Parkinson Disease Forum - Please Help Me :(


Please Help Me :(

Medical Questions-> Health Forums -> Parkinson Disease -> Please Help Me :(

Medical Questions

Author

Message

bonsgirlie!

New User, Becoming EHEALTHy

Joined: 13 Jun 2005
Posts: 7
Location: United Kingdom

Please Help Me :( Posted: 06-13-05 11:47am


Please please help me :( i'm 14 years old and my dad was recently diagnosed with parkinsons disease. I never ever imagined that the disease could be this heartbreaking. I've had to watch this caring, kind , strong man turn into a severly depressed, constantly- tired man. The thing that worries me is that his neurologist doesn't seem to be helping very much. The medication he has been on since october 04 has not worked and all the neurologist does is up my dads doses. When my dad does take the medication it makes him feel awful and he can't walk. He has told all of this to the neurologist but he said we just have to get on with it. The only thing I can think of that is making my dad respond to treatment in this way is that he still drinks 4-5 pints a day. Could this be the problem? Also my dad is getting no sleep at, is suffering with restless legs and keeps mentioning suicide. He is literally falling apart. Please, if anyone who is reading this has had the same symptoms as my dad or has someone they know who also responded this way to treatement, please let me know. Any information right now would help me so much. I really appreciate any help. I'm truly sorry if anyone who is reading this has been disturbed by any of what I have written, I completely understand your feelings and I apologise from the bottom of my heart. Please help me :(

expder

New User, Becoming EHEALTHy

Joined: 08 Oct 2005
Posts: 9
Location: Australia

Has Your Dad's Situation Changed? Posted: 10-08-05 17:07pm


I only just saw your plea for help and find it difficult to believe you had no replies. If you are still checking these pages and your dad is still in need of help please let me know as I think I can suggest some things that can be done. Dont give up girlie! :)

soleilMia

New User, Becoming EHEALTHy

Joined: 19 Sep 2005
Posts: 1
Location: Newport News, VA

Posted: 10-08-05 19:46pm


You know what, I am 32 years old, and my dad is in the same situation. And I am in the same sorrowful situation as the poster. I wish I could say something helpful... But this has grown increasingly difficult. I can only feel your pain, and hope that somebody out there can say something that will give a positive response, in any way. This is so terrible, in every way. It is even worse when the 'parties in question' refuse to deal. With it, or each other. I am at a loss.

expder

New User, Becoming EHEALTHy

Joined: 08 Oct 2005
Posts: 9
Location: Australia

How Long Medicated Mia? Posted: 10-08-05 21:38pm


There are things that can be done mia. First of all how long has your dad been on medication?

bonsgirlie!

New User, Becoming EHEALTHy

Joined: 13 Jun 2005
Posts: 7
Location: United Kingdom

Posted: 10-10-05 10:53am


[quote="soleilmia"]you know what, I am 32 years old, and my dad is in the same situation. And I am in the same sorrowful situation as the poster. I wish I could say something helpful... But this has grown increasingly difficult. I can only feel your pain, and hope that somebody out there can say something that will give a positive response, in any way. This is so terrible, in every way. It is even worse when the 'parties in question' refuse to deal. With it, or each other. I am at a loss.[/quote thank you so much for taking the time to reply to me, and let me first apologise for taking so long to reply, but my gcse courses are now beginning and i'm finding that I have little time to myself! Since I first wrote about my dad's struggle with parkinson's disease, my dad decided to go private, and is seeing a lovely man who has somehow managed to give my dad a course of treatment thats working for him. His walking has improved greatly, it's mostly the depression and anxiety that still needs to be tackled. I really hope your dad is able to find the right combination of treatment, my dad is proof that there can be ways out, and in most stories you hear of there always are. I hope by the time you receive this reply, your dad has got better. I know how you must be feeling, but I can assure you that when your dad finds treatment that works for him, his quality of life will improve. It does take time, but the results will be worth it. Thank you again.

bonsgirlie!

