Seizures And Hearing Voices.... Posted: 02-02-05 23:08pm
Has anyone out there experienced hearing
voices during a seizure??? It's very
scary
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sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 02-03-05 03:13am
Yes,
the voices are usually heard when
the seizure is a partial seizure, ( often
last thoughts running through your mind)
or the voices muffeled of onlookers.
Sometimes I have even heard my name being
whispered to me like someone is inside my
ear.
My dr says that is the medication and some
types of antiepileptic medications cause
slight changed in mood, and behaviour.
I have the temporal lobe epilepsy. I take
epilim and keppra for mine. And
innitially when taking medication it was
hard for me to adjust, my body was finding
it hard to cope and so was i. There are
many more ppl hear that are epileptic and
that do hear voices when they have
seizures.
Its not uncommon so dont feel alone.
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feelgood
Experienced User , Rather EHEALTHy
Joined: 09 Sep 2003 Posts: 56 Location: Calabasas
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Posted: 02-05-05 14:08pm
Thx sami, but the voices I hear are not
from onlookers....It is someone talking to
me from somewhere else and telling me
something terrible is going to happen
unless I make a deal....It's hard to
explain and very scary..........I'm going
to change meds, maybe that's what causing
this
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happiness
New User, Becoming EHEALTHy
Joined: 05 Feb 2005 Posts: 21 Location: America
Posted: 02-05-05 15:00pm
Please make sure your doctor knows this
stuff,
its been experienced and can be
hallucinations
sometimes. And you just need to have
someone
help by knowing incase its considered to
be the
meds.
Happiness
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kayakmom
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Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Posted: 05-25-05 19:24pm
Bump for a friend
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feelgood
Experienced User , Rather EHEALTHy
Joined: 09 Sep 2003 Posts: 56 Location: Calabasas
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Posted: 05-25-05 23:40pm
What does that mean "bump for a friend"
????
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kayakmom
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Joined: 21 Jun 2004 Posts: 252 Location: Conn
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Posted: 05-26-05 05:39am
A friend needed to see this information.
This post had moved to page two. So I
posted to bump it up.....
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GratedTopping
New User, Becoming EHEALTHy
Joined: 24 Aug 2005 Posts: 2
Posted: 08-24-05 08:23am
"has anyone out there experienced hearing
voices during a seizure?"
during a seizure, that's certainly not
uncommon. The brain's going haywire and
lots of strange things happen (odd smells;
sensations). For me, at the beginning, I
have a 'flood of thoughts' and 'hearing'
things. The thoughts are usually about
how something bad is happening and that
i'm going to die. It's quite mysterious.
I always say "oh no!" and then pass out in
a minute or so.
The meds aren't causing voices during a
seizure, it's created by the brain's
temporary malfunctioning.
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cameo
New User, Becoming EHEALTHy
Joined: 30 Aug 2005 Posts: 18 Location: Salem, Oregon USA
Voices? Posted: 08-30-05 17:08pm
I've never heard voices and i've been an
epileptic for the past 30 years.
I dunno know?
Cameo
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Cirquel
New User, Becoming EHEALTHy
Joined: 21 Oct 2005 Posts: 5 Location: Canada
Re: Voices? Posted: 10-22-05 12:06pm
Yeah, i'm like you -- I never heard voices
either.
"... The voices I hear are not from
onlookers....It is someone talking to me
from somewhere else and telling me
something terrible is going to happen
unless I make a deal....It's hard to
explain and very scary..."
i can relate to the voices before a
seizure and the idea that ' something
terrible is going to happen ', but I don't
quite understand the 'deal' part? Yes, it
is very hard to explain and very scary, I
have to agree... I suffer from epilepsy
as well as schizophrenia... When I have a
psychotic episode I also hear voices,
hallusinate, etc. , though they're a bit
different then the ones during the aura,
and and it's during these psychotic
episodes that I can relate to the idea of
'making a deal' or something terrible is
going to happen... The voices I hear
during an aura aren't usually
understandable, but I do know i'm being
talked to... I also know it's not others
talking to me, as i've had seizures alone
w/these auras & still heard these
sounds... These 'voices'... I'm not by
any means trying to scare you or say you
may be schizophrenic, I just think the
link is pretty interesting and might be
worth looking into, who knows?
