Discussing Epilepsy - How To? Posted: 01-10-05 13:48pm
Hello everyone. This is my first post
and I thank you in advance for taking the
time to read it.
I began dating a wonderful guy a couple of
months ago. On one of our first dates,
he mentioned that he was eplieptic. He
didn't go into detail regarding how it
affects him as an individual, and I did
not feel that I knew him well enough at
the time to ask questions.
Now it seems that things are going really
well between us and we are starting a
great relationship that will last for at
least a while. Since it looks like we
will be spending a good amount of time
together, I have been wondering about his
epilepsy, and thinking about discussing it
with him. The most pressing issue to me
is I would like to know what to expect if
he ever has a seizure when I am with him,
and how he would like me to handle it. I
have no idea about the frequency or type
of seizures he tends to experience. He
has only mentioned epilepsy a couple of
times and usually in reference to pointing
out what tends to be a trigger.
My question is should I initiate this
conversation? Or should I wait for him
to bring it up in his own time? On one
hand, I don't want to pry into something
that I feel is pretty personal, and I
certainly don't want to make him feel
uncomfortable. On the other, I would
rather be a bit informed and prepared
should I ever be present while he has a
seizure. I do care about him and I would
like to do what is in his best interest
here.
I know no one can predict how one
individual feels about this, but if anyone
would not mind sharing with me his or her
own opinions and experience, I would
greatly appreciate it.
Thank you again!
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 250 Location: Conn
Thanks: 2
Thanked:0
Posted: 01-11-05 19:22pm
Hi and welcome. I think it is great that
you want to learn more about epilepsy so
you can know more about what he faces.
There are lots of good places on the web
to learn. Epilepsy.Com is one and
epilepsy foundation.Org is another.
Everyone feels a bit different about
talking about their epilepsy. I would
read some on your own and look for an
opening to ask if he would tell you about
what his experience has been.
I have 2 kids with epilepsy. One is open
and will talk to anyone about it, the
other is not willing even for me to talk
much about it. That one will not talk to
others about it!
Congrats on finding a special man. I
think it is great that you want to get to
know more!
|
MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 01-16-05 07:44am
Wynne,
I have been dealing with seizures all my
life. I am very out spoken about the fact
that I have them now, I have dealt with
many times where people have been down
right rude and mean to me about it.
The fact that he has brought it up to you
a few different times would seem that he
wants to inform you.
I would just let him know that you care
about him and want to be prepared and have
the knowledge on what to do and what to
expect when it does happen.
Let him know you have been reading and
have learned that not everyones seizures
are the same.
He will probably be tickled that your
willing learn and to find out....
I know i'd rather have some one in my life
that wanted to except me as I am than hide
from it.
Good luck!!!!
Jill
|
happiness
New User, Becoming EHEALTHy
Joined: 05 Feb 2005 Posts: 21 Location: America
Posted: 02-05-05 14:53pm
To add to this, if he openly discusses
things that trigger
for him, then he is waiting to see if you
will talk to him
about it. What I would suggest do is
what others did,
tell him you would like to talk more about
this when
he is ready. That you want to be ready
to help him
through a seizrue in the best way for
him.
Happiness
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 250 Location: Conn
Thanks: 2
Thanked:0
Posted: 02-05-05 22:02pm
How is it going? Have you talked more
about his epilepsy?
Hoping things are ok.
|
Pauly Want a Cracker
New User, Becoming EHEALTHy
Joined: 09 May 2006 Posts: 15 Location: glasgow
Post Subject Posted: 05-12-06 22:10pm
Hi wynne I am very happy to see that
someone is very willingly to learning
about someone's epilepsy as I have
epilepsy myself reading your post to me
your boyfriend is willing to talk about
his epilepsy to you. If he talks about
it again to you just ask him what you
would do for him when he is having a
seizure he will tell you. Wynne if you
live in the states I am sorry but I do not
have any address for you but I think
someone give it to you in there post I
live in scotland but if you get in touch
with them and ask for some information on
first aid they should post it out to you
it shows you what to do when someone's
having a seizure hope this of help
|
shortypants19762002
New User, Becoming EHEALTHy
Joined: 21 Jun 2006 Posts: 8
Re: Discussing Epilepsy - How To? Posted: 06-21-06 16:45pm
wynne
wrote:
hello everyone. This is
my first post and I thank you in advance
for taking the time to read it.
I began dating a wonderful guy a couple of
months ago. On one of our first dates,
he mentioned that he was eplieptic. He
didn't go into detail regarding how it
affects him as an individual, and I did
not feel that I knew him well enough at
the time to ask questions.
Now it seems that things are going really
well between us and we are starting a
great relationship that will last for at
least a while. Since it looks like we
will be spending a good amount of time
together, I have been wondering about his
epilepsy, and thinking about discussing it
with him. The most pressing issue to me
is I would like to know what to expect if
he ever has a seizure when I am with him,
and how he would like me to handle it.
I have no idea about the frequency or type
of seizures he tends to experience. He
has only mentioned epilepsy a couple of
times and usually in reference to pointing
out what tends to be a trigger.
My question is should I initiate this
conversation? Or should I wait for him
to bring it up in his own time? On one
hand, I don't want to pry into something
that I feel is pretty personal, and I
certainly don't want to make him feel
uncomfortable. On the other, I would
rather be a bit informed and prepared
should I ever be present while he has a
seizure. I do care about him and I
would like to do what is in his best
interest here.
I know no one can predict how one
individual feels about this, but if anyone
would not mind sharing with me his or her
own opinions and experience, I would
greatly appreciate it.
Thank you
again!
well you could bring up the but do it in a
nice way if that makes since. Just let
him know your concerned about this.
Explain its not really an issue but you
would like to know more about his type of
seizures so you know what to expect or do
to help him it really all depends on the
type of seizures and the frequancy of them
good luck on ur relationship I have had it
since birth and im not afraid to tell
anyone about it but as a young child I was
concidered contagous bye other kids so
that could turn people off from talkin
about it.
