Back in 2001 I was told I have
fibromyalgia. Since then I have been
through alot of changes along with
herniated discs in my lower back and in my
neck. Along with asthma, i.B.S,
depression, and anxeity, and panic
attacks. So what is a person to do? When
I first got fibro I could barely walk I
use to have a wheel chair and a walker. I
have started excercising more as the dr
requested and I still cannot walk long
distance and cannot stand or sit for a
long period of time. Let's not forget not
sleeping unless I take elavil that makes
me to sleepy in the morning. I'm fighting
for my ssb and ssi.
Will someone please help me! I have done
all that the dr has requested and still no
change. I force myself to do things, but
I pay for it the next day for sure.
I'm 35 years old with a nine year old son
that doesn't understand and a husband that
is more understanding that any woman can
ask for.
Sincerely,
"just want to be myself again." :p
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Darcy
New User, Becoming EHEALTHy
Joined: 17 Sep 2003 Posts: 8 Location: CT
Fibromyalgia Posted: 12-26-03 00:32am
Dear cyluv,
my aunt has fibromyalgia and has not found
the treatment she needs. Are you
undergoing any treatment? Have you found
the right doctor? Is your condition
improving? I'm just worried about my aunt
b/c she cannot walk somedays.
Thank you
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Unavailable
Post temporarily unavailable Posted: 12-28-03 17:30pm
This post is being reviewed and is temporarily unavailable.
Karl R Powell
New User, Becoming EHEALTHy
Joined: 30 Oct 2003 Posts: 30 Location: Phoenix Arizona
Fibromyalgia Posted: 12-28-03 20:10pm
Don't for one moment think that know one
cares. I have suffered from fibro for a
long time.Ihave 100% disability now ...It
took 4 years and going to all the doctors
that the government sent me to. But there
are things that can be done, for pain ,
sleeplessness, and depression, and there
are often times other things going on that
the diagnoses seems to hide, because once
the doc says you have fibro, everything
is attributed to the same thing, and the
docs will throw up thier hands and say its
your fibro theres nothing we can do.
Don't forget to keep your eye on, lupus,
it comes wrapped in alot of the same
symptoms as well !! Don't give up! I
find sometimes ai have to just ignore the
pain grit my teeth and do what needs to be
done. Go to the fibromyalgia forum for
careing people who have same problems.
Lily
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Fibromyalgia Posted: 09-23-04 17:44pm
Hope all is doing better by now! I know
these are old posts, but, I wanted to get
my two cents worth!
I was diagnosed with fibromyalgia over
seven years ago and I know, it s-u-c-k-s!
I realize, we are all different, the only
thing I can suggest is to keep moving(i
know, easier said than done). I have to
fight with myself in the mornings to just
get up out of bed! You have to keep
moving to keep your mind off of it! You
can still have a life!
Heck I am 52y/o. I also have chronic
fatigue syndrome, peripheral neuropathy,
lupus, complex regional pain syndrome. I
work anywhere from 8 to 12 hours a day, 6
days a week. Heck, if I can do it,
anyone can do it!
Sincerely
sandy
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Health Angel
Experienced User , Rather EHEALTHy
Joined: 14 Nov 2004 Posts: 141 Location: Australia
Hi Posted: 11-16-04 05:09am
Im 21 and was diagnosed with fibromyalgia
when I was 19. Since then ive had all
kinds of problems. Like stuck in bed for
6 months with glandular fever. But I
dont know if this helps or not but I find
taking multivitimins and not over doing
the exercise like gentle swimming
helps....... I think the most important
thing to do is stay positive and talk
about it. Because I dont know how many
people have laughed at me when I said I
had fibromyalgia and put me down saying it
isnt a real disease but I got though it, I
still have my bad days but ive got a long
life ahead of me hopefully so I guess I
just have to get on with it.
:p
