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tweetej

New User, Becoming EHEALTHy
Joined: 17 Jan 2004
Posts: 7
Location: Texas
childhood leukemia
Posted: 11-24-04 01:39am

I have a friend who was diagnosed with the childhood form of leukemia (all) when she was about 22 or 23. She has had a very long and painful battle with this illness. She has been fighting this disease with everything she has for a little over two and a half years. She initially went through chemo and was in remission to find out not long after that the leukemia had returned. Her next option was the bone marrow transplant. Her brother was a match and donated what she needed. She again thought she was in the clear but later found she had gotten gvhd (graft versus host disease). This can be just another obsticle on the way to recovery and she believed it was. Not long after the diagnosis of gvhd she had a stroke and they found that she has a tumor on her spine and also that the leukemia has returned. She has run out of options basically. Her mom was told that if she went through the chemo again to do another transplant it might kill her and if it didn't the chances of the transplant being succesful were less than 10%. She has opted to be at home with her 4 year old son and her family and enjoy the rest of her life without any treatment. The only meds she takes are for pain. My question is if anyone knows of any wish making organizations that either cater to adults or grant wishes for children with chronically ill parents? My now 6 year old daughter also has leukemia and she got to make a wish through the make-a-wish foundation but I believe they only cater to children with the illness. I just thought it might be nice for the child to be able to have a very special memory with his mother that he can always remember. If anyone has any information on this please reply. Thank you in advance. Jennifer
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