Lying to the Family And Doctors

Is your husband on any medication ? If so is the reason for him being seizure free?
My son is seizure free for 3 years but he is on depokote
well atleast he was till he took hisself off 3 weeks ago. And his doctor has scheduled him for a eeg in november. I called his doctor and told him he took hisself off med and needed a appointment to reevaluate him.


So my next ? Is , does his doctor ever run test on him , eeg , blood levels took?
If not why?

I would call his doctor and tell him he has been seizure free for 2 years unless its because he is taking meds that is controlling his seizures.
Hope this helps
adamsmom

He is on depakote. Anytime the doctors want to run any test he avoids them
by missing the appointments ect. What I don't understand is why he tells his mother that he still having trouble when he's not.

Well sounds like to me the doctor needs to insist on tests or stop giving him perscription for depokote untill tests are ran.
Depokote can cause liver damage that is one of the reasons for blood levels to be took every 6 months.
Also to find out if he has enough med in system to keep the seizures at bay. Which seems to be the case here.

I dont understand why the doctor does not insist on bloodwork especially since there is a risk of liver damage.

You should tell your husband about the liver damage and then maybe he will get test ran.

Has he been told he by doctor he could outgrow the seizures and in order to find that out is to take him off his meds every yr or 2 to see if he has a seizure?
That is the case with my son .
He is told he could outgrow the seizures and so its time again to take him off meds to see.

Your husband sounds like he is scared of having another seizure.
You both need to have a conference visit with the doctor and discuss his case in full

you say his mom freaks out about everything , maybe he is just feeding her all the lies for attention.

Good luck
let me hear from you again ,
adamsmom

Honestly I would tell his family and doctor the truth. If he has been seizure free for 2 years there is no reason why he can't work. He is getting ssi when he doesn't even need it and I think that is wrong because there are people out there that do need it and are not getting it.

I believe you should first tell your husband you are calling his doctor and that you are requesting a conference with the 3 of you for the reason your husband has been seizure free .
I would let your husband tell his family .
You dont want them ganging up on you for telling them.
Good luck
adamsmom

it is too bad your husband seems as if he gave up. I ve had epilepsy since 4, I was almost to that point but luckily, I got out of it. He needs to get some self respect and stop feeling sorry for himself. You can only help by supporting him, don't give up.

In life a taker never wins keep this to yourself his epilepsy will return devorice this man.

What kind of advice is that to divorce . That is no solution.
A marriage does not have to end just because of a illness.
Her husband needs medical help and counseling.

Please talk with your pastor about this , if you love your husband , you will get thru this
blessings
adamsmom

Hello pasture,i called you today because I over slept for church.I don't work and i'm getting free money.I get money for epilepsy I don't have.My wife thinks I should go to work.Why go to work ,if I get the money for free.I didn't hear you pasture,what?"your purpose of life,is to give not recive.Your epilepsy will come back if you don't give."what do you think i'm lazy or something!!I'm finding a new church!!

Uuhhmmm!!!!
If you had read all the post you would know her husband has epilepsy and his seizures are under control because he is on medication.

He is just letting his family think and his doctor that he is still having seizures so he can collect a check.

Are you a christian ?
If so im confused about your remarks.
Adamsmom

"adamsmom"my epilepsy doctor belived people were seeing him just to get free money. So I felt "what should I do" I asked him. He said to go to st.Louis barns hospital. Stay for a week and take testing. So I did. They said " you are epilepitic and we think you should have brain surgery" so I did. During the surgery, there was a bright light. I knew what it was. And I did not want to go. Why? Because I wanted to take care of my daughter. I know now the purpose of life. It is to give to people.If I went to surgey for me, me, me I would have not recovered. I am epilepsy free, and take no medicine. I talk to god every day, and I joined a chuch and I never have missed.

Hi dr457,
i read your post with interest. I too have epilepsy and cant work full time because of it.
What i'm wondering is this; do you think that your husband could be behaving this way because he is scared of going back to work? Many people with this condition feel that way. They get worried that the stress of being in the work place again might trigger an attack. The thought of having to deal with a sz in front of work mates is scary beond belief!

Just because he has been clear of e for while dosn't necessarily mean that your husband has been cured of it, as i'm sure you are well aware.

Try getting him to his doctor by all means, but in a subtle way, as if it's his idea to go kind of thing. What i'm trying to say is try not to pressurize him. Sorry i'm sounding bossy, I didn't mean it to come out that way.

It can be a really daunting experiance, going back to work after being away for so long, for the best of us,but if there is that added problem to overcome as well, namely epilepsy, the fear becomes massive.

Lying to his family and doctors could be a part of the same problem as not wanting to go back to work. Have you ever thought that by saying, "i'm ok now" he might think he will be tempting fate to knock him down with a sz?

That kind of thought is a very common one. Epilepsy leaves a lot of us, if not all, feeling very insecure. No matter how we portray ourselves to others as confident on the outside, quite often on the inside we are trembling wrecks. That's the thing about e you can't see it, but it dosn't mean it's not there.

I truly hope your life gets better, you have a lot to deal with, I can see that from the way you write.
Love and best wishes to you all,
miss ruby.Xx

Miss ruby you have epilepsy and you can work full time so go to work lazy.