Joined: 20 Oct 2003 Posts: 7 Location: Mills, Wyoming
Episodes Posted: 10-20-03 21:06pm
I finally broke down today and went to the
doctor, I have had episodes or spells as
the md calls them, where I smell something
or feel deja vu, then acute pain begins in
my upper chest and moves down. I am
unresponsive during this spells, am
exhausted upon their completion and always
have a bowel movement afterward. It has
gone on for sometime now, I now have a
referral to a neurologist, but still have
doubts that anything will ever come from
it. I am uninsured so the medical costs
are worrisome. I am also scared and feel
its time to act. Have any of you ever
heard of epileptic seizures that resemble
the spells I have.
|
feelgood
Experienced User , Rather EHEALTHy
Joined: 09 Sep 2003 Posts: 56 Location: Calabasas
Thanks: 2
Thanked:0
Spells? Posted: 10-31-03 16:12pm
No, I never heard of those symtoms as
being associated with seizures...There are
different types, but that doesn't sound
like a seizure...Try seeing a gastro
doctor, that's my opinion
|
jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Hi I had those same symptoms that slowly
came off and on for 20 years after a blow
to the head, from a car accident. Funny
smell, metal taste, body felt really
strange, kinda like I was a pin cushion
but did'nt hurt. Felt like I was going to
have a bowel movement but never did.
Stomach would hurt only for a couple of
minutes till it was all over. People
would be talking it would sound really
different. I guess I would go in and
out. Then as the years would pass by I
was married for all of those years the
last 5 years they were getting worse
because I was unhappy (stress). Never
went to the doctor. They were waking me
up at night the last year before I had my
first grand mal. Ihad one of those aura
before I went into a grandmal. I forgot
one thing about the auras I had the deja
vu too.
Still trying different meds. Same side
effects as everyone else. Bad memory,
can't stay on same subject, motor mouth,
tired, not driving. But the best thing is
I found you guys to talk to about all
this.
|
rainbowchristi
New User, Becoming EHEALTHy
Joined: 20 Oct 2003 Posts: 7 Location: Mills, Wyoming
Official Diagnosis Posted: 11-23-03 21:41pm
Well the official diagnosis came back as
temporal lobe partial and complex
seizures. We began with lamictal and I
had a terrible reaction to the meds.
Rash, swelling grouchiness the whole nine
yards. After steroid treatment to get it
under control the doctor wants to try
keppra. Well being burned once i'm
scared to try again. I want more than
anything to be able to handle them without
meds. I just feel that Dr.'s and pharm.
Co's really push med's on patients without
knowing the whole story behind them. Has
anyone tried accupuncture or other natural
remedies.
In advance thanks for all your replies.
|
jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Brainsurgery Posted: 11-24-03 11:34am
Christi
its jamie, aftet several eeg,s m.R.I.S
and 5 neuros. I went to s.F. Neuro
clinic in s.F. Ca that was the 2nd neuro
he told me it would be 30 to 50 meds
before the right one works for me. They
all ask if I would consider b.S. I told
themall noway. Four years later I ended
up having b.S. At u.C.Davis. Look on my
topic about brain surgery. Take care .
Jamie
|
faegirl6
New User, Becoming EHEALTHy
Joined: 02 Feb 2004 Posts: 7 Location: taiwan
Posted: 02-03-04 00:24am
Hi
im joe. Just joined ehlth. Found out I
had epilepsy when I was 13 due to avm I
had in my brain. Last year the avm (like
an anuerism) got removed. Dr. Said
there's chance of the epilepsy being
cured. I had 2 seisures jan month this
year. Not a lot I know. But before I
had them maybe once a year. Sometimes I
skipped a year. I get grandmal's. Im
angry and scared. Any advise on how to
cope?
|
MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Coping... Posted: 02-04-04 09:22am
I've been dealing with this for years, and
as the doctors (to many to count) have
told me the medical books were not written
about me.
My seizures are rare, and i'm "not" a
surgery canidate and i've been on every
med and combo of meds they can come up
with.
I've particpated in several drug studies
also... Hoping to help myself and
others.
I've also gotten to the point of why the
heck bother, (taking the meds) if there
not working and now you have to deal with
the side effects 24 hours a day from them
too!
Well, that does'nt work either because
i've protested and weaned myself off.
Against the doctors judgement, I did
notice my memory and cordinition and
things seemed better but the longer I was
off the meds the more and worse the
seizures got.
Coping, i've now learned to deal with the
fact that this is who I am. And I don't
let it prevent me from being a mom, wife
or a person in anyway... I do get stares,
comments but all I do in turn is try to
educate people about seizures.
Because most people don't really
understand, and they really wouldn't know
what to do if they saw someone having
one.
I also belong to a local support group
that meets once a month and now I found
this site....
|
faegirl6
New User, Becoming EHEALTHy
Joined: 02 Feb 2004 Posts: 7 Location: taiwan
Posted: 02-07-04 01:04am
Thank u for replying. I found this site
maybe a week ago. Was going bonkers.
Still feel bad, but have forced myself to
read up on this, and joined the site.
Starting to help. Main thing being that
there are other people that have epilepsy
too .And coping. So im trying to stop
feeling sorry for me. And educate myself
and others. Seeing doc again next week.
Hopefully he can adjust my drug (lamictal)
to get the epilepsy under control.