New User, Becoming EHEALTHy

Joined: 13 Jun 2005
Posts: 7
Location: United Kingdom

Re: Has Your Dad's Situation Changed? Posted: 10-10-05 11:02am


Thank you so much for replying to me! To be honest I was thinking I was the only person in the world that was in this situation! Nobody seemed to want to help me! :( thankfully, my dad has seemed to improved due to a new course of drugs his new doctor has given him. Although most people are against going private, I believe it's a great thing to do as it's helped my dad greatly. His old doctors literally done nothing, and it got to a stage where my mum and I were seriously thinking of complaining. Doctors are there to help, and most of them do a fantastic job, but in my dad's experience, we found out that not all of them are as helful. Even though things seem to be going well at the moment, i'm still very interested to know what you think could help more. Thank you. (i'm so sorry I didn't reply to you sooner, but the holidays were busy and now my gcse work is hectic. Next time i'll be quicker!)

expder

New User, Becoming EHEALTHy

Joined: 08 Oct 2005
Posts: 9
Location: Australia

Depression Help For Your Dad Posted: 10-11-05 16:35pm


I have parkinsons and get very depressed if I do not play classical music in the background. A friend of mine read where a man cured himself of pd just by listening to mozarts harp music, so she went out and bought me a mozart cd and I must admit the only time I get depressed is when I have not been playing the cd. I just have it playing in the background. I feel sure this will work for your dad too. You did not say how long he has been on the medication. I am pleased that he is feelng and getting around better

bonsgirlie!

New User, Becoming EHEALTHy

Joined: 13 Jun 2005
Posts: 7
Location: United Kingdom

Re: Depression Help For Your Dad Posted: 10-12-05 10:52am


Wow that's so interesting. Thank you so much for that, i'll go out at the weekend and see what I can find. Sorry I forgot to say how long my dad had been on medication. Well he was diagnosed last october, probably a year ago round about now and he started medication straight away, but then decided to stop taking it as it wasn't helping him and he was feeling awful. His only relief was to drink, but he's now found that sticking to these new tablets that his doctor he now has having gone private had given him have helped greatly. He does have his good and bad days, and even though on the outside I can see improvement in his walking etc, he still feels rough on the inside. Thank you once again for sharing your information with me. I appreciate it.

expder

New User, Becoming EHEALTHy

Joined: 08 Oct 2005
Posts: 9
Location: Australia

Parkinsons Natural Remedy Posted: 10-18-05 16:52pm


Hi girlie, i have been away for a few days to newcastle and I was wondering if your dad has found any relief with the cd you were going to purchase. I play mine right through the night. The reason I asked how long he has been medicated for is because I am making remarkable recovery on my treatment which is drug free but it apparently only works on people who have not been on medication for longer than 4 weeks. However, there is something else - natural and drug free. I have been in touch with the author of this site as I know other people who do not wish to be on drugs (they are only making the drug companies rich and ruining their livers) but they have been medicated too long to do what I am doing. This man lives in australia and seems very genuine. It is not an expensive treatment and I was going to do it before I discovered this. This treatment costs me absolutely nothing. Anyway, girlie, look up this site and tell me what you think please. Http://www.Parkinso ns-success.Com/index.Html if you can't find it let me know. Good luck with your exams. Ps my daughter is going to the u.K. Next week

bonsgirlie!

New User, Becoming EHEALTHy

Joined: 13 Jun 2005
Posts: 7
Location: United Kingdom

Re: Parkinsons Natural Remedy Posted: 10-19-05 13:47pm


Hi. My dad wouldn't let me buy a classical cd for him as he says the music makes him sad. He's such a softie! I clicked on the link you posted but unfortunately, the page couldn't be displayed. I've seen some great natural remedies before though, but my dad doesn't seem to want to try them. He's coping with the other medicine. I'll keep you up to date with how things are going with medication etc. Thank you for all the help and information you've given me!, you've been so nice to talk to. Thank you. P.S. I hope your daughter has a great time here in the u.K. It's quite cold at the moment (which isn't really any different to how it normally is!) and we're in for a very snowy winter apparently because our summer lasted longer this year. Tell your daughter if she wants to 'taste' britain, she should head to one of the famous 'toby carvery' restuarants. It's an all day buffet with some typically english things to choose from! Also, my uncle has just received his visa to live in australia. He willl be moving to melbourne next may once his wife has had the new baby and the medical checks are all done.

expder

New User, Becoming EHEALTHy

Joined: 08 Oct 2005
Posts: 9
Location: Australia

More Information Posted: 10-24-05 17:12pm


Hi girlie, i am sorry it has taken me so long to reply. I am in the process of getting a parkinson's no drugs support group up and running. I am disappointed that your dad has decided to stay on the medication and not try natural therapies. Does he not know the damage those drugs do to your liver? I am also disappointed with his decision regarding the cd too. I dont like listening to classical music all day either but I find that if I play mozart all night I am definitely feeling happier the next day. I have since found out that the beat of mozart's music resonates with the right side of the brain. Apparently it is the same beat which I thought very interesting. This is another address for the same site I gave you last time girlie: www.Parkinsonsdiseasecure. Com i hope your father will read it and see that he is just lining the drug companies coffers with money while at the same time damaging his body by continuing with medication. He is so lucky to have a caring daughter like you. Thank you for the info about toby carveries girlie. I told my daughter and she is going to look out for the restaurants. She has been to the uk before, but now they are going back to look for a job for her husband. She wants to live over there. She would be winging her way over there right now actually and is due to arrive approximately 5 p.M. Our time. Maybe you will get to visit your uncle out here one day :) have a great day girlie! Robin

bonsgirlie!

