I Need Help From Someone Who Knows What They're Doing Posted: 12-19-04 04:25am
I am bipolar and was diagnosed 10 years
ago at the age of 14. The years
following were very disturbed as I went
through different medications and dosages
that were both very, very wrong - not even
considering my age in all of that. I've
also seen multipal doctors, psychologists,
psychiatrists, counselors, therapists,
etc... None of which had the dedication
and evidentally the know-how to give me
any real help. Anyway, I have no
insurance and no money for a doctor.
I've resorted to seeing an md so I could
have someone to write a prescription for
me. Of course he knows very little and
seems awkward and ashamed when I try to
discusss openly with him my symptoms.
Hmmmm... "symptoms" - more like who I am
and everything i've ever known and
loved/hated. So I have even tried
natural remedies now and nothing helps me
because I need a doctor to monitor me and
i'm just self-medicating. Sometimes I
feel that if I don't get in the car and
drive myself to the hospital that
something terrifying will happen and I
will finally snap. It consumes me every
minute of my life. I have no friends, I
hate the thought of family looking at me
like i'm different and they feel sorry for
my husband and kid. Of course, some of
the hate stems from the fact that I
probably do make them miserable. That
and i'm not insane or stupid or incapable!
I cannot go into the misery and
lonliness that I feel because I don't have
to if you have bipolar disorder. I feel
very scared because I need a doctor and I
feel very scared i'll take drugs that make
me freak out and have sideaffects and if I
go off them i'll die! Literally!
Either i'll slip off the edge like I did a
few years ago and a few years before that
or i'll actually die because of the pain
or worse. Because I can't go through
life alone and feeling like a burden.
It's not fair. I deserve to be here to
and I deserve to be treated and helped and
I don't know where to go or what to do.
What do I need? Someone help! Has
anyone out there discovered a drug combo
that has helped them? I have so many
problems: constant anxiety, thoughts of
death, thoughts of suicide, hate, anger,
rage, isolation, jealousy, saddness, fear,
fear of losing my personality to drugs,
fear of losing my creativity of my music
to drugs, not knowing if things are real
or a dilusion, being overwhelmed with even
taking a shower, drinking, not wanting to
talk to other people or even answer the
phone, guilt, panic, crying, lonliness...
What drug can at least improve on any of
those things to a real degree? And don't
tell me i'm hopeless because that's not
fair. Although I fear growing old with
this disease and it destroying me on the
way. It destroying my mind, my soul, my
body, and the loves of my life: my son
and husband. I just want to be happy but
keep the things I love about myself, not
remove emotion and numb all feeling.
Help! Someone! I'm out of answers and
need help. I sereously need a doctor
with a program for people who cannot
affors to pay full but have no clue... If
anyone has suggestions please please take
a minute to reply! Much appreciated.
Thanks for listening. Krista
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sandbag5492004
Experienced User , Rather EHEALTHy
Joined: 15 Nov 2004 Posts: 55 Location: New York
Bi-polar Posted: 12-19-04 20:10pm
Hi krista,
I know and understand your fear.
It is an over whelming illness, I know
that for sure, you are born with it, it is
genetically predisposed, runs in families,
as such. You can show symptoms at an
early age as you know. I was four years
old when I first tried to kill myself.
Electrocution is good, if someone is not
there to save you. I say that with tongue
in cheek. I am leslie and old enough to
be your mother and hopefully to make you
feel comfortable, advocated for children's
rights for almost 30+ years. While
seriously mentally ill, look back now and
think what a nut I was! Wouldn't change a
minute of it.Anyway, one suggestion I have
is to look for a mental health clinic in
your area. Usually listed in the county
section of government services. You pay
on a sliding scale. I pay $6.00 a visit.
If no luck call your state education
department because they have the job of
licsensing people who have or do anything
like that and maybe able to give you the
name of a center in your area. Second, if
you need someone to vent with or offer you
emotional support, email me at san
dbag5492004@yahoo.Com. I am a 59 year
old female, widowed, live with my disabled
sons, and know what it is like to feel
alone. Believe me you are not.
My best, hold on
leslie
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KristaLeigh
New User, Becoming EHEALTHy
Joined: 19 Dec 2004 Posts: 4 Location: Tulsa
Thank You! Posted: 12-21-04 15:26pm
It was nice to see a reply. It made me
feel like someone cares. I don't even
have anyone in my life that has bipolar
and ther is no one who gets it. People
say they understand but then act as if I
should deal with problems the way they do,
by thinking positively and getting out
more. Oh, brother. So thank you for
taking time to respond. It's almost hard
to believe that so many people feel the
way I do but I feel so alone anyway! I
wish I knew more people who could relate.
Do you think group therapy is a good
idea? I've heard contrasting views.
