OMG I can't decide which is worse. Posted: 07-03-08 21:07pm
I was dx'd two days before chiristmas and
I've been on avonex since January of this
year. I do not get my shot every week,
mainly because the side effects I get can
only be described as "pure hell". Chills,
tremors, muscle oversensitivity, aches
like someone is drilling holes into my
bones, and my muscles ache so much a
simple hug from my children brings me to
tears. A few weeks ago I had thought that
a nice hot shower may help the muscle
aches, but it only took about 10 seconds
in the shower for me to get out because it
felt like someone was stabbing me with a
bunch of little knives.
Well, lately I have been having blackouts,
i'll be out for a minute or so, then wake
up, not know where i am, what i'm doing,
ect. My family says it's because i'm
missing my injections. So, my mother and
husband have now decided that I cannot be
trusted to make my own medical decisions
regarding this and are now MAKING me take
it every week. Now that's fine and good,
whatever, I know deep down they're only
concern is me, but I have 2 small
children, they need mom, not 5 or 6 days a
week, but ALL week. My husband sees how
bad i feel, but does not hesitate to still
ask "honey, what are you making for
dinner" or "can you get me a beer?" while
i'm curled up in a fetal position, shaking
uncontrollably, buried in a mound of
blankets.
I just don't know what is worse. With the
ms, I'm exhausted all the time, no matter
what, the doc gave me provigil, but it
doesn't work. With the avonex, i feel
like hell and am still exahusted. Any
words of advice?
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nicolebp
New User, Becoming EHEALTHy
Joined: 23 Aug 2008 Posts: 1
less common side effects Posted: 08-23-08 20:27pm
I just took my 6th shot of avonex. I've
basically gotten used to the flu side
effects and they have gotten better with
time. But as someone else mentioned in
this thread, I have a strange muscle
soreness, fatigue and just generally
feeling crappy for a few days after each
shot. I also have noticed very strange
abdominal problems since I started the
meds. without giving TMI, I have what
feels like a very minor stomach flu for a
few days after the shots, lots of stomach
pain, etc. Anyone else experiencing these
side effects?
