I've tried at least 10 meds over the past
decade. Currently on lamictal, depakote,
and keppra. The doctor is switching me
from keppra to zonegran, which is a new
one for me. Has anyone tried it? If
so, any comments/advice? I hear it can
cause kidney stones. If this one works
well enough, my doctor says I can cut the
lamictal next (and i'm very excited about
cutting down to 2 meds).
Jen :d
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Posted: 12-18-04 15:40pm
Hey there, so sorry that you have been
through so many meds!!
I hope zonegran is a good one for you. It
seems to be a love it or hate it med. My
kids have done fairly well when on this
one. For my son, this was less sedating
and impacting his thinking far less then
any other med he tried. He did not have
problems except on high doses, then he
could not think at all and had more
seizures. It is the med I am working to
get him back on.... My daughter also has
done pretty well on this one. It is
controlling her mild seizures pretty well
and has reduced her seizure related
headaches some.
You can avoid any issue with kidney stone
by making sure you drink at least 6
glasses of water each day.....
Best wishes to you!
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Rocking4Epilepsy01
New User, Becoming EHEALTHy
Joined: 08 Nov 2004 Posts: 17 Location: Davenport, Iowa
Posted: 12-18-04 23:50pm
My son was on zonegran at age 2 and he
didn't do well at all
he just held his head and screamed...
As soon as we took him off it he went back
to his happy self...
I would never use it again if the case
need be..
Please keep in mind everyone reacts
differently.
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Posted: 03-02-05 11:53am
Sleepyjen, how is the zonegran doing for
you?
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SleepyJen
New User, Becoming EHEALTHy
Joined: 31 May 2004 Posts: 41 Location: NYC
My Zonegran Update Posted: 03-04-05 19:30pm
I'm doing okay, thanks for asking. It
took a really long time for the medication
to build up in my system though, so for a
while I was doing terribly. My simple
partial seizures are photosensitive, and
was having them any time I turned the
lights on. But now i'm on 600mg daily
(plus the lamictal and depakote) and doing
okay. The only side effect that is very
bothersome is that zonegran can apparently
be a diuretic. I feel like i'm up all
night running to the bathroom and then
drinking water because I get so thirsty
all the time. But at least it forces me
to drink water so I won't get kidney
stones!
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 03-04-05 19:38pm
Yes, I forgot about the diuretic part. My
son had this some. When he had to go on
this one he had to right then.....I think
my dd has some of this factor too.
Glad it finally did kick in but sorry it
took so long!
