I'm 35 and was diagnosed with lupus in
2000, I had been treated with prednisone
and plaquenil and things were going great.
Met a great guy who is now my husband.
However, things are not great anymore.
My marriage is going through a very rough
period causing intense stress in my life.
I had pneumonia in february and the flu
at the same time and had to put my
beautiful kitty to sleep on monday. I
feel lupus flares comming on. Strange
skin changes on my fingers and hands, some
very painful. Doctor's said it is caused
by raynaud's (symptom of lupus), i'm tired
all the time, but the most significant of
all the symptoms is that i'm loosing my
hair, it used to be so beautifull and now
it is so thin that I can't keep it loose.
I look like a chemotherapy patient.
Doctors say they don't know if my hair
loss is due to the disease of the
stressfull situations i've been through.
I don't know what to do and all I keep
thinking about is how am I going to go
through the rest of my life with no hair?
How do I go to the gym? Or take a dip in
the pool? Or go to the beach? I've
considered a wig but don't know if they
look natural and if they will be a turn
off for my husband. I'm afraid he will
leave me for somebody healthy and with
hair! Loosing your hair feels like
somebody very close to you has died and
will never come back!!! Any woman out
there that has worn a wig? How is life
without hair for a woman? And do people
treat you differently? Do they notice you
have a wig on? Please help me with this
questions,
hopeful
|
Pilleus
Experienced User , Rather EHEALTHy
Joined: 22 Jun 2004 Posts: 109 Location: Florida
Thanks: 1
Thanked:0
Posted: 05-13-05 10:20am
I have suffered hair loss from
anti-depressants. I've lost about 1/3 of
it and it still falls out every day.
Still, probably not as bad as yours.
If it gets bad enough I will get a wig.
I worked with a girl who had chemo for
breast cancer and you would never know she
wore a wig. I guess it depends on the
style of wig.
I've tried shen min vitamins but they are
expensive and didn't really help that
much.
Have you tried rogaine for women?
|
DelCarmen
New User, Becoming EHEALTHy
Joined: 13 May 2005 Posts: 3
Posted: 05-16-05 13:40pm
Yes, i'm currently on rogaine for women
but I don't know how well it works since I
just started using it. It takes about
four months to see any results, I will let
you know in about 4 months if my hair is
back. Thanks for your reply
hopeful
|
BlakkStarr1
New User, Becoming EHEALTHy
Joined: 27 Dec 2005 Posts: 12
Re: Lupus And Hair Loss Posted: 01-02-06 21:05pm
delcarmen
wrote:
i'm 35 and was diagnosed
with lupus in 2000, I had been treated
with prednisone and plaquenil and things
were going great. Met a great guy who
is now my husband. However, things are
not great anymore. My marriage is going
through a very rough period causing
intense stress in my life. I had
pneumonia in february and the flu at the
same time and had to put my beautiful
kitty to sleep on monday. I feel lupus
flares comming on. Strange skin changes
on my fingers and hands, some very
painful. Doctor's said it is caused by
raynaud's (symptom of lupus), i'm tired
all the time, but the most significant of
all the symptoms is that i'm loosing my
hair, it used to be so beautifull and now
it is so thin that I can't keep it loose.
I look like a chemotherapy patient.
Doctors say they don't know if my hair
loss is due to the disease of the
stressfull situations i've been through.
I don't know what to do and all I keep
thinking about is how am I going to go
through the rest of my life with no hair?
