I have lupus and where I live I cannot get
help. My hair is like seaweed and if the
wind blows it just blows right out you can
see it fly through the air but when I feel
good and no rash it grows thick and
healthly but when I flare up I am bald in
a few days my spots have never left and
they are getting darker but it is always
followed with female problems any advice.
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lizbet521
New User, Becoming EHEALTHy
Joined: 30 Sep 2003 Posts: 49 Location: Florida
Hair Loss Posted: 11-05-03 13:48pm
Hi,
i, too, experienced significant hair
loss--although, yours sounds worse than
mine. I bought a product package from my
hair dresser that was supposed to support
new hair growth. I was skeptical, but I
was desperate to try anything. To my
surprise, it worked great for me. I'm at
work right now, so I don't have the
bottles to look at & I can't remember
the name of it. It came in a set of four
bottles and was green. It worked so
well, I was able to stop using it after 90
days. I'll look for an old bottle when I
get home and post again. I'm sure if you
asked a hair dresser, he/she would know of
similar products.
Lizbet
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whyme
New User, Becoming EHEALTHy
Joined: 02 Nov 2003 Posts: 12
Lizbet Posted: 11-05-03 17:03pm
If you can help me I would be so happy I
am suppose to take x-mas pictures soon and
I am thinning I do not want to loose my
hair and wear a wig right now thank you
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whyme
New User, Becoming EHEALTHy
Joined: 02 Nov 2003 Posts: 12
Lizbet521 Posted: 11-05-03 17:07pm
Again thank you for answering me you do
not know what this means
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 11-06-03 01:10am
Lizbet...I, too, have heard of a product
made for follicle stimulation. I heard
about it at the salon I go to.
There are some other things you can do
too.
1) a lot of people claim that a shorter
hair cut makes it easier to deal with.
2) the wig (as lizbet said) or a thickner
(weave-like) peice may be something else
to think about.
3) hats...I have really come to love hats.
I'm not one for wigs because they make me
sweat even more than normal!
I hope this helps in some small way!
Hugs,
ladybrannon
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lizbet521
New User, Becoming EHEALTHy
Joined: 30 Sep 2003 Posts: 49 Location: Florida
Severe Hair Loss Posted: 11-09-03 04:19am
Hi,
sorry it has taken me so long to get back
to this message. I have looked through
all of my stuff, and I can't find one of
the old bottles of the product I was
using. I moved over the summer, and if
there had been just a little in the
bottle, i'm sure I would have thrown it
away. I also don't go to the same hair
dresser since i've moved. If you get in
contact w/ a salon and ask about a hair
follicle stimulating product, i'm sure
someone can help you. My package cost
$45 and with washing my hair every other
day, lasted me 90 days. Now that I think
about it, I think I used it for two
cycles. Sorry I can't be of more help.
Best of luck to you.
Lizbet
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daisy3
New User, Becoming EHEALTHy
Joined: 29 Nov 2003 Posts: 9 Location: Pennsylvania
Hair Loss Posted: 11-29-03 17:43pm
Hi,
i am a manager for a hair salon. There
are several products you can try: nioxin,
rogaine for women, scalp remedy by aveda.
You should consult your Dr. Because it
sounds like it may be from a hormonal
change that happens around your monthly.
Also medications and stress can cause
random hair loss. I would also suggest
that you avoid coloring your hair, using
hair products, and heat (hair dryer,
curling irons, washing with hot water).
Heat causes the folicle to open up.
There are some very attractive hair peices
that you can try. Use you real hair if
you can around the the front and sides to
make it look natural. These are only
suggestions and there is no guarentee
it'll work. Good luck. I know how you
feel! I hate going to work when my hair
is all........You know....In the drain!
Let me know how things work out for you.
If you would like I can try to find more
info for you from our supply companies.
Daisy3
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whyme
New User, Becoming EHEALTHy
Joined: 02 Nov 2003 Posts: 12
Daisy3 Posted: 12-07-03 16:16pm
No I do not loose my hair with my monthly
and if this is the case my monthly is 30
days long! And no I do not think you know
or do you understand what I am going
through and why is it that everything
people cannot find an answer to it has to
be your monthly! Of course I am not
backwards everyone knows no to use
chemicals or heating products you use
nothing that causes stress every lupus
person knows this . Was a hurtful reply
this is something that I expect from
doctors I pay 85.00 to hear not on this
site, its hurtful.
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daisy3
New User, Becoming EHEALTHy
Joined: 29 Nov 2003 Posts: 9 Location: Pennsylvania
Apology Posted: 12-08-03 14:49pm
Whyme,
i in no way inteneded to hurt your
feelings. I am very sorry. I was just
offering some advice. I think at some
level I do understand because I do have
lupus and do lose my hair as well. I
apologize .
Daisy
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