Epilepsy Forum - Vsn Implant
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Vsn Implant

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misguidedangel

New User, Becoming EHEALTHy
Joined: 16 Oct 2003
Posts: 14
Location: texas
Vsn Implant
Posted: 10-16-03 22:54pm

Has anyone had this procedure done I am thinking about asking my doctor about it but I would like some advise from someone who has maybe had this done thank you Wink
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feelgood

Experienced User , Rather EHEALTHy
Joined: 09 Sep 2003
Posts: 56
Location: Calabasas
Thanks: 2
Thanked:0
Vsn Implant
Posted: 10-17-03 11:51am

Why is your doctor suggesting you have this done?? Confused
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misguidedangel

New User, Becoming EHEALTHy
Joined: 16 Oct 2003
Posts: 14
Location: texas

Posted: 10-17-03 17:22pm

He has not sujested this I was thinking about asking him about it because my seizures dont seem to be getting under any type of control.
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Dobby07

New User, Becoming EHEALTHy
Joined: 06 Oct 2003
Posts: 10
Location: Ohio

Posted: 10-17-03 18:01pm

I actually brought this up to my doctor only for him to say and I quote, "until they can improve it, I won't use it again!" it seems he's tried it on seven or eight patients already and has had no success. Hopefully tha doesn't dampen your ideas.
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misguidedangel

New User, Becoming EHEALTHy
Joined: 16 Oct 2003
Posts: 14
Location: texas

Posted: 10-17-03 18:43pm

Hi dobby.No it doest dappen my hopes thats is the reason I posted because I dont know much about it and thought someone in here would know.Thank you for responding and giving me the info you did
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Don4558

New User, Becoming EHEALTHy
Joined: 18 Oct 2003
Posts: 1
Location: Western NC
Vns Implant
Posted: 10-18-03 18:19pm

When my neurosurgeon inquired about it, she also asked if I knew what it was. I described it to the point that it blew her away. There is a point that most docs don't tell their patients; the vns is like a pacemaker in regards to microwave ovens and cell phones.
As for me, the only type of seizure I don't have is disrobbing. So if you use microwaves and or cell phones, your s.O.L.



I'm a disabled veteran and my neurosurgeon is at the local v. A. Hospital
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Cynthia Lombardo

New User, Becoming EHEALTHy
Joined: 19 Sep 2003
Posts: 14
Location: Crossville,Tennessee,U.S.A.
My Vns Inplant
Posted: 10-25-03 17:33pm

I have had it done.I'm soooo happy I got a vns inplant,i'm doing much better,alot :p which you will still have to take some medicine,but you won't have to take as much,cause right now,i'm begin taking off some of my medicine slowly now,and still not having no seizures,thank you lord.I won't never ever be off all of it,ya know that,but I will be off some.From what the Dr.Told me,that medicine can build up a toxic in your body,and which,your body also gets use to you taken the same amount all the time,so it gets where it not use to it any more,thats why you go to higher dosges,or just plain out changer your medicine,hope it will work.I was getting so up sit at taking all that medicine,and,my seizure was getting worse as I kept getting older in life,so me and my family sat down and talked about the vns,and i'm so thankful I had it done.It was a one day surgey,i came home the same day too.I'm doing very very good now,i can watch my grandchild now,all by myself at home alone,without someone begin with me now,and that means so much to me,ya know...Well good luck..If ya have it done,they told me that you could have it taken out at any time too,you want.I don't lol well good luck...Cyn Wink
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morijack

New User, Becoming EHEALTHy
Joined: 08 Dec 2003
Posts: 1
Vns
Posted: 12-08-03 19:05pm

Vns can work - it has helped me... A lot.
For anyone who wants to check out the info on it go to www.Cyberonics.Com - they give bothe the + and - facts. Read the info they give for docs and decide from that as well as your own doc's opinion and that of people like me. Nothing I have experienced from treatments has cured me but the + I have recieved from vns have much outweighed the - Smile
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misguidedangel

New User, Becoming EHEALTHy
Joined: 16 Oct 2003
Posts: 14
Location: texas
Thanks For All the Advice
Posted: 12-18-03 12:22pm

Sorry I have not responded I was in and out of the hospital my dilantin levels dropped way to low and then a week later they were 28.So now I am at home feeling better with some med changes I now take dilantin 500 mg a day,keppra 1000mg a day and clonopin 1 mg a day .Cynthia thanks for all you advice and I am happy your vsn implant is doing well I makes me think I might have a fighting chance to get of some of these medications once again tahnks for all the advice god bless Smile
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