Lupus Forum - I Don't Know How to Deal With This!!!!!!!!!!!!!
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I Don't Know How to Deal With This!!!!!!!!!!!!!

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Medical Questions-> Health Forums -> Lupus -> I Don't Know How to Deal With This!!!!!!!!!!!!!
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bajubba

New User, Becoming EHEALTHy
Joined: 02 Oct 2003
Posts: 4
Location: Wisconsin
I Don't Know How to Deal With This!!!!!!!!!!!!!
Posted: 10-10-03 23:09pm

Hi again,
well I have been watching joel for the last few day's and I feel like I am watching a very scary movie. He is not looking good and definitely not feeling well, but won't say any thing because he is sick of being in the hospital, so instead he wait, until he is so sick that he can't even stand it himself. I just feel so helpless. His gp has now referred him to another rhumy and this one is half way across our state but maybe he will have some answers!!!!!!!!! Rolling Eyes
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LadyBrannon

Active User, Really EHEALTHy
Joined: 17 Jul 2003
Posts: 506
Location: TX

Posted: 10-11-03 00:58am

You need to let him know that letting the symptoms get worse is not only making the current flare worse, but most likely doing more damage to his organs. You really *need* and *want* to catch the flare asap.

Was he not interested in coming to our forum? We would be glad to talk to him. We certainly do understand...I know I used to be the same way. I would fight going to the hospital with all my energy. Now, I am much more willing to go after feb 2002's two week stay...

I'll be thinking about you all,
ladybrannon
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kris

New User, Becoming EHEALTHy
Joined: 29 Sep 2003
Posts: 36
Location: okmulgee,okla.
I Dint Know How to Deal With This!!!!!!!!
Posted: 10-11-03 19:02pm

I know exactly how he feels. I fight going to the doc too. I hate it! So I wait until it is so bad that i'm down and out. I'm really good at self analyzing, and I think my problem is that I haven't 100% accepted that i'm sick. I'm still in denial. At some point though I do go to the doc, and get the meds I need to get better. I tell myself every time that the next time I won't wait so long. But I always do. Hopefully some day I will accept the fact that I have this disease, and that there is nothing I can do about it but accept it. It truly is miserable, and I know how he feels.
Maybe you can let him read this and then he'll know there are people just like him, going through the same problems. He's not alone.

Hope this helps,
kris
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sue

New User, Becoming EHEALTHy
Joined: 31 Aug 2003
Posts: 25
Location: united states

Posted: 10-12-03 13:20pm

He is'nt alone in the stubborn territory. I waited forever before finally going to the hospital where I first even heard the word lupus. Kept thinking I was exercising wrong which caused the pain I was having, wearing the wrong shoes, not resting, etc. Finally when I could'nt get out of bed (body locked up) and I was bleeding and clotting for months, I went in. He will go in when he is ready, its hard to convince someone. Good luck Laughing
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