Joined: 23 Nov 2004 Posts: 7 Location: minneapolis
I Think I (and My Family) Have Hiv???? Posted: 11-23-04 16:18pm
I will try to keep this condensed, it is
pretty heavy stuff though. Please read.
Thanks.
To keep this short, about 2 years ago
(december 2001), I had a very, very severe
illness reaction that occured after a
sexual encounter. In short, I had every
hiv symptom in the book, only at that time
I did not know that my symptoms matched
hiv. I had this deadly, severe reaction
about a couple weeks after the sexual
exposure. Like I said it will be hard to
keep this short because of everything that
has happened since the end of 2001, til
the present 2004. But intially I had a
mild case of diahrrea. Then I had the
usual flu symptoms and I felt like I was
getting better. Then a few days after
that, all heck broke loose(and that is
putting it mildly). I begin having
symptoms that were foreign to me, never
had anything like this before. I still
didn't think hiv because I didn't even
much know what that was or what that
involved. The symptoms that I had(and I
will do my best at remembering all of
them)were so severe, that I had to go to
the e-room because I did not know what was
going on in my body. Believe me, the
symptoms are burned into my mind. I will
the name them to the best of my memory.
I had severe(and I do mean severe)burning
in my chest and mouth. The when I went
to the e-room, they looked at my mouth and
said that it looked like thrush and a
immune response(this was the e-room
doctor). Other symptoms that I
experienced were rash on my arms, severe
breathing problems(almost like pneumonia),
severe body crippling body pain(at times I
could not even get up or walk), blurred
vision and white speckles in front of my
eyes(which I still experience to this day,
they haven't gone away), severe lymph node
pain(under arm, etc.), and you know what I
am forgetting some because it has been a
couple of years ago. Let's just put it
this way, the symptoms that you read for
symptematic hiv response, I had all of
them. I seriously(and I do mean
seriously)wanted to die to rid myself of
this pain! Oh, I did also have 2
grandmaul seizures(and as I think more
symptoms will come back to me but). It
was a sickness that I wouldn't want my
worst enemy to have to go through
this!!(an I do mean that). So, I finally
a doctor asked me if I had any sexual
exposure. Thats when the gates blew
open. So hang with me here(i know this
is long but all important). So from that
time I had an hiv antibody test, about a
month after. This test was negative and
with all that had transpired was
unbelievable. So, I did take a hiv test
even as late as 2003 of august, from the
blood bank center. Back in 2002, I did
also have a pcr test. These tests have
been negative. So I guess(and you can
imagine hard to believe from all of the
sickness I went through that was after the
sexual exposure), even though I was
continued sick(with lighter symptoms, and
by the way ongoing til this present day.
I struggle with mouth yeast problem, body
pain, etc. Some days I feel normal and
think I am out of the woods and then the
symptoms come back again(it is so hard to
live with this pain and weird symptoms).
So, even then, I just excepted that I have
hiv(because what else matches?)and I am
going to live the best way I can. The
problem has come in, in that back in 2003
january, my wife and I had unprotected
sex(because my hiv tests were negative),
but I was so unsure, and you will see why
now. So, my wife was nursing at the
time, so I was doubly concerned. Well,
to close this out, my wife didn't really
get weird sick but has broken out and had
face problems(which she never had before
in her 28 years-she had a perfect face).
She also has a continued white tongue,
like I have had since I got intially sick,
til this present day. She also had skin
peeling in the cheek, which I also had and
have occasionally. Lately, she has had
body itching all over her body and a
little bit of welting in some area's(looks
like hives or raised red bumps). Also,
when my wife was breastfeeding, at one
point my 1 1/2 year old daugter got so
severely sick one time, we took her to
'urgent care" at a doctor's clinic. At
that time when she got so sick she had
thrush in her mouth(thats what the doctor
said it was). Since that time, my
daughter has been pretty healthy, except
for(like my wife and i)she has a white
tongue also. So, I will shut-up now, but
doctor salveson, does my family have hiv
and just not been detected yet(from the
sound of all of this)? I know you are a
great hiv professional and work with hiv
and patients everyday. Does my
experience sound like hiv or is all a
coincidence? And if it is, why is this
sickness ongoing and my wife and daughter
have weird symptoms til the present?