Hi queen of complications, thx for your
input..How did u find out that u were'nt
just having seizures but also schizo?
When this happens to me i'm always alone
in my house and my head turns around and I
can't stop it when I hear the voices and I
try to stop it and I think i'm saying out
loud "no please stop", but I can't recall
this type of thing happening outside or
with people around..Outside I have a
regular seizure .......S.
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Queen of Complications
New User, Becoming EHEALTHy
Joined: 24 Oct 2005 Posts: 13
Sorry So Long, I Had Alot to Say Lol Posted: 10-25-05 15:10pm
Well, I think what i'm trying to say is
there's a 'difference' for me in re of the
voices or sounds I hear during an aura vs.
The voices or sounds I hear in a
psychotic state... The aura sounds are
less understandable & harder to make
out, where as the psychotic episodes they
seem more prelavant... Easier to make out
what's being said to me or what i'm
hearing during a psychotic episode...
The things I hear during an aura are also
associated w/other symptoms that come
along w/the onset of a seizure, which
tells me it's not 'all in my head', but in
fact an aura... Things like nausea,
dizziness, or feelings of deja vous... I
don't experience these things in a
psychotic state... If anything, I feel
'numb' when in a psychotic state...
In a psychotic episode, the sounds &
voices are alot clearer and seem to make
more 'sense'... It's not so much a
confusion of thoughts as much as it is
during an aura... In these psychotic
episodes, if/when I hear these 'voices',
it's not so much someone 'talking to me'
as much as it is someone 'commanding' me,
or telling me 'what to do' and 'how to do
it'.. If I don't comply, I suffer
'consequences'.. This can consist of
hearing the same thing over & over
& over again, like a broken record...
Other times i'll get 'degraded' for not
doing 'as I was told'... And other times
I feel physical pain or feel the need to
inflict pain upon myself in order to 'make
up for' not listening or complying... And
yet, there's been plenty of times when i'm
'commanded' to harm either myself or
someone else... Doesn't matter who, could
be a loved one, could be a complete
stranger... Fortunately I have enough
'common sense' not to follow through on
these acts, but again, know i'll soon have
to 'suffer the consequences'...
It's this, as you called, 'making a deal'
that really caught my attention.. I'd
like to know more about it if you're
willing to share? This 'deal' you refer
to sort of reminds me of the 'commands'
i'm given... The 'deal' is, if I comply
to the commands, the voices are 'pleased',
and if not, i'm 'punished'...
You also asked, '... How did u find out
that u were'nt just having seizures but
also schizo?...' truth be known, I saw
alot of Dr.'s, both neuros & psychs
over the years... Each one wants to say
it's 'caused by this' or 'caused by that'
and they never seem to agree w/one
another... I didn't start having seizures
until I was a pre teen, w/the onset of
puberty... Although, I was having petite
mal seizures prior to my first grand mal,
just didn't realize they were seizures ...
As for the schizophrenia, i've always
suffered from that, as long as I can
remember... My parents always blew it off
as my having a 'vivid imagination' and
never gave it a second thought... I would
tell them, for example, how the 'evil
refrigerator' was 'talking to me' and
'telling me to do bad things'... Again,
they laughed and just blew it off as my
imagination...
The older I got, the worse the voices
& halluciations got until a week
after my 18th birthday when I attempted
suicide for the first time... The voices
told me that I suffered from these
seizures because of 'all the bad things
i've done in my life' and for 'not
listening' and I 'needed to die'...
Fortunately we were found ( my girlfriend
& I did this attempt together ) in
time and were able to get us to the
hospital and make us drink that awful,
awful, charcoal, yuuuck...
From the hospital I went to the state
mental institution ( that was the first
time I was locked up ) and it was there
that they diagnosed me as 'bi polar' and
treated me as such... After numerous
years & medications that did me
absolutely no good, I did some research of
my own... I was convinced I was not in
fact bi polar, but something else... The
bi polar profile just didn't seem to fit
me... Through all my searching I found a
specific condition of schizophrenia called
'schizoeffective'... From what I
understand, both schizoeffective & bi
polar are very similar in some ways... I
brought this to my Dr.'s attention who
referred me to a specialist who said, yes,
in fact that was the case... I was not bi
polar but in fact schizophrenic...
