Hi everyone! I just found this board
today. I am glad that I found it!
I am currently in the waiting period for
my blood test results. I have about
another week left.
I have had symptoms of lupus since I was
14. At the time, the dr told my mother I
was too young to have it. Over the years,
(i am now 30) things have gotten worse and
new symptoms started showing up. (most I
never knew were even related)
i got sick last august with strep throat.
I never seemed to have recovered from it.
My dr kept telling me it was a "viral
thing" and would go away. Well, 8 months
later it hasn't gone away yet. I have
been out of work for a month now. I have
had a battery of tests done to rule out
different things. No one could seem to
find the answer. I have been running a
fever this whole time. If it wasn't for
that, I would think that the dr's as well
as myself would think it was all in my
head.
I finally saw a rheumatologist last week.
I was dx'd with tendonitis of the wrist,
shoulders, knees and ankles by my primary
Dr. That was almost 10 years ago. They
have gotten more painful over the years,
so I figured at best maybe I have
arthritis. When I looked into arthritis,
that is when I noticed a lot of my
symptoms all related to lupus. Those were
the things I brushed off.....The rashes,
the headaches, the sunlight sensitivity,
etc. Then I panicked having remembered
back to when I was younger and they
wouldn't test me. The rheumy agreed that
I have many symptoms and even things like
livedo reticularis....I thought that was
just my normal skin doing it's thing.
So, hopefully something will be conclusive
from all the bloodwork that was done.
I am really happy to have found a place
where people understand the frustration
and pain of trying to get a dx.
Pinkpanther74
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g26pa
New User, Becoming EHEALTHy
Joined: 07 Jul 2004 Posts: 14 Location: Texas
Lupus Sle Posted: 04-14-05 02:06am
Pinkpanther 74, hello, I remember going
through all the testing and waiting with
my sis who is 32yrs old and a single mom
of a 4 and 2 yr old. My parents now take
care of both full time since my sis was
diagnosed a year after her second baby.
Stay on top of the doc's since the problem
with diagnosis is that not every symptom
is the same. My sis is on predisone,
cellcept and other pain med's just to name
a few. My prayers are with you as you go
through the wait. If you ever need some
support or would like I am @ g26pa@yahoo.
Com.
Ann
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nadeentears
Experienced User , Rather EHEALTHy
Joined: 25 Jan 2005 Posts: 78 Location: Canada
Sle Posted: 04-23-05 19:32pm
I diagnosed with sle that was 6 years
ago.When first I diagnosed with it I was
panic and frustrated.I have no idea what
it looks like. All the time I was
thinking death but with the support of my
family and doctors I started to cope with
it. Each person has different symptoms.
They called it a disease with 1000 faces.
Try to keep all doctors appointment,take
your medication regularly,put sunsreen
whenever you go under the sun even in
cloudy days this will protect you from
lupus flare. Wear sun glasses, cover your
head with scarf. The sun is the main
factor in flaring lupus try to avoid it as
much as you can. You will save your life
and live longer don't worry.
