A friend of mine has marfan syndrome. I
was just wondering if anyone could tell me
more about it. I looked it up, but i'm
just trying to understand it better. If
anyone has any information, that would be
great. Thanks.
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justacanadiangirl
Extremely EHEALTHy
Joined: 19 Nov 2004 Posts: 1803
Posted: 02-02-05 04:23am
Anyone who's good at searching for stuff?
Can u help? I tried looking it up, but I
keep getting the same stuff. I don't know
what else to try...
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nottingham
New User, Becoming EHEALTHy
Joined: 18 Jan 2005 Posts: 7 Location: Southwest Missouri
Marfan Syndrome Posted: 02-02-05 08:02am
Did you google it? I did and a whole
bunch of stuff came up. I think you'll
find all you need there.
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Klem
New User, Becoming EHEALTHy
Joined: 27 Jan 2005 Posts: 13 Location: upstate NY
Posted: 02-02-05 09:46am
Many times if you need to search a subject
you need to punch in research (your
subject) research.
Marfan syndrome. ..Haven't heard that in
awhile, it is sometimes associated with
genetic disorders like homocyctenaria.
It's becoming more prevelent in societies
with compromised heart/blood vessels. It
just means a large (over genetic
forebearance), person. This can be
concerning due to taxation of heart and
vessels that tend to build up platlets
along vessel walls.
Have you talked to your friend about this?
They'll most likely be willing to share
and kind of complimented that someone
shows enough interest to ask.
Hope this has been helpful.
Klem
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nottingham
New User, Becoming EHEALTHy
Joined: 18 Jan 2005 Posts: 7 Location: Southwest Missouri
Marfan Syndrome Posted: 02-03-05 07:49am
I'm not sure where klem got his info but
what I read about it was a connective
tissue disorder that usually results in
being taller than normal and ir many other
symptoms form mild to severe. Look in the
national marfan foundation website at www.Marfan.Org/
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justacanadiangirl
Extremely EHEALTHy
Joined: 19 Nov 2004 Posts: 1803
Posted: 02-06-05 02:50am
Thank u. I know I can ask him about it,
he always tells me I can ask anything, but
I just want to bring it up at the right
time, not just out of the blue. But thank
u for the info. Hopefully i'll be able to
understand it a bit more now.
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sharron ruddy
New User, Becoming EHEALTHy
Joined: 01 May 2005 Posts: 9 Location: glasgow
Marfan Syndrome Posted: 05-06-05 03:38am
:) hi there just had to replay to your
post I to have a son who has marfan
syndrome and he is fit and healthly and is
6feet 4in tall and it does not bother him
at all the only thing he has to do is get
an ecg every two years to check his heart
is okay and apart from that he has a bit
of back pain now and then. He is 19 and
doing great so far and he works all the
hours god sends him :)
