Joined: 31 Jul 2003 Posts: 1 Location: oklahoma city ok
my son has just been diagnosed with epilepsy Posted: 07-31-03 14:12pm
My son was diagnosed with epilepsy in June
of this year. The doctors tell me that the
epilepsy is caused by the damage done to
his brain last summer when he contracted a
very rare disease called Acut Disseminated
Encephalyomyelitis. He was in a coma for
12 days and had to learn everything all
over again. I am very lucky to still have
him with me, I am just trying to learn
how to cope with this New development.
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plambert
New User, Becoming EHEALTHy
Joined: 23 Jul 2003 Posts: 7 Location: Dallas, TX
Your Son Posted: 08-06-03 10:56am
Sorry to hear about your son. My son was
19 when he started having grand mal
seizures, no head injury or cause was ever
found. Hopefully your son is young
enough that he may stop having them.
Does he have seizures often? Sorry to
say though, that there is not a lot we can
do accept be there for them. Have you
heard about the ketogenic diet? It's a
high fat diet that has helped kids stop
having seizures. Doctors know little
about how it works, but 70% of kids who've
done it have stopped having seizures.
Heard about it on dateline then read more
on the internet. My son is too old, it
apparently works better on children, and
you have to have a doctor help you with
it. (my son isn't covered on my ins
anymore) you might look into it.
Noticed your from okc, grew up their, job
transferred me to dallas. My prayers are
with you.
