I have only had epilepsy for almost 4
years and I am still learning to deal with
it. And especially how people look at me
if I tell them. With my job I had to let
certain people know because of what I do.
And it has be hard and now with the
weight gain and being depressed too.
Some days are harder than others. I have
memory loss and I get very confused at
times and that really scares me. I
thought all thoughs things would get
better with medication and to my surprise
no...My friends and family have told me I
am different. I thought if I just took
the medicine and ignored what I had
everything would be the same and now I
realize it is not. Everyday gets harder
my doctor told me to exercise harder to
loss the weight and to not let things get
to me so much. Is he kidding......I have
tryed losing the weight and not to worry
or think about it so much. Well my life
is different and I quess I am too......And
I do not know how to deal with it.
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livingatlarge
New User, Becoming EHEALTHy
Joined: 08 Nov 2003 Posts: 2
Posted: 11-08-03 10:18am
Well comming from somone who has lived
there whole life with epilepsy it is hard
when your sisters get there drivers
licences and you are stuck not having one
and you are the oldest but a little bit of
encoragement is you have only lived 4 yrs
of your life when I have lifed 23 yrs of
mine with epilepsy
have a good day
livingatlarge
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phil dennison
Experienced User , Rather EHEALTHy
Joined: 14 Nov 2003 Posts: 71 Location: illinois
Posted: 11-14-03 22:10pm
Stop thinking of you and give your time to
people. Its the purpose in life.
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jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Almost 6 Years For Me Baby Posted: 11-16-03 11:07am
Celeste,
how old are you, how bad are they, are
you married, with children? I'm 44 now.
My life has done a 160, but life is very
different.
It all started when I left my husband in
98 in march. My first grand mal happen in
may of 98 right after the aura after
having them for 20 years from a car
accident in 77 when I was in h.S. (i
think). I did not know what they where
all those years. Went to 4 neuros they
all told me it would take 20 to 40 meds to
find the right one that would work for me.
Thats what they say for most of us epys.
After them suggesting b.S. I thought they
where nuts. So I was going to u.C. Davis
the first 2 yaers. Trying to hold my job
I had been working at 4 the last 5 years
as manager and clothing buyer for a retail
store, finally could'nt drive anymore
losing to much weight going to court to
much so my boss let me go because I was so
meesed up. I was missing 8 to 10 days a
month. My seizures where only getting
worse. So I went back to my doc and told
him to go ahead and go with the surgery.
Will then it was another 8 months of
testing along with 8 more months of trial
with that guy I was married to. He even
supeona my medical records to see if I was
a epy. So I had my brain surgery in june
of 2002 and got my judgement from the
judge in march of 2002 then his lawyer
took another 6 months to do her part.
They told me my chances of no more
seizures would be 40 to 60% and the other
% I would have tem still. So I still have
them. Not as often. I have had 5 or 6
g.M. And still auras.
The good news is I get to take the short
bus to work 2 days week 5 hrs day at old
job. Everyone I see they have missed me.
They tell me the clothes are not the same,
I need to go back to buy. I see a big
difference going back to work it is'nt the
same the girl that I hired that was 20 now
she 28 I love her to death. She has been
her for me thru all of this, she is really
trying to run the store. She wanted me to
come back and be like old times. Now she
wants me to deal with the bad public
realations. I keep telling her i'm not
the minkey with the key anymore you are.
It gets her goat but oh well. I go back
and organize the store again for her
because it has'nt been done since I left
over 2 years ago. But i'm doing my best.
Its hard because there is so much more
going on I have to keep my mouth shut. I
cant tell milt the owner. I'm just glad
to be back and to talk and sell cloths
again.
Your meds, are you on depakote? I tell
what they found in my brain write back
hang in there. Jamie oroville ca.
