Endometriosis And Lupus

I have never heard of the combination of the two ever. I was diagnosed with endometriosis about 10 years ago and then diagnosed with lupus sle on may 11, 2005. I know nothing about the two being related, sure would be great to find out more! How are you doing? Now, were you diagnosed with lupus or just concerned? Can't wait to hear from you, gena

I'm 25 and i've had endo for about 10 years. Recently my endo has become severe and i'm facing infertility so my partner and I are trying for our family now.

Then I got a letter from the doctor to say after 2 negative tests, i've finally tested positive for lupus. I get aching feet, sometimes sore wrists, sensitivity to light, and of course the rash.
Not very pretty for a flight attendant...

Would be great to hear other experiences, particularly those of pregnancy with endo and lupus.

Kat :d

I have had endometriosis for as long as I have had my period. I have always had horrible, painful periods. I have even had lesions removed from my fingers and back. When I was 20 they told me that I would probably never be able to have kids. However, my husband and I were surprised by our first of three children when I was 24. During all three pregnancies my endometriosis went into remission, but during my first pregnancy I became really sick with other symptoms that seemed to get worse after I had my daughter and with each subsequent pregnancy.

It started with swollen joints, aches and pains, constant infections such as recurring step throat and pleurisy. I seemed to come down with every bug in the world and I would be wiped out for weeks at a time. I was finally diagnosed with lupus and mixed connective tissue disease last fall. I have been doing a lot of reading about all three conditions and it appears that there is a lot of evidence that they are related. Ironically, the only thing that has offered me any relief from the endometriosis was my pregnancies, and my first one is what most likely brought about the lupus. They say it lays dormant in your system and stressfull physical conditions can bring it out such as pregnancy. That is why so many wonen in our age group are diagnosed with it.

There is one more thing you should know if you are thinking about becoming pregnant while you have lupus. It can be transferred to the baby. My second daughter was born with neonatal lupus. It isn't the same thing as lupus sle and most children out grow it by the age of 2, but it causes rashes and scary high fevers at about 3 weeks. Since they did know I had lupus at the time they had know idea what was wrong with my daughter. She had to have a spinal tap on her 3 week birthday. I was never so scared in my life. She is three now and continues to get her fevers and rashes. She has had a seizure and developed a heart murmur from the fevers.


They are having problems treating my lupus now because I get so sick with the endometriosis, so I am going to have a hysterectomy. At least then I will only have the one thing to deal with. I am sick so often that I feel like a bad mother and wife. I feel like it has taken over my life.

I don't know if this will help anyone. I hope it does. There is a ton of information out there on the internet. Make sure you check it out.