww w.Qcwinc.Com/articles/2004/12/01/fitness_n utrition_health/doc41aced475d15b632892150. Prt


http://www .Qctimes.Com/internal.Php?T=search&doc =/2002/03/04/stories/lifestyles/story49.Tx t

http://www.Qcti mes.Com/internal.Php?T=search&doc=/200 2/04/16/stories/local/story94.Txt

http://www.Ep ilepsy.Com/stories/ps_1093455944.Html

http://www.Efky.Org/resources. Asp


all respectable sources now members here can see who starting the trouble

I do not have a clue who kaylakmom is. Sorry, but I do agree with everything she said. And I believe you are the one that leads people around by a leash. And you know what i'm talking about jen. This is not the first site you've had people saying things like this. I know this is 3 that i'm involved in you've had people figure out what type of person you are. Like I said in my earlier reply, you and your husband are doing a wonderful thing but you need to stop talking about people so much and saying you are going to take an ad out in their local ad, come on jen. Act professional! People here really need support not talked about. Just stop doing it! You are really playing with peoples feelings here!!!!

I meet different ppl everyday of my life due to my illness, and I see what I go thru and my neice go thru with her seizures and headaches. But since I met ya'll almost 2 years ago when we lived in grand praire texas you and your family and the memory of danny have reached my heart and the heart of my family and others. Cause I tell dannys story to others and get them involved. I can not even imagine what you: your family; and precious danny even went thru, but because of danny and all the work that you have put forth; dannys memories live on, and I am so very proud to be a part of something that makes a difference...And I will always stand behind,beside; and go thru this with you...I hope boogabear can come visit our new home in the country cause when he went home we lived in the city and I asked when we moved to the country could he come and visit.. I thank you agian.. Love always and many a many prayers.. Beverly

For the final time. No one has said anything against a dead 3 year old.

The people who have posted have said it is the way you are treating people. Threatening to take out ads. Slandering. Calling and iming people to rally around...

It is great so many love you...

So why are you so obsessed to make others hate me. I have no jealousy of you. Why would I want to be a bitter witch who attacks people who still have living sick children.


Sorry for your loss. Tired of being attacked, lied about and seeing people mislead....

This really makes me mad; for ppl to judge other ppl.. I have been a part of this org.. For almost 3 yrs and I have never had a problem with it and let me tell they reach out and touch other ppl's life.. And I am so glad that other ppl are spreading things to ppl to help them learn.... And far as standing up for themselves.. And speaking out... I do it and I am disabled. I refuse to let anyone degrade me or anything im doing.. It is a crying shame.. Jenn is good ppl... And this is maddening that this can not be a good site without ppl fusing like this and a little 3 yr old named danny has shared his life with us.. And his parents have worked very hard.. We should be very proud.. And I will continue to stand behind this family and org...God speed... Beverly *texas*

This is sad! I thought we were here for each other not against each other. Yes, jen is a friend of mind. She was a lot of help and very supportive when we found out my daughter, lindsey-grace, had epilepsy. So if you would like to say she has only her friends post here, then you are darn right... I am her friend and what a great friend she has been to my family. And do not think this is jen because it is not. If you would like to contact me to confirm that, my email address is taylin12@ao l.Com and if you request I will give you my phone number and you will see I am in mississippi. It is time to stop the ugly postings. Everyone understand how you all feel. You have not accomplished anything here. Sorry, but go to another site and start there.

!!Wow!! I can't believe what I just read! I am 16 and I am more mature than you ladies saying these riduculous things to rocking4epilepsy. Booga bear has come to my home twice to visit so far and I had so much fun with him. I also have e. Booga and I went to the elementary school and taught kids about epilepsy awareness. Now, for the money issue. You are asked for no donations, yes, you pay a small amount to send him back which is told to you before you get him. If that is any problem to you, do not order him. For most people out there having booga come to visit their kids and making them happy is worth paying 5 dollars to send him back. If you do not want to pay 5 dollars to send him on to make other kids happy, do not order him! Booga bear does nothing but help kids and carries on the memory of danny wader jr. So ladies, please grow up! And if something like this is bothering you, why stay around and complain about it!?! Dont you have better things to do? Move on! -> -> -> ->

I spoke to jenn last night and I sure have missed her; she is such a wonderful person; something was brought to my attention and I want to share with others...As many of us know that this foundation is raise awareness of epilepsy and how it can take control of our lives, and how it can be rough each and everyday.. We have a treasure because some one cared enough to share their story with us and start a foundation to help others...And how booga bear comes and visit us and shares with us...My kids pics are on booga bears site from texas...But how could somone refuse to return booga bear so that he may educate another family? I dont understand why someone would want to do this... Kaylin*if I spelled ur name wrong im sorry* I agree...Jenn is a good friend and he is a wonderful inspiration along with her husband dan and little one..Who was a wee one when I met jenn and dan...But like I have said I am 100% behind jen and dan all the way.. God bless us all *bev in tx*

5 dollars is nothing to send him back, when booga bear gives us so much.. How he teaches us and how the warm memories he gives us. And shows us how lucky we are.. I say this because my neice has a brain tumor this is her 5th and she has been blessed to live for 14 yrs now. She has mal grand seizures all the time.. Part of her brain has been removed and she is parlazyed particully on her left side.. I cannot even imagine to lose a child...I am very blessed to have children who are healthy except for some learning disaility..Jenn and her family are amazing. And when booga bear comes and visits us,,,we know before he comes that we must send him back and we pay for the shipping..To some that may not be far but when booga bear comes what does he bring.. I still have my key chain when he came...And my pics and stuff. It was a small price for he has taught me and my kids and the children at their schools. I would do it again.. Bev.

Not charging a fee to have the privlege of booga visiting would be having your orginization paying to ship him and have him returned at no fee!!!!! You already said how much you had donated the other night. Tell us where all that money goes to. I'm sure you get lots of things free that you send to families from the drug company. An explanation is requested please!

Nobdy is saying that the bear is a bad thing. It certainly is a good thing for the children.

What I am saying is don't tell people it is free and then expect themto pay for shipping.

Think about it bev, if y0u ran that organizatin and the bear did not return back on time would you slander the family all over the net? Do you condone this? What if something had happend to the child who had the bear and the whole family was busy at the hosptial with this child and then logged onto the net to see that they have been slandered and harrased? Are you agreeing to this? Do you think this acceptable? If you do, how couldyou? How could anybody?

What if something had happend to the child who had the bear and the whole family was busy at the hospital with this child and then logged onto the net to see that they have been slandered and harrased? Are you agreeing to this? Do you think this acceptable? If you do, how couldyou? How could anybody?[/quote


wow! This is very well put. Jen, how would you feel? Are you starting to see where people are coming from yet? You should know how things can come up. And you should feel shameful for the ugly things you say about people because they do not return that bear at the exact time you say. You should be more concerned about things being wrong with the family if the bears is not returned than where that bear is! You can buy a new bear anywhere and all the money that is donated to you... Go buy a new one, get over it. Stop embarrising people because as you can see it does not feel good. And your name is everywhere right now! People are figuring you out little lady!