New to the Site And Lupus Posted: 11-03-03 12:13pm
Hello i'm linda mother of three boys wife
to hubby 33 years.
I think lupus was thrown at me very
freely. I'm seeing my doctor tomorrow.
And he better be ready to answer questions
and lots of them.
I seen a rheumatologist in march and
ignored his prescription as he said and I
was under the impresion they were for pain
and I can control the pain with tylenol
and don't want to take anything to strong
yet. Only mild pain yet. Sometimes I
believe I was misdiagnosed. I will
definantly ask for another opinion.
First rheumatologist said rheumatoid
athritis. This last one I seen threw me
lupus on the 17th of october. I asked
and now what do I expect what do I do.
What is the cause? I couldn't get no
answers. He told me to see my family
doctor. So I can't wait for tomorrow.
What are the questions I should ask?
Any help would be great as I just don't
know nothing.
I'm on a medication called hydroxyquine
which must have another name as I can't
find nothing on it. Is this a steroid?
And sorry for writing a book and asking so
much of your time.
Thanks to anything that might come up.
Please help is needed.
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
to Linda C Posted: 11-03-03 13:53pm
Welcome linda c!
It is great to meet you!
Lupus is very hard to diagnose. There are
some tests that you will definitely want
to know if they have done them and what
the results are/were:
ana
sed rate
c reactive protein
lupus anticoagulant (aps)
anti dna
anti-sm
anti- ro
creatine levels
bun levels
complete urinalysis
did the rheumatologist send you back to a
gp? Usually a suspected lupus patient
goes from a gp to a rheumy. Did I misread
that?
There are a host of things you will want
to take note of and ask. If you will pm
me, I will get you a wonderful document to
you that is as concise as possible and
will help at your doctor's appointment.
Hugs,
ladybrannon
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Linda C
New User, Becoming EHEALTHy
Joined: 03 Nov 2003 Posts: 3 Location: Ontario
Posted: 11-04-03 08:53am
Thank you lady and jeyney for pm it is
always helpful to know that someone knows
what we are going throught and how scarry
this can be. I wrote all those test down
to ask doctor about them. But the more I
read about it the more I realize that it
won't be a misdiagnosis I wouldn't be that
lucky. Oh well that's life. Guess it
could of been worse is the only way to
look at it.
Lindac
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Linda C
New User, Becoming EHEALTHy
Joined: 03 Nov 2003 Posts: 3 Location: Ontario
Posted: 11-04-03 11:13am
yes
i'm happy I just felt it in my bones that
it was a misdiagnosis and it was.
Nothing in the tests came back positive.
What happened last tests they were done in
the summer and I have a fry stand and when
I clean the grill I use an acid and that
sent my blood in a turmoil they think
because after retesting after being closed
for almost two months every thing came
back fine. Oh am I a happy lady. But
i'll still come visist or can i.
Linda c
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 11-04-03 11:29am
Come visit!
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jasontheduck
New User, Becoming EHEALTHy
Joined: 24 Nov 2003 Posts: 1 Location: Arizona
New to the Site-need Help Understanding Lupus Posted: 11-24-03 23:43pm
To anyone: can you explain the difference
to me between lupus and systemic lupus?
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cjw
New User, Becoming EHEALTHy
Joined: 25 Nov 2003 Posts: 1 Location: West Palm Beach, FL
Mom Diagnosed With Lupus, What's Next Posted: 11-25-03 09:56am
My mom has been a wreck since finding out
and want to know if anyojne has any advice
of what to do next? She's not thinking
too clearly and goes to see the rheumy
next - what questions should she ask and
how do we help her?
Any information on medication available
and vitamin and exercise?
Thanks.
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 11-25-03 12:13pm
Hi cjw! Welcome to the group!
There are lots of things you and your
mother can do!
1) keep a daily diary of all of her
issues...Pain levels, headaches, fevers,
etc.
2) take your medical records with you.
Make sure you have *all* of her lab
results.
3) a good overall site...Www.Lupus.Org.
4) write down 10 questions you want
answered by the doctor. Don't leave until
they have been satisfactorily answered.
This is just the beginning...But a good
place to start. If youhave any questions,
ask away. There are some great people
here with incredible knowledge on lupus.
Hugs,
ladybrannon
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003 Posts: 191
Sam43 Posted: 11-26-03 09:35am
I was wondering where sam43 is. I haven't
seen any post from her in awhile. I hope
she is doing well.
yes
i'm happy I just felt it in my bones that
it was a misdiagnosis and it was.
Nothing in the tests came back positive.
What happened last tests they were done in
the summer and I have a fry stand and when
I clean the grill I use an acid and that
sent my blood in a turmoil they think
because after retesting after being closed
for almost two months every thing came
back fine. Oh am I a happy lady. But
i'll still come visist or can i.