New User, Becoming EHEALTHy

Joined: 13 Jun 2005
Posts: 7
Location: United Kingdom

Re: More Information Posted: 10-26-05 09:58am


Hi again, thank you for giving me a new link to the website. I've read half of it so far. I think its discusting the way some of those neurologists carry on. How dare they let people suffer. I'm so glad I got to read some of it, because it's totally widened my understanding of them. I'm buying my dad a cd this weekend whether he likes it or not! It's amazing how the beats can in mozart's music can resonate with the right side of the brain. I found that very interesting too. My dad does know the music can help him but I think he's found himself at a crossroad. He doesn't know whether to try new things or stick to what he's used to and follow the road down as far as it'll go. My dad and me are going to read the rest of the information on the website tonight. I'll get back to you soon and let you know what he thinks.

expder

New User, Becoming EHEALTHy

Joined: 08 Oct 2005
Posts: 9
Location: Australia

Thank You Girlie! Posted: 10-26-05 16:29pm


Thank you for putting a smile on my face once more. Life can be frustrating at times when people get suspicious of your good intentions - not you, but other people I have tried to help who reply "no, I will stick with what the doctor tells me." I hate seeing or hearing of people suffering when you know they are being deceived by money hungry people. Then when someone like you comes along you feel the effort is all worthwhile. You are a very smart and very caring young lady. I wish you and your dad every success girlie,, robin

philipt

New User, Becoming EHEALTHy

Joined: 24 Sep 2006
Posts: 1
Location: sussex england

How Is Your Dad Now Posted: 09-24-06 10:08am


I am a dad of a 14 year old. I was put on some medication which changed my personality completely and after about 8 months came off it all together. I coped quite well once I had got used to the diagnosis and then my symptoms got worse and I had to give in and go on a different medication which has helped me a lot for about 1 year now. I am 39 and was diagnosed at 37. It was a big shock but we have changed our lifestyle and now appreciate the calmer life and everything we do together. We were not happy with our doctor either and my wife found me the top consultant in england (actually in the world) his name is dr bain and he is based in londons cromwell hospital near earls court. Worth the journey. We sent someone else we know and she has been much better off with him too. I can let you have his details if you would like them or if your dad would like someone to talk to I could also do that. Let us know and be brave. X

sandyallen

Extremely EHEALTHy

Joined: 02 Feb 2004
Posts: 4580

Bon'sgirlie Posted: 09-24-06 14:17pm


Bump! I am soory to hear of what you, your .Dad and your family has had to go through and I am glad that your dad is doing better now and I hope it continue's. I too live in pain and have neuro problem's but I do my best not to try and let it get me down, I think it is bad enough but with the stress and then you add the alchohol, it really must make it worse as I used to work for an alchoholic and it was really sad. You must be really strong to see your .Dad in a shape like that and to be so young. I was 7 when I lost my .Mom with cancer and 40 when I lost my dad with alzheimer's(that was terrible) to see a man go from 225 lbs. To not even 90 lbs. And did not know anyone but yet he did have his moments. I have to hand it to you, a girl like you is really something special. I have been on so many meds from herbs, natural to the real stuff and although alot of the real stuff has it's side effects at times it is about the only thing that really helps but we are all different. All the best to you and your family! Big hugs!

cassandra2

New User, Becoming EHEALTHy

Joined: 04 Apr 2008
Posts: 17

hello Posted: 04-04-08 21:25pm


Hello, I'm really sorry that your father is going through this really hard time with battling Parkinson's disease because it's not easy. It's a really hard disease..slow eating disease that will never get better, just gets worse, unfortunately because it sucks. I understand your feelings because it's really hard watching someone you love go through this and suffer. It's not easy at all. Just basically at this time all he really needs is support and help from you and your family when he needs it. Just try to do things with him and keep him busy as much as possible so he doesn't have time to think about those negative thoughts. I know that my grandfather at times says negative things because he gets frustrated about having the disease and doesn't know what to do to get better, you know? I really hope the best for you and your father. Let me know how things go and if you need any other help/opinions or just wanna talk feel free to message me.