Lupus Forum - to Marcie!
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to Marcie!

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LadyBrannon

Active User, Really EHEALTHy
Joined: 17 Jul 2003
Posts: 506
Location: TX
to Marcie!
Posted: 11-09-03 10:12am

Welcome marcie! Nice to meet you! This is an awesome group!

There are some things you can do. You can ask your doctor about samples...

You can contact the pharmaceutical companies and see if you qualify for their assistance programs.

Also, why did you stop plaquenil? (please forgive me if you said, I don't always do so well on the memory stuff! Smile

hugs,
ladybrannon
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Karl R Powell

New User, Becoming EHEALTHy
Joined: 30 Oct 2003
Posts: 30
Location: Phoenix Arizona
New to This Forum
Posted: 11-10-03 13:34pm

I recently started reading letters in this forum,, i'm also new to cumputers as well. I wrote one message and ended up sending it to myself! Laughing i'm also listed under my husbands name due to the fact that when I tried to put in my name it was already in use Surprised not being to swift with cumputer stuff, I just put in my husbands name and it took :d anyway i'm interested in this forum because now after being diagnosed with fybromyalgia, which I never belived was the real name for this monster i've been dealing with for years, pain, fatiuqe, insomnia, rashes, blood in my urine , terrible eye pain from dry eye that tear replacement drops only seemed to irritate more ! And pain from constacondritus with titses syndrome, and hoshimotos thyriodytius, blurring vision, headaches, mouth sores, as well as nose. Carpul tunnel, degenerative disc disease, ibs, pain at times in my lungs on deep breathing. Stiff swollen joints,general weakness, loss of muscle tone, ( I was a professional dancer in my youth!). Now I have problems carring a glass of water ! I have good days, altho right now I cant remember the last one Crying
or Very sad i'm on disability , which took aver 4 years to get Exclamation unfortunately it is a mental disability, due to depression,and shor term memory loss, and mental cunfusion Confused I also after all my life having low blood pressure, now have hypertinsion, and mytal valve prolaps, angina. Irrithmia, and I believe last year I survived a heart attack , this is because , I believe god still loves cowards Embarassed I hate doctors I could tell some pretty grim ones of experiences in military hospitals , and near death Rolling Eyes anyway I have 8 children and some of my daughters I believe have lupus, one in particular has suffered sever asthma all her life this past satuday I had her at the hospital , and after x-rays they pointed to a large area of somthing Question and said if indeed I have lupus maybe she does as well, and in any case lupus could be behinmd the areas in her lungs or..... Crying
or Very sad of course we are hoping for lupus being the cause, I am also hoping some one ut there could tell me how lupus could do this Question thank you so much my name is lily Smile
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LadyBrannon

Active User, Really EHEALTHy
Joined: 17 Jul 2003
Posts: 506
Location: TX
Hi Lily!
Posted: 11-10-03 20:46pm

Welcome to the group! It is nice to meet you!

Your last question: how can lupus do this?

Lupus is an autoimmune disease that attack *any* organ system in the body...*any*

you mentioned the lungs...Yes, the lungs, brain (cns), kidneys, heart, skin, joints, liver, etc.

I wish you all the best.

Speaking for a personal point of view, I have recently found out that there are several people within my family that have it/had it too.

There are some tests you can ask to have done. If you would like more information, let me know!

Warm hugs to you and your daughters,
ladybrannon
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