have been given the option of steriods to
calm down my crazy system - right now no
sight in one eye, no feeling from the
waist down and numb right arm. It's not
totally disabling but it's been two months
now and i'm really fed up with it all.
I've had some feedback from people saying
definately go for it cause it will sort it
out but i've always refused steriods in
the past mainly because of the possible
side effects.
Does anyone have any feedback from
experience of i/v steroids? Like I said
I am so fed up with it all now that i'm
probably just gonna go for it but I
thought i'd ask you all first.
Any advice very gratefully received.
Cheers
ste
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Ste
New User, Becoming EHEALTHy
Joined: 30 Jan 2005 Posts: 12 Location: Sydney
Done...no Change! Posted: 03-07-05 17:47pm
Well, had the steroids (prednisilone
1000mg i/v x3) and absolutely nothing's
changed. I know it isn't a 'cure' or
affecting the ms in any long term way but
I just wanted all the symptoms gone and
now it's been three day's since I finished
the course...Nothing. No change at all.
I'm gutted :( having spoken to others
that have had them I guess my hopes were a
little too high.
My neuro did mention that he would see me
in three weeks to establish whether I
needed some more and obviously I will
which also sucks cause I don't think i've
ever been as down as they made me feel
yesterday.
Has anyone else out there experienced not
a lot from steroids and then found them
effective later on? Right now I feel
that remission is a pipe dream and i'm
totally fed up.
Listen to me - whine whine whine. Please
feel free to ignore me completely!
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oopoopoop
Extremely EHEALTHy
Joined: 18 Mar 2004 Posts: 1260 Location: ,
Thanks: 46
Thanked:2
Posted: 03-11-05 07:53am
Hi there -
steroids are sort of anti-inflammatories,
so maybe there isn't any benefit straight
away. I don't have any experience with it
myself. I've had the optic neuritis, lost
about 50% of vision and almost all colour
vision, in one eye. That was a year ago,
and now eyesights seems totally back to
normal -- that was without any treatment
at all.
One thing you'll probably need to develop
is patience. The disease can be pretty
unpredictable, so you need to learn about
your body and how it works. Good luck.
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whiteflag
New User, Becoming EHEALTHy
Joined: 15 Mar 2005 Posts: 18
Steroids Posted: 03-16-05 16:04pm
Hey poopoo I know that u said u regained
yr sight back without any treatment..
Wanted to ask, how long did it take for
your sight/eye to return to normal?
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steelers1634
New User, Becoming EHEALTHy
Joined: 31 Jan 2006 Posts: 4 Location: ohio
I/v Steroids Posted: 02-02-06 18:50pm
I have had ms now for 16 years & iv
steroids is the only think that works for
me I am 43 just remember to take a high
calcium suppliment every day to ward off
osteoporosis
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Posted: 02-02-06 19:57pm
Hi there! Are any of you on the
injectables for ms ssuch as copaxone and
any of the others. If so, have they
helped much, I could not handle oral
steroids, all they did was made me fat! I
did do ok with the epdural steroid
injection with the marcain drip, I have
rsd but dr still feels I have ms. Along
with other medical problems, also optical
neuritis.
The best to you all!
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dawnbaldwin
New User, Becoming EHEALTHy
Joined: 02 Feb 2006 Posts: 2 Location: Ohio
Posted: 02-06-06 15:10pm
I've no experience with iv steroids but my
current neuro has me on a daily low dose
of oral prednisone (5 mg one day and 10 mg
the next on alternating days) and it has
made a world of difference for me. I've
been on it for 5 years and no adverse side
effects as of yet ... Bone density still
excellent, etc. Had much numbness and
tingling in my arms, thighs and torso and
my first neuro said, "live with it, you
have ms." ... Simply not acceptable to
me. This neuro is much more proactive
and i'm thankful for his 5 years of care
(i've had ms for 10 years). I was
ravenously hungry when I started and
really had to be careful to maintain my
weight (which I successfully did) and also
am diligent about exercise and calcium
supplements. Good luck with whatever you
decide.
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CLLP
New User, Becoming EHEALTHy
Joined: 16 Feb 2006 Posts: 3
Iv Steriods Posted: 02-16-06 00:54am
I have taken solu medrol iv more often
than I can count over the years. In the
past I had great relief from the symptoms.
In the last 7 months I did a 3 day round
and then later a 5 day round without any
results. My doctor had made me aware in
the past that a infection can curb the
results. It had happen before with a
simple bladder infection. I recently
found out I had an infection in my jaw
that is rare (i had it once as a
teenager). By this time I was barley able
to walk, I no longer was driving due to a
lack of vision and a large amount of other
symptoms. I was scared. I had surgery on
my jaw and recovered quickly. I just
completed a 3 day round, I believe its 1
grams a day, of solu medrol and its
amazing. Within 2 weeks I am up and
about. My balance is still poor but im
going to physical therapy to improve it.
I know this is long but when I first
became sick a woman that had ms for
several years "warned" me about steriods.
I avoided them as long as possible.
Thankfully I have a great doctor whom I
trust, so with her advice I tried them. I
have very little problems, inability to
sleep, yeast infections, and probably the
most bothersome is a terrible taste that I
get( metal mouth) I ve heard it called. I
have great success from the steriod iv and
very little side effects. Every person is
different but be sure you dont have any
infections and I pray you have some
relief. Hang in there hope this helps.
Chris
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CLLP
New User, Becoming EHEALTHy
Joined: 16 Feb 2006 Posts: 3
Steriod Iv~ Oops Posted: 02-16-06 01:01am
Oops sorry~ I know the reply was long but
I realized I forgot to add that alot of
people have problems with weight gain but
I shocked my doctor and actually always
lose weight after taking the iv. I had to
share that my weight is because I enjoy
the taste of food... With the taste that
I get I have not found anything that
covers the taste. It is easy to control
my eating. The taste usually resides
after 2 weeks. Ok I promise I wont add
more...Lol chris
