Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
I Have Tried Them All..... Posted: 01-16-05 08:23am
Hi,
i haven't posted in a long time,(
computers been down and so have i)
i have tried all the seizure meds and the
combos the doc can come up with.
Sometimes they work and sometimes they
don't, but usually only for a sort period
of time. As the doc keeps calling it the
"honeymoon" period.
A couple of months ago I was at my wits
end, ready just to have my whole brain
removed,
when my doc suggested I try a "really"
old med that noone uses any more....
Peganone.
Is anyone else on it???????
The pharmacy had to special order it for
me even. I have slowly increased my dose
i'm up to 2000mg a day, and i'm doing
good.
(i'm also still on 100mg of topamax)
the side effects are not that bad, I have
a hard time sleeping, mild headaches, and
my muscles hurt a little. But nothing
that I can't deal with.
Any input would be great,
thanks,
jill
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Thanked:0
Posted: 01-17-05 11:16am
Hey jill, I have heard of others using
some old school meds and having success!
Great that you can deal with the side
effects! I sure hope the peganon keeps
doing ok for you!
Hang in there. You can talk to the neuro
about melatonin to see if that would help
you sleep. It is an otc thing. Some
neuros love it, some do not. My son uses
it and it really helps with sleep.
Sorry no experience with that med,
though....
Hang in there! Hope this lasts much
longer than the honeymoon phase!
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 01-17-05 12:03pm
Thanks for the encouragement, when the
meds are the only way to handle the
seizures and you bounce around on them it
gets to be a big pain.
I'll inquire about the melatonin.....And
let you know.
Thanks again,
jill
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