I would appreciate anyone's thoughts on
this topic. I just spent the majority of
the weekend with my boyfriend (he is the
one who has lupus) going to eye doctors.
He was seeing "floaters" and color bursts
in one of his eyes. One of the doctors
seemed to be surprised that he could still
see at all. We went to a specialist who
seemed to think that his optic nerve was
inflammed, so they increased his
prednisone from 35mg up to 80mg (which is
so depressing since his other doctors
thought he was doing better and we were
excited to have his prednisone reduced).
Has anyone else experienced anything like
this before. This disease is scary
enough, I don't want to worry about him
going blind now!
Help!
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cathyM
New User, Becoming EHEALTHy
Joined: 29 Jan 2005 Posts: 1 Location: ILL
Vision & Lupus Posted: 01-29-05 14:53pm
Hi,
my name is cathy. I have had lupus since
early 80;s. Not diagnosed officailly till
1996. In 1999 I had my first time with
optic neuritis . So I can realte to what
yur boyfriend is dealing with. The pred
will help,... But time only improves it .
Usually whatever vision you loose &
doesn;t return in first few weeks that is
how yu remain. Optic neuritis from my
experience is quite unpredictable &
very painful... I wish you both well...
Hugs, cathym
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HangNguyen
New User, Becoming EHEALTHy
Joined: 29 Mar 2005 Posts: 18 Location: Bay Area
Vision & Lupus Posted: 03-29-05 22:43pm
Hmmm...My vision has been very unstable.
I don't know if I have lupus or not. I
have astigmatism and nearsighted, but
lately at night times I see blure vision.
Is that lupus or it's time to change
prescription lenses ? I do have family
history of lupus. I tested positive for
ana. But i'm not sure if its flare up or
not. Any suggestions? If I were to see a
specialist in rheumatologist, would he/she
know? Or should I see specialist in eyes
doctor?
