I am from a small town that only has one
hospital. It has always been rumored to
be a bad place to go and if possible to
drive the 30 minutes to orlando but after
I had my first seizure I was of course
taken to the closest place. I was in the
hospital for a week and had the eeg, cat
scan, mri and everything else done and
they all came back fine. The on call
nuerologist suggested I start medication
because of the severity of the first
seizure and I took his word.
For the last 2 years I have been taking
600mg of dilantin and 400mg of topamax. I
was never given a cause for my epilepsy
though doing some reading I found that was
common. My side effects are high and
college hard, to say the least. My memory
is shot, i'm always tired, often irritable
and I find it harder to concentrate and
understand.
I went this past weekend to a new
neurologist out of town after waiting 6
months to get in for an appoitment. He
asked me questions, did a few tests and
looked at the films I brought from the
hospital from 2 years ago. He explained
that I had mesial temporal sclerosis,
which is not uncommon. However his
explination made the last 2 years make
perfect sense. Everything seems to fit so
well now and it frustrates me to think
i've spent so long not understanding when
the answer was so clear.
Apparently the hospital in my town does
not have anyone trained to read brain
scans in the radiology department. The
same person reads a scan of a foot, arm,
and a brain. I wonder if this is
common.
Sorry for the rant. I really dont know
anyone else with epilepsy and I always
feel that no matter how hard I try to
explain myself or my feelings its doubtful
anyone really understands me.
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 250 Location: Conn
Thanks: 2
Thanked:0
Posted: 04-19-05 12:51pm
I am so sorry you went 2 years without
proper treatment. I know that is so
hard.
It is worth waiting for a good doctor to
see results!
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Dakotalawdog
New User, Becoming EHEALTHy
Joined: 20 Apr 2005 Posts: 30 Location: ND
Posted: 04-21-05 19:17pm
That sounds familiar. I've been thru
over 2 1/2 years without someone figuring
out what is going on with me. I hope
i'll find out soon myself.