Also, my wife wanted me to ask if the
itching over the body(just started and bad
for 1 day)is resemblance of an hiv
symptom? I will close with this and then
covet your wisdom. The hiv tests would
be easier(and remember this is from my
heart because I experienced all of this
sickness,first-hand)to believe if I would
not had all of the symptoms that go along
with hiv and also they happened after a
sexual encounter(not my wife
unfortunately, much to my wrongdoing).
And even then, I thought, oh well, I have
a sickness whatever it is but as long as
it just affects me, I can live with it.
But seeing my wife and daughter have some
weird symptoms(that match some of my
lighter symptoms), now that is my only
concern and fear! I came to the point
where I don't care about me, but after my
wife and i's one-time unprotected sex
since all of this, she and my daughter
have experienced symptoms that I
recognize, that matched or match mine to
the present day. Well, I am done(i know
unbelievable), but this is my life now,
and my wife is so upset because she wants
another baby(and I do too, more than
anything), but I will not have unprotected
sex because I still am afraid, and as you
can imagine, this severely hurts or
relationship. Please read and with all
of your years of dealing with hiv and
patients, does it sound like my wife,
daughter and I have hiv??? I hate myself
for all of this that I have brought on my
family. And I am not making any of this
up, it is and has been all true. Thanks.
Now, it is critical, because we want to
have a baby and I am afraid and my wife
wants to so bad.
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PattyV
Extremely EHEALTHy
Joined: 01 May 2004 Posts: 1103 Location: Chicago area
Posted: 11-24-04 11:59am
Whew!I am truly sorry for you and your
family.You need to see an infectious
disease specialist-now!!!I do not know
what else to tell you.You and your family
need to have the full series of testing
done.It truly sounds like you all have
something going on.Please do not try to
concieve a baby until you know what is
going on with all of you.Please see
another doctor soon!Best to all of
you.Patty
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arhendepaigey
New User, Becoming EHEALTHy
Joined: 23 Nov 2004 Posts: 7 Location: minneapolis
Patty, Can I Ask... Posted: 11-24-04 13:05pm
Patty, can I ask your background, or what
brought you to this board?
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lexicog
New User, Becoming EHEALTHy
Joined: 03 Nov 2004 Posts: 1 Location: Canada
Posted: 11-25-04 23:10pm
Hi there,
(sorry guys im not a native english
speaker)
there are more than 100(atleast) viral
diseases out there hepatitis,herpex
simplex,chicken pox being one of them and
they are all contagious and they have
similar signs/symptoms.I just recomend you
go and talk to your doctor.
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arhendepaigey
New User, Becoming EHEALTHy
Joined: 23 Nov 2004 Posts: 7 Location: minneapolis
Thankyou For Input, I Appreciate It! Posted: 11-29-04 12:23pm
Thankyou, I do hear you and know what you
are saying, and I a have set an
appointment for december 6th with a new
doctor to have him do all of the tests
again(since it has been about 3 years past
incident and intial severe sickness. It
is just so hard, because before all of
this I was healthy. I know bringing this
all on my family and i, is my fault, and
that is the hardest to deal with. If my
wife or girl have anything(since my wife
was breastfeeding at the time), I don't
think I will bea ble to go on? Me having
something is one thing, but them, I can't
stand that
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PattyV
Extremely EHEALTHy
Joined: 01 May 2004 Posts: 1103 Location: Chicago area
Posted: 12-01-04 11:23am
I know this is very tough for you all
now.Keep the faith and see what the doc
has to say and take it from there.Best to
all of you.Patty
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neo_1978
Experienced User , Rather EHEALTHy
Joined: 15 Dec 2004 Posts: 50 Location: somewhere
Posted: 12-15-04 23:35pm
I have to admit i'm confusted about this
reference to "symptoms of hiv", in all my
research I have found that many people
exposed to hiv and who also contract the
hiv virus sometimes, but not always, have
symptoms resembling the flu, which
dissipate. Now the symptoms discussed in
the beginning of this post sound like
complications associated with the syndrome
of aids. To get to the point, if these
symptoms were caused by immune difficiency
associated with aids, then hiv should be
readily found in the body of both you and
your wife. If no hiv is present, and
your symptoms are caused by and immune
deficiency then you must look at other
risk factors, such as lifestyle, or even
your surroundings. The poor citizens
that died of scurvy probably had no idea
that it was simply caused by their
diet.......