Hi everyone,
i know many of you recommend that we lupus
patients not take celebrex, but I have
been on it for at least 3 years, and it
has never caused me to flare. Instead,
it has provided great relief for my pain.
I take 400mg daily. Now that it, too,
has been found to increase the risk of
heart attacks, I fear that it will be
taken off the market. What alternative
have those of you who were taking vioxx
found? I'm really afraid that I won't be
able to find anything else that works for
me. I have a history of ulcers, so many
of the anti-inflamatory drugs are not an
option. I just dread the possibility of
having to live with the pain that this
drug provides relief for.
Lizbet
|
Kelly May
New User, Becoming EHEALTHy
Joined: 20 Dec 2004 Posts: 3 Location: Australia
Posted: 12-20-04 13:19pm
Hey there
i too am concerned about the latest
acknowledgement of increased risk of heart
attacks with celebrex. I have also been
on them for 3 years without side effects
and I really know about it when I run out
and am too unwell to get to the pharmacy
for a few days. Initially I was taking
naprosin but stopped because of possible
long term gastro probs..... It makes you
wonder if there is any meds out there that
don't have some long term effect. The
catch 22 is that we can't survive without
these treatments that prolong our lupus
lives or we will be back to survival rates
of 10 years after diagnosis as it was
20-30 years ago. So we are really at the
mercy of the pharmacuetical
companies....Who are always :d smiling at
our unhealthy expence!
Keep in touch
kelly may
|
lwyswright
New User, Becoming EHEALTHy
Joined: 18 Jun 2004 Posts: 18 Location: Arizona
Celebrex/vioxx Posted: 01-04-05 10:48am
Wow. I guess I should have read your
post before I posted mine. My doctor
already took me off celebrex and now there
is nothing for me to take except muscle
relaxants and pain meds. I hate feeling
tired and drugged all the time so I tend
not to take them during the day. But,
then by night time I hurt so badly that I
want to curl up and die.
I have a blood disorder, on top of
everything else, called factor v leiden
disorder. It causes blood clots, high
platlett levels etc. Along with that I
have a protein c deficiency which is
pretty much the same thing only different
enzymes are involved.
If anyone comes up with an alternative for
celebrex or vioxx I would love to hear it.
Sometimes I wish I was a scientist, or
medical research doctor. I would work
day and night to find a cure for this ball
and chain that I have to carry around
every day.
Oh, and whoever it was that recommended
the link to the spoons website that was
awesome. I emailed that story to my
entire family. Now everytime I see any
of them the first question they ask is
"how many spoons today?" my dad has heart
disease, he was told 6 years ago now that
he only had about 6 months to live. He
has been living day to day ever since.
He said the story described the way he
feels as well. So, now he and I compare
our spoon level from day to day. He is
the strongest man I have ever known and
has a will to live like no one else. He
truly inspires me everyday to keep
going.
I'm done rambling now.
Lori
|
Lisa6467
New User, Becoming EHEALTHy
Joined: 07 Jan 2005 Posts: 4 Location: Sebring, Florida
Cox-2 Inhibitors Posted: 01-07-05 12:22pm
Vioxx, bextra, and celebrex are all cox2
inhibitors and work in very similar ways;
in fact they are just formulations of the
same thing. Pfizer makes both celebrex
and bextra. The fda is reviewing these
drugs, and is considering removing bextra,
but not celebrex (money comes into play
here, I am sure). The technical names
are very similar of these two drugs.
Celebrex is celecoxib and bextra is
valdecoxib. The typical dosages are very
different. You would take 200mg of
celebrex, but only 20 mg of bextra. I
believe, in my own uneducated opinion,
that bextra is just a more potent version
of celebrex (less additives) which would
be ideal for those who are sensitive to
additives. I am unsure of what vioxx's
technical name is, but I do remember it
ended in "coxib"! I wish there were
something better out there; especially
since my pain is not relieved by the
bextra 20mg and for obvious reasons, I am
uncomfortable taking more.
