Joined: 03 Jan 2005 Posts: 2 Location: Jakarta, Indonesia
Strange Epilepsy When I'm 16 Years Old Posted: 01-03-05 20:41pm
I had an (maybe) epilepsy when I was 16
years old, I don't why it can happen to me
because 15 years I passed, I don't have
any decease that I would got this terrible
illness. I can't pass my teenage time for
four years. Day by day I pass only in my
room, or to the university. Its a little
weird a sixteen years old boy just staying
at home, isn't it? I had go to many
doctors in my city, and they just give me
a same medicine (depakote). What I wanna
ask here is, is this the right medicine?
Is there any side effect when I have it
about 4 - 5 years?
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 01-04-05 10:38am
I dont quite understand what you wrote.
Do you mean that you have been diagnosed
with epilepsy at the age of 16? And that
you cant understand why you didnt get it
when you were 13? Or younger?.
I am 22 and I was diagnosed with epilepsy
when I was 21.
There are alot of medications out there at
the moment. What type of seizures do you
have? Mine are mostly complex partials
and some grand mals. I currently take
epilim ( sodium valproate 1200mg morning
and night) with a combination of keppra
500mg morning and nite.
you will find there when you look up
epilepsy all the different drugs, types of
seizures and you can see what best
describes your seizures personally that is
how I found out that I wanted to try
keppra. Because b4 I was on
tegretol(cabramazapine) and it wasnt
working well at all.
Take care sami ciao.
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adhutojo
New User, Becoming EHEALTHy
Joined: 03 Jan 2005 Posts: 2 Location: Jakarta, Indonesia
Posted: 01-04-05 19:02pm
Yeah, I get it when I was 16 years old
(now i'm 20 years old). Type of seizure
that I have is before got epilepsy, i'm
kinda have a terrible headache in my right
side of brain and I tried to fight on it.
So, sometime I can cancel this seizure
after that I got myself sleep. There are
2 different situation I realized that is
:
>> when I got the seizure, I fight
on it by punch up my right side head
>> before I got it, I know the
seizure might attack on me so I try to
fight and relax down my body
of course, after i'd lost from fight the
seizure I was lost contact with my body,
what means I was unconcious. But all
person that saw me said that I was got
epilepsy. What kind of epilepsy is it?
Note : I don't want get those illness
younger, I just don't get it why it
happens after the time that I have to be
full of knowledge. This illness quite
disturbing my study >_<
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 01-06-05 11:16am
I am so sorry the seizures started for
you. 70% of all who have seizures start
will never know why it happened.
The meds used depends on the type of
seizure you have. If it is a partial
seizure, coming from one part of the
brainl, certain meds will be used. If it
is a generalized seizure, another med
might be best!
Depakote it one that works for a variety
of seizures. If this is not working well
for you, talk to your doctors to see if
there is another medication that you can
try.
I wish you the best!
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello There Again Posted: 01-09-05 00:10am
Depakote - is the name in america to my
knowledge it has been around for about 20
yrs, prehaps more, it is called epilim
here. I totally understand the fighting
the seizure stage. I try to also do this
myself.
You say that you feel headaches in the
side of your head, those are your temples.
It is a type of epilepsy the most common,
called temporal lobe epilepsy.
I have this also, and to my personal
experiences as I havent dealt with it long
in my life as most of the ppl in this
forum, but my seizures are partial -
complex and grand mal like.
I hear and I feel but then I phase out and
I dont remember much of the event, also
the different types of medications used to
control fits. (anticonvulsants )
can change the way that you feel n
things.
I have experianced that since being on
keppra I am now more aware of an eisode
comming on. Where as before I would not
have much warning at all. I guess I now
get the aura more then the actual seizure
and I now also get the post ictil state
after, I feel mentally n physically
drained more now
but its alot better then what I was
dealing with b4. I would have rolling
seizures sometimes up to 5.
Temporal lobe epilepsy is the most
commonest but yet the hardest to treat as
its hard to find the area most commonly
affected.
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