Some feel it's wonderful, others feel that
they feed off one another's sickness and
think about it more. Any opinion? At
any rate, I will look into the program you
suggested. It's sad people who are
mentally ill just suffer and suffer for
years and no one helps them because their
is just no money. It's really sick when
you think about it. Also makes you feel
out of control. What medications do you
take and do they help you more thatn
others you've tried if so? I'm just at a
loss with that. Thanks again,krista
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sandbag5492004
Experienced User , Rather EHEALTHy
Joined: 15 Nov 2004 Posts: 55 Location: New York
Posted: 12-21-04 16:20pm
Krista,
hi got or saw your reply and
don't feel alone. I say that and think
about how I describe to others the feeling
of depression. I tell them it is like
being in a box with the tiniest light
ttttthere to see. You spend all of your
time trying to catch up with it, only to
get cose and find that the light has gone
out. Do try to find a clinic, they really
can be staffed by competent people. If
you are truly bi-polar you should be on
some kind of meds. Yes they can have
serious side effects and require blood
work to be done to check it's level but it
is better than feeling so bad all the
time. When you have time also find a good
pharmacist who will always answer all your
questions, even if you think they are
stupid. They are not when it concerns
your health. Always ask the psychiatrist
questions too. What are long term
effects, what drugs interact with this
one, should I drink lots of water, do I
take it the same day, remember that
contrary to public opinion, they are not
like dope or other related products. They
are not addictive, a drug is not
addictive just because you take it
everyday, taking this kind of medicine is
like taking meds for high blood pressure,
when you stop, the problem reappears.
Understand the difference? Any questions
email me the regular way not thru ehealth
forum as I picked up viruses from the
board. Love you and am thinking of you,
leslie
Hey, thanks for the reply. The thing is,
I am taking a new medication that is all
natural because i've tried others over the
past 10 years. I've actually rarely been
without meds and the only time i've gone
off of them is because I took myself off
them... That has had drastic results.
When I was 16 I stopped all my meds
abruptly and actually had a series of
psychotic episodes and have had other
similiar experiences since. So I know
that I must take something or cannot live
and function, neither can my husband who
loves me very much i'm sure (actually
convinced that someone can love me after 3
years!) so I know I must also worry about
him and my 2 year old. It's so hard to
take medication. I feel so unlike myself
and sometimes different ones have taken
away my emotions. Like right now I take
serenity and it actually takes the edge
off my depression and it also contains
lithium but I notice that I experience
mania frequently, although it feels
different somehow... It makes it easier
for me to be emotionless and cold..
Although I can feel for people on tv or
someone removed from me, but feel no
empathy for people in my real life.. I
hate that because I am not evil! But I
know I must take meds. I also play piano
and feel that when I have taken meds for
extended periods i'm not as creative which
makes me very empty feeling. Like it's
there, but somehow i'm unable to express
it. All this is just me talking, i'm not
giving excuses for not taking medication.
I just wonder... Who am I if I take
medication that actually works? What am
I like? Isn't this me? It's the
lonliest feeling in the world to feel like
you don't even know yourself and what you
thought was real and deep and insightful
seems unreal and nonsensical and just
weird a week later. But in a way I miss
it. I don't want to be just another
uncreative normal non-understanding,
shallow person. Wow. Is that really
what I think it would be like to be well?
It just hurts, you know? To think of
what you do like about yourself and to
consider it a part of your sickness. I
just feel so sad about that. I can't
tell you how sad and removed I feel from
the world when I think of that. I have
pretty much isolated myself from everyone
but my mom and husband and little boy.
Life is so much easier without friends at
this point, you know what I mean? I'm so
scared to get better. There are other
things in life too that I should deal with
from my past. I mean, I do deal with
them and think about them, but I never
move forward emotionally, always always
thinking of the past. It's like everyone
and everything goes on and changes and
moves forward but me. That makes me feel
lonlier. Anything sound familiar in my
ramblings? I will for the sake of my kid
(and me?) take your advice. I didn't
think of asking a pharmecist about meds.
I've always just taken what people have
given me and suffered! I also will look
into the special programs mentioned in the
last reply tomorrow. I was actually a
part od one my mom found out about for a
year! I missed one appointment and they
kicked me out of the program! I was
shocked! They basically just turned me
out into the street without a doctor.
They didn't care at all , so I hope I find
a place that is discounted but still views
you as a person and wants to help. Thank
you... I don't know why I didn't start
talking to a group like this earlier.
You wouldn't believe how weird it is to
think someone actually understands. I am
the only person I know like this. It
sucks! Even though I don't wish bipolar
on someone just to relate to them.. You
know what I mean. Keep writing!
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sandbag5492004
Experienced User , Rather EHEALTHy
Joined: 15 Nov 2004 Posts: 55 Location: New York
Posted: 12-22-04 09:06am
Hi krista, listen to me, everytime I open
up a reply from ehealth forum my norton
virus protection box comes on and shows
that I have picked up several viruses
including trojan and bloodhound. Please
email me through my regular email not
through the ehealth forum board. I spent
8 hours running my anti virus program
yesterday and going to have to do
something now. Just had all new parts put
in, thank god for extended warranties,
also had to buy a new printer. I want to
give you the support you need but not
through this board so please email me at
san
dbag5492004@yahoo.Com. Also suggest
very strongly that you test your computer
for adware threats and viruses also.