How do I go to the gym? Or take a dip
in the pool? Or go to the beach? I've
considered a wig but don't know if they
look natural and if they will be a turn
off for my husband. I'm afraid he will
leave me for somebody healthy and with
hair! Loosing your hair feels like
somebody very close to you has died and
will never come back!!! Any woman out
there that has worn a wig? How is life
without hair for a woman? And do people
treat you differently? Do they notice
you have a wig on? Please help me with
this questions,
hopeful
i am currently on prednisone and plaquenil
for sle and have been expreiencing hair
loss for about 4 - 5 weeks. I believe
it is the pred that is causing it. Hope
that once I am off of it, the hair loss
will stop, as well as the other side
effects.
|
BlakkStarr1
New User, Becoming EHEALTHy
Joined: 27 Dec 2005 Posts: 12
Re: Lupus And Hair Loss Posted: 01-02-06 21:07pm
delcarmen
wrote:
i'm 35 and was diagnosed
with lupus in 2000, I had been treated
with prednisone and plaquenil and things
were going great. Met a great guy who
is now my husband. However, things are
not great anymore. My marriage is going
through a very rough period causing
intense stress in my life. I had
pneumonia in february and the flu at the
same time and had to put my beautiful
kitty to sleep on monday. I feel lupus
flares comming on. Strange skin changes
on my fingers and hands, some very
painful. Doctor's said it is caused by
raynaud's (symptom of lupus), i'm tired
all the time, but the most significant of
all the symptoms is that i'm loosing my
hair, it used to be so beautifull and now
it is so thin that I can't keep it loose.
I look like a chemotherapy patient.
Doctors say they don't know if my hair
loss is due to the disease of the
stressfull situations i've been through.
I don't know what to do and all I keep
thinking about is how am I going to go
through the rest of my life with no hair?
How do I go to the gym? Or take a dip
in the pool? Or go to the beach? I've
considered a wig but don't know if they
look natural and if they will be a turn
off for my husband. I'm afraid he will
leave me for somebody healthy and with
hair! Loosing your hair feels like
somebody very close to you has died and
will never come back!!! Any woman out
there that has worn a wig? How is life
without hair for a woman? And do people
treat you differently? Do they notice
you have a wig on? Please help me with
this questions,
hopeful
i am on both prednisone and plaquenil and
have been experincing hair loss for the
last 4 - 5 weeks. I believe it is cause
by prednisone. Hopefully, once I am off
of it, the hair loss and other side
effects will subside.
|
Scrat
New User, Becoming EHEALTHy
Joined: 27 Jun 2008 Posts: 1
I have lupus and want help.....but so far, have gotten none..... Posted: 06-27-08 21:59pm
I have been to three different
Rhuematologists who all tell me the same
thing.
They don't know what to do for me. They
tried plaquenil (I may have misspelled
this) and some other stomache wrenching
stuff that nearly killed me. Seriously.
I have been stuck with prednisone for
nearly three years now. My hair has
almost all fallen out and I STILL break
out.
I am about to launch into more and more
investigations as to how to get rid of
this mess once and for all through home
based rmedies and diets. I don't know if
they will work, or not. I don't want to
pay someone for their books, either, as
I've been THAT route as well, finding I've
spent money on something that just tells
me to go out and spend a lot MORE money on
products i can't afford at whole food
stores.
If anyone has come up with something that
worked for THEM, I would apprciate some
help and if I can be of some FREE help to
someone in the future, I WILL GLADLY DO
SO!!!!! I wouldn't say this, if I didn't
mean it. I know what this suffering is
like, having been rushed t the emergency
room seven or eight different times.
I truely BELIEVE, THAT DOCTORS KNOW HOW TO
CURE LUPUS, BUT BECAUSE THEY WORK HAND IN
HAND WITH THE INSURANCE COMPANIES AND
PHARMACUTICAL COMPANIES, THEY DON'T WANT
TO HELP FOLKS LIKE US. if i am wrong,
it's on MY head and hands, but I have not
yet found a "doctor", who knows anything
about my troubles, or even seems to care.
I have begun to see "doctors" like this:
IF THEY BARK LIKE A DOG AND QUACK LIKE A
DUCK AND ARE WEARING A STETHESCOPE AROUND
THEIR NECK AND HAVE ON A LONG WHITE COAT
AND WON'T LISTEN TO ANYTHING ONE HAS TO
SAY, YOU TRUELY ARE TALKING TO A
"DOCTOR".
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