Joined: 15 Mar 2005 Posts: 2 Location: boiling springs, sc
New Seizures Posted: 03-15-05 13:13pm
Help! My 15 year old daughter began
having "migraines" with dizziness, and
photophobia approx. 8 weeks ago. She
was tried on multiple medications and was
eventually put in the hospital for iv meds
and diagnosed with intractable migraines.
After a week in the hospitla we were sent
home on oral meds. The pain was about an
8/10. She did not improve and we
consulted with a new neurologist. Three
days after being discharged from the hosp.
We were readmitted where we spent 2
weeks. We were sent home on several
meds., one being depakote, a reduced
dosage. Several days after returning
home she began to have complex partial
seizures and we were admitted yet again.
She was placed on antiseizure medications
and within 20 minutes was back to her old
self. During all of this time she had
been "flat". We kept thinking it was the
all the medications. She was also placed
on an eeg for 72 hours. She had plenty
of "seizure activity" on the eeg. We
have not been given a diagnosis yet.
Hopefully we will later this week. She
is on dilantin, depakote and topamax and
has returned to being herself. However
she does have some confusion (when doing
school work or when she feels overwhelmed)
and some photophobia still. Does anyone
have any idea what diagnosis we may be
looking at?
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 03-16-05 21:21pm
It is best to wait to see what the neuro
says. Sounds like possible seizure
disorder. My daughter also first
presented with migraines and vertigo type
things going on.....
Your daughter may have a lot of things
going on as far as adjusting to that many
meds in a few short weeks. Some of the
confusion etc may wane in a few weeks.
Topamax and depakote do well to help most
migraines. There is a close connection
between migraines and seizures for
some...
Hoping things will settle down very soon
and it does sound like you are finally
getting some better answers!!
I have 2 teens with seizure disorders.
Both have had some dizzy issues as well as
migraines as well!
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pam s
New User, Becoming EHEALTHy
Joined: 15 Mar 2005 Posts: 2 Location: boiling springs, sc
New Seizures Posted: 03-18-05 16:02pm
Thank you for your reply. We did get a
diagnosis yesterday of nonconvulsive
status epilepticus. She will remain on
antiseizure meds. For 4 years and then
have another eeg, then go from there. At
least now we have a name and can move on.
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