Okay?
Praying for you and
lots of love les
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boogaloo
New User, Becoming EHEALTHy
Joined: 02 Dec 2004 Posts: 33 Location: kitchener
Third Party to the Conversation Posted: 12-25-04 00:31am
Hello ladies. I'm a 40yr. Old female,
married with a 16yr. Old son. I was dx
with bi-polar officially 10yrs. Ago .
I say officially because now that I have
educated myself on this illness, I can see
a life long pattern. The "hyper" kid who
would play till i'd drop (then usually
"down " for a few weeks at a time. My
highs and lows were pretty much balanced ,
but became more increasingly one sided for
longer periods of time. It's been
difficult finding the "perfect"
combination of medications, and of course
even then you are always re-adjusting.
One thing I find which for me is difficult
that there is such a stigma with this sort
of illness. "mental illness"--most people
don't understand that it is just that--an
illness that no one whishes for, just like
diabetes, ms etc. Over the years, along
with counselling--learning to self
identify my moods, and the changes, i'll
give (or he'll take if he notices first)
my husband my credit cards, as I have
already put my family in financial
distress, and I won't drive the car ,as my
foot becomes a little heavier.. I have a
tendency to be more depressive for longer
periods than my manic epesoids. Mania is
unbelievable, and only one who experiences
it can truly understand what I mean. The
enery you feel, I mean the inner energy
that you can't seem to get rid of. I
know that regular monitoring of your
medications is so important, and I was
told to keep a journal to help me learn to
identify my moods and their symptoms.
Litium was also one medication that I had
a very hard time with. I found that I
cycled more --my body just didn't process
this med. Well at all. My medication
profile was then comprised with 3 doctors
first my psychiatrist, family md and a
neurologist (as I was starting to have
problems with really bad migranies at
onset of a manic episode). The profile
i'm now on is val poric acid 250mg. In
am -dinner, and at bedtime (anti seizure
med-also used to treat migraines)(the
neurologist states that there are studies
to prove that migraines are a form of a
seizure and will slow down the chemical
charges, therefore useful for bi-polar) I
call them my downers, second I take
effexor 75mg. In am(antidepessant,
therefore my upper)and I also take
seroqual 200mg. At bedtime (this med is
new --antipsyhcotic to help with
hypermania, this dose is taken at bedtime
because it is a sedative, i'm not always
on the last med. Just when mania becomes
uncontrollable. Litium medicaton was the
worst experienced med for me. Something
for you to think about. Just know that
there are so many of "us" here together to
help and share. I know it's fortunate for
me from some of the letters that i've
read. Here in canada we do have a pretty
good health care system to aid in mental
health issuses. L would like to believe
that there must be some kind of aid
service to help with $ for meds, and md
(or am I wrong. Best of luck. I'll
keep watch for you online.
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sandbag5492004
Experienced User , Rather EHEALTHy
Joined: 15 Nov 2004 Posts: 55 Location: New York
Posted: 12-30-04 01:04am
Krista,
hang in there it can be a frustrating
road. Hope you had a good xmas and want
to wish you and yours a very healthy,
happy, and wonderful new year.
God bless and may he find peace for
you with your illness.
Love les
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Roxy
New User, Becoming EHEALTHy
Joined: 28 Dec 2004 Posts: 25 Location: Il
Posted: 12-30-04 01:45am
Hi krista l.
I don't know much about bi-polar but
if need be,you should go straight to the
hospital for help! Don't waste anymore
time on the what if's.Don't be too worried
what family thinks of you cause if they
love you,they'll understand.You are not
hopeless.You are still on earth for a
reason,don't ya think:) you have a husband
and a son who need a wife/mommy by their
side:) no one else can take the place of a
mother! So....Go get the right advice and
right meds. Have a nice day,and smile:)
roxanne.
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The_MrS.
New User, Becoming EHEALTHy
Joined: 18 Jan 2005 Posts: 16 Location: New Mexico
You Are My Soulmate Posted: 01-18-05 04:12am
Girl let me tell you....I am 25 married
and have a kid. I suffer many of the
syptoms you suffer.....My biggest fear is
losing my voice as I am a singer. There
must be something..Medicade....Social
security something you can do to get a
proper diagnosis and meds. You can't
self medicate but why tell you something
you already know. I will tell you that I
am unable to work because I can not seem
to get the proper med dosage so I am
working with social security to get on
disability because we can not survive as a
one income family and I can not garuntee
the job market that I am going to be able
to get movong and come into work or be
able to control the mood swings if a
customer piwsses me off (trust me lost a
job over that one a few years ago).
There is always a way. If you ever need
anyone to talk to please feel free to
email me. I would actually love to get
to know you more...You sound alot like me.
Ceriauna@
yahoo.Com I am available most of the
time...Like I said I don't work. If you
feel you are going off the deep end please
feel free to message me on yahoo
messsenger with the same screen name...I
will be here to takl you down.