Anybody Been Told They Have Lupus And Ms ?? Posted: 11-01-03 12:30pm
I was diagnosed with rheumatoid arthritis,
fibromylagia, sjogren's, and raynauds in
1998, I quit going to my rheumy, until
this spring when I started feeling sick in
april, falling around, pressure headache
that nothing would help, couldn't think
right, slow drawn out talking, they did a
brain mri and found plaque in the white
matter of my brain and said it showed a
collagen vascular disorder with a
demyelinating process. This all lasted
until august, I still am dizzy and fall
around. Now my doc says I have ms and
lupus, they have put me on plaquenil 400
mg a day. My blood work shows + ana
1:160 speckled pattern, I have positve
anticardiolipin antibodies ( what the heck
is that ) 1 second away from the lupus
coagulant being positive, spinal tap is
negative, ssa is positive. I also have
tachyardia, heart rate is 157 beats a min.
At rest.
I've also had one doctor to tell me it was
all in my head, just stress.
Help !!! I need answers from someone
thats going through this too.
Melissa
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 11-02-03 18:42pm
Hi there and welome!
...Keeping in mind that the lupus
anticoagulant and the anticardiolipin are
both antiphospholipids antibodies
(aps)...Read the following, I think it
explains things very well.
the antiphospholipid syndrome is a
disorder of the immune system that is
characterized by excessive clotting of
blood and/or certain complications of
pregnancy (premature miscarriages,
unexplained fetal death, or premature
birth) and antiphospholipid antibodies
(cardiolipin or lupus anticoagulant
antibodies). Patients with
antiphospholipid syndrome have developed
abnormal symptoms while having
antiphospholipid antibodies detectable in
the blood.
Antiphospholipid syndrome is also called
the phospholipid antibody syndrome.
Antiphospholipid syndrome has been
referred to as hughes syndrome in honor of
the doctor who first described it.
It is important to note that
antiphospholipid antibodies can also be
found in the blood of individuals without
any disease process. In fact,
antiphospholipid antibodies have been
reported in approximately 2 percent of the
normal population. Harmless
antiphospholipid antibodies can be
detected in the blood for a brief period
occasionally in association with a wide
variety of conditions, including
bacterial, viral (hepatitis, hiv), and
parasite (malaria) infections. Certain
drugs can cause antiphospholipid
antibodies to be produced in the blood,
including antibiotics, cocaine,
hydralazine, procainamide, and quinine.
Nevertheless, the antiphospholipid
antibody (a protein) is not considered a
normal blood protein and has been found in
patients to be associated with a number of
illnesses. These illnesses include
abnormal clotting (thrombosis) of arteries
(stroke, infarction) and/or veins
(phlebitis), premature miscarriages
(spontaneous abortions), abnormally low
blood platelet counts (thrombocytopenia),
purplish mottling discoloration of the
skin (livedo reticularis), migraine
headaches, and a rare form of inflammation
of the nervous tissue of the brain or
spinal cord, called transverse myelitis.
Antiphospholipid antibodies have also been
detected in over half of patients with the
immune disease systemic lupus
erythematosus.
Researchers are recently also finding that
there are patients with slowly progressive
memory problems and patients with a form
of "atypical multiple sclerosis" and
antiphospholipid antibodies detectable in
their blood.
I hope this helped! Hugs,
ladybrannon
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003 Posts: 191
Lupus And Ms? Posted: 11-03-03 19:59pm
Hi all, I was watching montel williams the
other day and someone said they knew of a
person who had both. I was confussed, I
didn't know you could have both lupus and
ms?
Sharon
|
daisy3
New User, Becoming EHEALTHy
Joined: 29 Nov 2003 Posts: 9 Location: Pennsylvania
Posted: 11-29-03 17:56pm
Hello,
i was first dxd with ms. Then sle lupus,
fibromyalgia, tmj, sjogrens. Later the
ms was changed to possible ms (at that
point who cares ) because I was dxd
with hughes (aniphospholid blood
disorder). Hughes has many of the same
symptoms as ms. They are all autoimmune
disorders. When your immune system
starts to go crazy it is very common for
you to develope more autoimmune disorders.
Sle that affects the central nervous
system causes you to have many of the same
symptoms as ms. It does not hurt to get
several opinions from other drs before you
start the injection treatments for ms.
Educate yourself and make sure you ask a
lot of questions. I like to test my drs
knowledge ! You need to
educate yourself in order to partcipate in
your treatment. Let me know how you do
! Daisy3
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Schizophreniahealth
This page was last updated on June 11, 2008
) because I was dxd
with hughes (aniphospholid blood
disorder). Hughes has many of the same
symptoms as ms. They are all autoimmune
disorders. When your immune system
starts to go crazy it is very common for
you to develope more autoimmune disorders.
Sle that affects the central nervous
system causes you to have many of the same
symptoms as ms. It does not hurt to get
several opinions from other drs before you
start the injection treatments for ms.
Educate yourself and make sure you ask a
lot of questions. I like to test my drs
knowledge 
! You need to
educate yourself in order to partcipate in
your treatment. Let me know how you do
