Hi, i'm a male in my 30s. My father has
lupus (the kind that affects the skin) and
over the years i've thought I might have
it too but the more severe kind.
However whenever i'd bring it up with a
doctor I was told no, it's not hereditary.
Well recently I had a skin problem (a
painful red blotch on my arm) and while
trying to calm my fears about whether it
was cancerous or not I decided to google
lupus and when I did I came across a
little tidbit that said that "it is
suspected that people inherit something
from their parents that predisposes them
to develop lupus".
So now i'm back to thinking that lupus is
again a primary suspect behind the list of
unexplained medical problems that i've
experienced throughout my life.
My first question is this - would you
recommend going through my primary doctor
(who unfortunately i'm pretty sure is
convinced i'm a hypochondriac) or going
directly to a specialist? If so, what
kind of specialist?
Also should I set up an appointment right
away or should I wait until my symptoms
reach their peak (or thereabouts)?
Finally any advice on what I should say to
the doctor? Should I go through my whole
medical history (see below) or should I
narrow it down to just a few major items?
Here are some of the symptoms in case that
would be helpful:
* bouts of chest pains going back to
childhood along with mouth sores
* often have felt lethargic for no
apparent reason
* a weird thing sometimes occurs where
when I swallow my throat makes a funny
noise, like the noise of a growling
stomach..This has continued on and off
over the years but it has been rather loud
and consistent over the past week (i think
maybe it gets worse in cold weather)
* whenever i've gone bowling during the
last 10 years or so (about 3 or 4 times) I
can't make it through half a game without
my fingers killing me, no matter what size
ball or what size the holes
* have become very sensitive to sunlight
and it seems like I always feel sick if
i'm exposed to the sun for any extended
period
* don't know if this could be relevant to
lupus or not but a couple years ago I
started having numbness problems in that I
would wake up occasionally with the left
side of my head feeling numb (i've always
had a general feeling of weakness around
the left temple area, going back to at
least my early teen years)
* related to that perhaps is that when I
was in college I had ringing in my ears
and the ent prescribed lipoflavonoid which
had the following side effects: joint
pains and creaking, short-term memory loss
and loss of concentration, shortness of
breath, and more of a weak feeling on the
left side of my head - as though the
tissues or fat cells (or whatever)
surrounding the artery suddenly expanded
and constricted the flow of blood to the
brain...In short it was like all the
symptoms I had in the past suddenly become
much more pronounced (and no, it didn't
help the ringing :p)
* i've had blotches or lesions on my skin
which seemed to be a harbinger of pain in
that general area (for instance in the
recent skin problem that I mentioned at
the beginning of this post it was followed
by a throbbing pain throughout my left
bicep that would sometimes last for
hours...And even more recently i've had a
similar-looking place appear on my chest
and there has been pricklings of pain
through that area as well)
* a year ago I had red pinpricks crop up
on my skin (mostly on the back of my
hands) and it made my skin there feel as
though it were on fire for a short time
* generally whenever I have an onset of
whatever it is I have, the pain travels
gradually throughout my body, as though
doing as much damage as it can in one spot
before moving on to another - for
instance, maybe a few days or so of pangs
on the left side of my chest, then the
right, then maybe down to the stomach, the
kidneys, etc.
Sorry about the length of this - it went
longer than I had intended. Anyway
mostly I guess i'm just curious to see
what you would do if you were me (i.E.
Would you see a dermatologist, an
internist, a general practitioner?).
Thank you for reading this and look
forward to any suggestions/tips you might
have.
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lwyswright
New User, Becoming EHEALTHy
Joined: 18 Jun 2004 Posts: 18 Location: Arizona
Hereditary Lupus Posted: 01-25-05 17:16pm
I would suggest you ask your primary doc
to run some blood tests on you. Now, the
tests for lupus do come back negative for
lupus quite often. A lot of doctors will
take that to mean that you don't have it.
Don't rely on the blood test alone.
There are 11 criteria, which your doctor
should know.
Seeking out a rhuematologist would be
helpful to you as well. Also a
dermatologist. I personally have also
spent some time with a hemotologist
because along with my lupus came a string
of blood clotting disorders. I also
see a nuerologist for the painful migrains
that I get quite often and a dentist that
knows about the affects of lupus on your
mouth.
These are some suggestions of where to
start. Good luck to you.
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Mooncalf
New User, Becoming EHEALTHy
Joined: 09 Jan 2005 Posts: 2
Posted: 01-25-05 18:33pm
Thank you for the suggestions
lwyswright...I'll definitely look into
getting some blood work done next time I
see my doctor and a rhuematologist sounds
like a good idea too.