Joined: 13 Dec 2003 Posts: 200 Location: Australia
Kayakmom Question For You Posted: 11-06-04 03:17am
When your children had their sleep studies
done. Where they having epileptic
episodes before the test? Or did you just
get it done because ou wanted to phase out
a family history of nocturnal seizures.?
Thankyou sami
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Sleep Study Came After Seizure Dx Posted: 11-06-04 15:49pm
For my son, the sleep study came after an
idiotologist (incompetent epi that is)
said he no longer has e and has a sleep
disorder. Of course he had not told me
this, he told me had had e and may outgrow
it. He told the sleep disorder story to
our neuro. So we had this tested after he
had an eeg with the neuro that showed
snoring. He has not had a seizure on an
eeg ever, and this is how we got into
misdiagnosis 4 years after we began
treatment. We are waiting to redo veeg
with a new epilepsy specialist far from
that last one...Sleep study showed no
apnea, as the neuro insisted and the only
sleep disorder is primary limb movement
disorder which was caused by the veeg doc
removing his meds to fast and leaving him
off meds....(went through awful withdrawal
and the doc refused to see him).....He did
not have any seizures during this test so
the pmld is in addition to his nocturnal
seizures. He has pmld every night. He
only seizes every couple of weeks, right
now. (in the spring he was up to 1-4
times a week....)
my daughter had vertigo episodes a couple
of years ago and her first eeg was normal.
Her neuro thought she might have a sleep
disorder. When we started seeing
myoclonics and one nocturnal this neuro
thought it could still be a sleep disorder
and ordered the sleep study. Her new eeg
results came in abnormal this time. The
sleep study ruled out a sleep disorder in
her case.