It was then that they started treating my
psychosis w/a variety of different drugs
and combinations until they found 'just
the right one'... Well, the 'right one'
didn't always work either & I finally
threw my hands up in the air & quit
taking all my meds except for the anti
seizure medication... And that's where
i'm at today... I take lamictal for the
seizures, combined w/some folic acid...
As for the voices & hallucinations,
when I see something a bit out of the
ordinary I ask hubby if he saw that too...
If he hadn't, I know it was 'just in my
head' and if he did in fact see it, I knew
I was 'ok'... If I see things & have
a feeling of nausea or deja vous, then I
know it's an onset of a seizure... The
voices still remain as well as the idea
that people are not only talking to me,
but about me... I'm also still
'commanded' to do things or act a certain
way but i've recently discovered the power
of refusal... Mind over matter I guess
you might call it... Fine, punish me if
you will, but I will not do that...
Whatever 'that' might be... I really
believe I have the power of esp & also
think we all have it, we just don't know
how to use it yet... But, when I tell the
docs about this, they say this is also
'all in my head'...
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feelgood
Experienced User , Rather EHEALTHy
Joined: 09 Sep 2003 Posts: 56 Location: Calabasas
Thanks: 2
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Posted: 10-25-05 18:06pm
Hi queen, I too was having petit mal
seizures and wasn't aware that infact they
were seizures until I had my grand mal
during the birth of my daughter and I
don't remember a thing about giving birth,
anyway I get nausea, confused and
sometimes dizzy after my seizures
...........During these other episodes
these voices are trying to convince me to
make a deal and it's something I don't
want to do while my head keeps turning and
i'm trying to stop it, I also think my
heart is pounding...1 time I told my
doctor (neurologist) and he thought it
sounded like a panic attack and then
another time he said if it continues he'll
refer me to a pychologist ....What city do
u live in? S.
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HennieSnyman
New User, Becoming EHEALTHy
Joined: 30 Oct 2005 Posts: 24 Location: Arusha, Tanzania
Posted: 10-30-05 15:36pm
Hi there.
I only heard the voices while I was in
school (puberty)
i'm 34 now.
Aparently sometimes, according to my mom
and sister, just before I lose
consciousness and start shaking, i'd start
screaming "no no don't don't". Then i'd
black out and have the shakes for a couple
of minutes, followed by 20 hours of deep
sleep.
I can't remember if it was one voice or
more, male or female, I just know it was
scary as hell and very threatening in
nature. The one thing I remember was the
fear. The utter terror. Hair raizing
type stuff.
When I was 17 I told some people at my
church about the scary voices. Big
mistake. They called some guy, had me on
a chair with ten "men of god" praying and
laying hands on me and speaking in
tongues.
It's a miracle I didn't have a seizure
right there from the stress.
So please be careful who you discuss this
with offline.
People can be very narrow minded
sometimes.
And then off course there are the voices
of the people trying to help me after i'd
fallen down. These are very different and
easy to distinguish.
I never confuse the two. I simply
can't.
Just to prove a point I also heard the
scary voices when I had seizures on my
lonesome at home.
Voices1 = prior to losing consciosness and
very scary & threatening.
Voices2 = after losing consciousness and
always very loving, caring and familiar,
usually just my name uttered by family or
friends.
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Jodilynne
New User, Becoming EHEALTHy
Joined: 26 Jun 2006 Posts: 12 Location: , WI
Hearing Voices During a Seizure Posted: 08-31-06 08:12am
I have temporal lobe epilepsy.
It is interesting, if you google on this
and psi, you will find many hits. Psi is
a new term for paranormal or pyschic
behavior. Those voices in
your head may be something more of a
paranormal. Something to consider.
I just stumbled on to this site.
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tinyP
New User, Becoming EHEALTHy
Joined: 24 Mar 2008 Posts: 1
Posted: 03-24-08 20:14pm
hi i have heard voices but i dont know
what their saying to me i thort i was
going crazy until i found this syt, its
scary
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