Doctors Keep Putting Me Off Acting As If the Pain Is In My Posted: 05-29-05 22:37pm
Hi!
I am at a complete loss, I have been in
extreme pain for a year. I have headaches
that come and go, I have blurred vision,
muscle jerks, studdering, can't tell time
on a normal clock, I can't rember how to
read many different words, I have trouble
writing things, I can't walk on my own and
am in a wheel chair most of the time, I
get nauseated, and so many other things.
I have had a mri, vep, have went to
specialist after specialist and two
doctors have said they truly believe it is
ms but the ms specialist is saying she
doesn't have enough evidence to prove that
and so she won't say that it is ms. The
mri does have spots but because I have had
migraines it may be caused by that. I
have almost every symptom of ms but no one
will help me and at least figure out what
is wrong with me and so I am on a ton of
meds and they aren't fixing it just
disguising the problems.
What should I do, I am scared to
death!!!!!! :cry:
christy
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cklballs
New User, Becoming EHEALTHy
Joined: 10 Jan 2006 Posts: 2
I'm Sorry Posted: 01-10-06 13:31pm
:(
i am so sorry that you are going through
this situation. You are in my prayers.
I have had mri's and lp's and here and
there weaknesses, headaches, etc.
Don't feel alone.
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Posted: 01-10-06 14:21pm
I totally understand where you are coming
from, after a fall in 2003 my health has
been down the tubes, testing and more
testing, meds,meds and more meds. I just
decided to back down from some of my meds
and try to do the best I can, from one day
to the next and hope tomorrow will be
better. My Dr. Keeps thinking I have ms
also, whatever it is I have to keep going
the best I can. No, you are not alone.
I have a friend of mine that has ms and it
tookt hem 13 mri's to find it. I know
that I do have rsd/crps and other problems
such as ddd and djd and fibromyalgia.
Their is a test that might help that is
called a emg, have you had this done? I
am no Dr., but all I can do is speak from
experience. I just call it old age!
Keep in touch!
I hope they have found something by now!
I just realized this post was started in
may of "05"
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cklballs
New User, Becoming EHEALTHy
Joined: 10 Jan 2006 Posts: 2
Thanks Posted: 01-10-06 21:01pm
I recognized that it was dated quite a
long time ago.
Well, maybe she reads them. I have never
heard of an emg before but I can add it to
the list of tests that i'm requesting from
my doc's. It is funny that i'm telling
them what kind of test I want.
I have learned recently just to do the
best I can. An er doctor by the name of
Dr. Wisdom told me. How funny. One
thing that I do, also, is to pray and
meditate and speak to my body to line up
with god's word. God's word talks about
healing and many other things. It has to
obey. Now, i'm not god and he is still
soverign, but atleast, i'll give it all I
have in faith. I know folk who were
given a report that was horrible, and they
prayed and believe for it and waited for
god, and it happened, even when there was
no hope. My mother for one was told that
she had terminal cancer, and now she is
well. My friend's mother had a brain
tumor, no lie, and she had it removed and
the next day was released from the
hospital to go home. My friend felt
happy yet so sad for the individuals in
the waiting room who were not told that it
was time to take mom home.
I do not know why things happen or not,
but I choose to believe.
I will take your info to heart. Sorry to
write so much, just happy.
:lol:
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Lymie
New User, Becoming EHEALTHy
Joined: 16 Jul 2006 Posts: 5 Location: canada
Posted: 07-16-06 23:56pm
Have you been tested for lyme disease
through a reliable lab like igenex or
bowen?
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Tessie
New User, Becoming EHEALTHy
Joined: 12 Aug 2006 Posts: 5
Ms Posted: 08-13-06 11:44am
Please try to read the book "missing
diagnosis" by c orion truss. It has
helped me when the doctor's made me feel
like it was all in my head. Maybe your
library has it? I'd send mine to you if
I could. It is only the beginning.. It
all leads to another book and another and
then I found the body ecology book that
puts them altogether, but doesn't provide
all the explanations that the individual
books provide. Sometimes its easier to
do something "odd", "new", or "strange",
if you know why! Hth aplacefortess at
yahoo dot com
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