Rare: Female With Full Blown Alport's...not Just a Carrier! Posted: 06-08-05 21:50pm
I'm interested in knowing info and sharing
info with others that might be female with
alports. Alport's usually affects men
much more severely, and women are usually
carrier's. This is not always true. I
have alport's and am female with
substantial hearing loss and some recent
cornea and eyesight problems.
I would be interested in learning of any
other females with alports. I also would
like to hear of any successful
transplants, the drawbacks, highpoints and
maybe suggestions of anything I can do,
diet wise, etc ......To postpone esrd as
long as possible.
Im 42 and have a 7 yr old son. I have a
hubby willing to donate, but do not know
how you do a volunteer donor? I've read
that you dont necessarily have to wait, if
you have live, willing, donor.....But how
do I get that ball rolling?
Any info will be appreciated........
One last thing........Anxiety level?
Anyone had panic attacks since being
diagnosed and what medications if any seem
helpful?
